Research: Effects of Hypertonic Saline on Bronchiectasis

@paxmundi Can you get the 0.9%? Have you tried 3%? Do you have an NTM? The author mentioned a previous study which found the IS not as effective as HS. Or wasn't effective? Regardless, I would definitely be nebulizing with 3% (and 0.9% if 3% was too harsh), if I could not tolerate 7%. Just the quality-of-life graphs showed positive results for the 0.9%.

Yes, more studies are definitely needed. There was a study on inhaled ascorbic glucoside? Or something like that, very mild compared to vitamin C but don't know if it's milder than saline. I vaguely remember Dr Daly (NJG) mentioning it on one of his Brinsupri videos. Apparently, the participants that had the real stuff (not the control group), knew they had the real stuff as the effects/results were amazing. I sure would like to try that!!

@kathyjjb Yes, thanks. I will get in touch with my doc, although that is proving to be a real challenge. I changed back from kaiser to original medicare at the beginning of the year. (Long story, plan was cancelled). Went to one pulmo close to home and that was no good. Finally got an appt. at Georgetown Hospital Bronchiectasis Clinic on April 30. I liked the doctor very much. She went over all my scans with me and explained that I have “traction bronchiectasis” due to scarring of the lungs from something else. She did blood testing to explore possibility of autoimmune disease and said she wanted to confer with some of her colleagues who were expert in fibrous lung issues & she would call me the following week. I heard nothing, so after two weeks, I called her assistant who was out of town (doc had told me if I need anything, to call the assistant), so I emailed the doc. After a week she answered saying she would call me the following day, but I didn’t hear anything. I plan to call her assistant on Monday. I don’t know if my expectations are too high and they are just very busy, but it doesn’t seem like they are very organized. At Kaiser emails were always answered within 2-3 days. Doc were available for calls if you needed them. Sorry for all the grousing. Since the beginning of the year I have been trying to find new docs for everything, get appts., and deal with a new portal for each one—madness! It’s scary not to have my pulmonary services in place.

And I do have MAC. Finally going to see a specialist, Dr. Zha, tomorrow!

@blm1007blm1007 It can be exhausting. I have reduced my boiling days to every 5 days. I only boil the aeroclipse tops and put the cups and mouth pieces in my BOLOLO. That has really helped. I now use the aerobika after nebulizing like a flutter valve. My goal is to order more of the aeroclipse and boil just 1/week. I'm also considering getting up earlier:).

@bernadene24 I think you were wise to leave Kaiser. They are not specialists and after several decades with them I was happy to leave when I had the chance to do so without medical underwriting. I am now finally going to see a specialist at UCSF tomorrow, and slowly organizing my care team. I wish you all the best and pray you can find a specialist in BE and NTM close to your area.

@paxmundi Looked up Dr Zha-she sounds amazing for B/NTM!

@kathyjjb I know. I can’t wait to meet her and to finally be in expert hands!