Severe spinal stenosis

Posted by katie215 @katie215, Aug 15, 2020

Age 71yo old gal here. L5S1 autofusion, Grace II spondylolisthesis. Severe spinal stenosis complicated by significant impingement L5 nerves, both foramen caused by loss of foramenal height. Extensive spurring. Surgery ruled out due to possible need to refracture autofusion.

Ergo, surviving with opioid "cocktail", gabapentin, +++twisting, burning, stabbing pain, both calves and thighs, 24/7.

Very cooperative helping husband but wearing thin on perseverance here. Cannot imagine another 10+ years of this with a brain that's operating at warp speed.

Perhaps there is someone somewhere sharing these same issues looking at same future.

Interested in more discussions like this? Go to the Spine Health Support Group.

Profile picture for willow5 @willow5

plan F is the best and is no longer available. plan G is available, same as F, just a 250 deductible, once that's paid i never pay a thing but my premium i have united health care AARP along with traditional medicare . Couldn't be happier.

Jump to this post

I agree we have part G on our original Medicare plan. I am really very happy with that also.

REPLY
Profile picture for gotoandrea @gotoandrea

Severe spinal stenosis in elderly. Tried hydrocodone, spinal injection and not interested in surgery. Currentky taking a blood thinner for atrial fibrillation. What gives you relief?

Jump to this post

I have severe spinal stenosis, too. Keeping up with the exercises provided by my physical therapist, daily, and walking in a warming pool at the park district 3 times per week has very much benefitted me. The less you want to move, the more you should move. Water therapy is amazing.

REPLY
Profile picture for gotoandrea @gotoandrea

Severe spinal stenosis in elderly. Tried hydrocodone, spinal injection and not interested in surgery. Currentky taking a blood thinner for atrial fibrillation. What gives you relief?

Jump to this post

Physicians who contract with Medicare to treat beneficiaries trade off higher pay for numerous patients to treat. Just like HMO’s did in their early years. The documentation issue for all healthcare is simple. The provider of care is required to adequately document supporting evidence that they provided the service. And all services provided by physicians and non-physician providers have supporting guidelines as to what is required of the service and supporting documentation. As an RN in my working years I performed Medicare compliance audits of physicians and hospital records.

REPLY
Profile picture for mick472 @mick472

I was just diagnosed a couple months ago with lumbar spinal stenosis. I have good days and uncomfortable days. I am not in severe pain, but very limited on what I can do so I don't aggravate it. But, I am having a terrible time upon wake up for some reason. I have to hold on to doors, wall whatever, as I can hardly walk. It eventually subsides as I take a anti-inflammatory and hang on in a hot shower for about 20 minutes. Does anyone have this problem or better yet a routine at night to help prevent this in the AM?

Jump to this post

I also have spinal stenosis along with collapsed discs.
My morning wake up is just like yours.
Does get bearable after an hour or so.
I am having an MRI because I am now
experiencing a lot of numbness in both legs.
Will be seeing my pain specialist after MRI.
Hoping epidurals help.
I take gabapentin and Tylenol.
I am allergic to anti inflammatory meds.

REPLY
Profile picture for galesr @galesr

I had that a few years ago. I had the surgery and was awesome after. If it gets real bad I would highly recommend it.
Sue

Jump to this post

can you expand a little on your surgery?
I had surgery in 1994 that did not go well.
Sounds like you are much better. Awesome.
I am 82 so don't know if they would consider.

REPLY
Profile picture for Jennifer, Volunteer Mentor @jenniferhunter

@devaallen I just wanted to welcome you to Connect. Congratulations on your marriage.

Jump to this post

Thank you. 🙏🏽

REPLY
Profile picture for heyjoe415 @heyjoe415

Sorry about the name mixup Willow.

I’m 70 with a disaster area in my lumbar spine. I don’t have sciatica now, but my walking is affected. Back is very stiff after getting up.

I spin 5 times a week. Guessing I’d need S1 L5 and L4 fused. I hope I can resume that if I have fusion.

I recently tried orthotics from goodfeet.com - my gait is straight and walking is easy. Just turned 70.

Suggestions? Will fusion still allow me to spin?

Thanks Willow and all!

Joe

Jump to this post

Hi Joe,
Even though my surgery is delayed, I did ask the doc, after the surgery can i bike, will I have any limitations, and he said no limitations. L5-S1, and possibly fuse I think it was 3/4.

Awesome you can walk! I have pain after 1/2 mile walking. I just turned 72. Since my surgery got put off by six months, I’m going to check out some other options, acupuncture, mind/body type stuff, meditation for pain control. It won’t fix anything for sure, but to learn to handle the pain maybe i can put off the surgery longer - maybe. So confusing!! Oh, if the pain is low back, medicare does pay for acupuncture.

Best of luck. This forum is so helpful and I love that mostly no one plays doctor.

REPLY
Profile picture for mick472 @mick472

I was just diagnosed a couple months ago with lumbar spinal stenosis. I have good days and uncomfortable days. I am not in severe pain, but very limited on what I can do so I don't aggravate it. But, I am having a terrible time upon wake up for some reason. I have to hold on to doors, wall whatever, as I can hardly walk. It eventually subsides as I take a anti-inflammatory and hang on in a hot shower for about 20 minutes. Does anyone have this problem or better yet a routine at night to help prevent this in the AM?

Jump to this post

Sometimes (not often enough) I do knees to chest and childs pose before I get out of bed. Not sure why it’s so hard to do the things that help me through the day.

REPLY
Profile picture for mick472 @mick472

I was just diagnosed a couple months ago with lumbar spinal stenosis. I have good days and uncomfortable days. I am not in severe pain, but very limited on what I can do so I don't aggravate it. But, I am having a terrible time upon wake up for some reason. I have to hold on to doors, wall whatever, as I can hardly walk. It eventually subsides as I take a anti-inflammatory and hang on in a hot shower for about 20 minutes. Does anyone have this problem or better yet a routine at night to help prevent this in the AM?

Jump to this post

I have mild stenosis and some scoliosis and let’s not forget arthritis. The morning wake up is painful. I try slow trunk twists and stretching before leaving the bed.
Then, see if I can actually walk. The pain and numbing pain can take its time subsiding enough to get to bathroom.
I don’t take drugs for it on a regular basis. I do have a low dose pain pill that I may take 1-2 times a month. The pain doesn’t go away and can increase during the day or not. I try to stay mentally engaged and live my best life in the moment. It sucks but I don’t like the alternative of being chronically depressed.

REPLY
Profile picture for mick472 @mick472

I was just diagnosed a couple months ago with lumbar spinal stenosis. I have good days and uncomfortable days. I am not in severe pain, but very limited on what I can do so I don't aggravate it. But, I am having a terrible time upon wake up for some reason. I have to hold on to doors, wall whatever, as I can hardly walk. It eventually subsides as I take a anti-inflammatory and hang on in a hot shower for about 20 minutes. Does anyone have this problem or better yet a routine at night to help prevent this in the AM?

Jump to this post

@cdbm spinal stenosis doesn’t get any better only worse over time. And you have the accompanying stuff too. Not too many surefire treatments but I just found this one you might want to look at with a 60 day money back guarantee and FDA approved. I have SS but not that bad yet. Yes my back is stiff in the morning but that’s par for the illness.
I opted to purchase the device after reading reviews and I will add my 2 cents about the product one I use it.

REPLY
Please sign in or register to post a reply.