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Switching Transplant centers for post transplant care

Posted by schwartz26 @schwartz26, May 9 9:02pm

Hey everyone. I am new here. I have had two kidney transplants at the U of M and would like to transfer care to Mayo Rochester. When I mentioned this to the U, they told me Mayo would never allow this. Has anyone transferred to the Mayo post transplant? Thanks for you time!

Interested in more discussions like this? Go to the Transplants Support Group.

Mentor
Rosemary, Volunteer Mentor | @rosemarya | May 23 7:23am
In reply to @johnnoregon "My liver transplant was done at Oregon Health and Science University in Portland in Sep 2021...." + (show)
@johnnoregon

My liver transplant was done at Oregon Health and Science University in Portland in Sep 2021. I'm doing quite well post-transplant. I'm moving from here in Oregon to probably Prescott AZ later this year or early next year. My son in Cave Creek (horse vet) is getting married to another vet and they asked for help with daycare for the immediate family they want to start. Having no grandchilden, of course we're going to be near since they asked.
I'm assuming I can transfer my liver care to Mayo?

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Good morning.
My transplant was at Mayo Rochester. I live in central Kentucky, and connect with m y transplant dept via the patient portal throughtout the year. My husband and I return to Minnesota annually for my check-up. My local PCP monitor my health and is willing to work with my transplant team. My routine labs are performed locally and results are faxed to Mayo. My immunosuppressant medications are monitored and prescribed by my transplant team.

Here is the link that Cheryl mentioned in a previous comment.
- Switching Transplant centers for post transplant care
https://connect.mayoclinic.org/discussion/switching-transplant-centers/

REPLY
1 reply
John | @johnnoregon | May 23 12:45pm
In reply to @gingerw "@johnnoregon My husband had his kidney transplant October 2016 at Scripps Green Institute near San Diego..." + (show)
@gingerw

@johnnoregon My husband had his kidney transplant October 2016 at Scripps Green Institute near San Diego [CA]. When he relocated here to Oregon May 2020, his annual review was moved to Legacy Good Samaritan in Portland. It was a simple authorization for release of records, after confirming they would be willing to take over his case. We are forever grateful for his donor, the care he received while working with Scripps. The first year he did actually return to San Diego area for his annual appointment, but then transferred things up here. The 6 hour trip to Portland is much easier than the 18 hour drive to San Diego! Of course, you could use that annual review to re-connect with friends you are leaving behind in Oregon, if you'd like.
Ginger

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My neighbor had a kidney transplant at Legacy last year. She's doing very well. I've heard goodness about them for a while. I live near Bend. I like visiting Portland, and have a ton of Alaska Air miles to get back when I need to visit OHSU again. I didn't mention it but I have two grown nephews that live between Portland and Astoria that I'll visit, as well.
John

REPLY
John | @johnnoregon | May 23 12:51pm
In reply to @rosemarya "Good morning. My transplant was at Mayo Rochester. I live in central Kentucky, and connect with..." + (show)
@rosemarya

Good morning.
My transplant was at Mayo Rochester. I live in central Kentucky, and connect with m y transplant dept via the patient portal throughtout the year. My husband and I return to Minnesota annually for my check-up. My local PCP monitor my health and is willing to work with my transplant team. My routine labs are performed locally and results are faxed to Mayo. My immunosuppressant medications are monitored and prescribed by my transplant team.

Here is the link that Cheryl mentioned in a previous comment.
- Switching Transplant centers for post transplant care
https://connect.mayoclinic.org/discussion/switching-transplant-centers/

Jump to this post

Rosemary, I've not seen my hepatologist at OHSU in person since I was released in 2021. It's all been via video con on My Chart. I'm doing good enough that they don't require me in Portland at all, and I live about 2.5 hours away. You all have made me feel a lot more comfortable with making this move. Looks like this will be a non-issue for me.
John

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