Sudden enlarged lymph nodes

Posted by kellim @kellim, Jul 15, 2023

I have CLL and have been just watching for about 6 months and all of a sudden in the last week or so all of my lymph nodes in my neck and behind my ears are enlarged and hard should I be worried ? Causes?

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@kellim

My husband and my tribe of girls have been extremely supportive. Yes it has been really up and down. Then on top of all this I need back surgery so I’ve started the ball rolling on disability. That I think is the hardest part, working so hard to get my nursing degrees and having to see it end.

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We never know what direction our lives will take us, do we? I hope that you’ll be able to still use your nursing degree in some capacity. If you’re having back issues then wrangling patients in beds won’t be an option but having that degree is certainly not wasted. There are other applications for nursing that working with patients in a hospital setting.

It’s wonderful you have a great support group. Our friends and family can really bolster us up and help to keep us motivated. Count me in as one of your tribe…🙂 If there’s anything I can help you with, will you let me know?

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@loribmt

We never know what direction our lives will take us, do we? I hope that you’ll be able to still use your nursing degree in some capacity. If you’re having back issues then wrangling patients in beds won’t be an option but having that degree is certainly not wasted. There are other applications for nursing that working with patients in a hospital setting.

It’s wonderful you have a great support group. Our friends and family can really bolster us up and help to keep us motivated. Count me in as one of your tribe…🙂 If there’s anything I can help you with, will you let me know?

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Yes, thank you so much!

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Yes get you Haemotology consultant to get a Pet scan.

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Possibly hodkimsons lymphoma or non Hodkimsoms Lymphoma

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@pierreowen41

Possibly hodkimsons lymphoma or non Hodkimsoms Lymphoma

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Hello @pierreowen41. Welcome to Connect. Do you have experience with a blood cancer?

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@loribmt

Hello @pierreowen41. Welcome to Connect. Do you have experience with a blood cancer?

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Sorry lost all my comments so here we go again:
After 6 weeks of hospitalisation & tests and biopsy’s, I was on 1sr June diagnosed with Non Hodkinsons Lymphoma. Aggressive, stage 3 large tumours - 18 in all.
Now I have just started my 4th cycle of 6 three weekly chemotherapy. Very positive so far.
Pet scans used and after the 6 th cycle ends another Petscan to see if there are any active tumours left, if so they will use Radiotherapy to zap them.
Hope this helps.
Peter

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@pierreowen41

Sorry lost all my comments so here we go again:
After 6 weeks of hospitalisation & tests and biopsy’s, I was on 1sr June diagnosed with Non Hodkinsons Lymphoma. Aggressive, stage 3 large tumours - 18 in all.
Now I have just started my 4th cycle of 6 three weekly chemotherapy. Very positive so far.
Pet scans used and after the 6 th cycle ends another Petscan to see if there are any active tumours left, if so they will use Radiotherapy to zap them.
Hope this helps.
Peter

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This is turning out to be a wild summer for you, isn’t it, after your diagnosis of non Hodgkin’s lymphoma! It’s really encouraging that your treatments are working. I know from experience the chemo isn’t fun but it’s a means to get back to normal! So, 3 down, 3 to go! Do you feel pretty wiped out halfway through the cycle before you start the next round?
What were your symptoms that led to your diagnosis?

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@loribmt

This is turning out to be a wild summer for you, isn’t it, after your diagnosis of non Hodgkin’s lymphoma! It’s really encouraging that your treatments are working. I know from experience the chemo isn’t fun but it’s a means to get back to normal! So, 3 down, 3 to go! Do you feel pretty wiped out halfway through the cycle before you start the next round?
What were your symptoms that led to your diagnosis?

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Overall my reaction to the Chemo had been fine. No nausea tablets needed and no real tiredness just a sore throat for the first five weeks and I still have a runny nose.
Symptoms prior to treatments included - fatigue, weight loss, (11%) bloating abdomen, pain in lower abdomen, high calcium levels, mental fogging, lack of steadiness in walking, getting confused.
By the time just before Chemo I could not walk, swallow or talk properly.
Hope this assists.
Peter

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@kellim

Biopsy showed leukemia in my lymph nodes, they all lit up on the pet. They gave me A bunch of iron and now I’m waiting to see my oncologist on the 11th

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Hi @kellim, just checking in to see how you are doing. How did the appointment go yesterday? Did you discuss a treatment plan?

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