Squamous cell carcinoma (SSC) with perineural invasion (PNI)

Posted by pamwill1960 @pamwill1960, Apr 11, 2024

Hi,my name is Pam and I am 63 retired from Massachusetts. I was diagnosed with SSC with PNI of the right nostril after being originally diagnosed by dermatologist with Impotego and multiple wasted weeks of antibiotics that did nothing. On 1/25 my Primary told me to get a biopsy by Dermatologist, which I did and had result of SSC by 1/29. She recommended Mohs surgeon in her office which I agreed to and had Surgery on 2/7. After the first cut he came back and said "this can kill you". I was a nervous wreck from there on!! He told me I would need to be referred to Oncologist afterward and where would I like to go, Boston MA or Worcester MA. After 4 passes he recieved clear margins, but he was no where to be found. The surgical assistant wrapped my nose without any attempt at reconstruction. I was left with huge hole in and under lower nostril. On 2/15 I had appointment with Oncologist at MEE and was given options of 30 radiation treatments or CT scans every 3 months. I had read so much bad about radiation that I chose the easy way. I started procrastinating very soon and called Oncoligist for consultation with Radiologist. The appointment with the Radiologist was where I learned that I was Stage 3c because of the PNI and my light skin,hair and eyes. He did tell me that after Radiation it will be near impossible for good results for reconstruction because the facial skin becomes thin.

I have consult with Plastic Surgeon tomorrow to see what can be done to enlarge the nostril that is about half of its original size. I need to get this completed so I can get the radiation done, I want to live!!!

Interested in more discussions like this? Go to the Melanoma & Skin Cancer Support Group.

Hi Pam,
This is the first time I’ve found actual humans who are dealing with the same issues that I have been dealing with for the past three years. I had a suspicious spot on my cheek that was biopsied (scrape) in 2020 and found to be an irritated Nevus (benign). Less than three years later, I started getting the electric shock pains in my cheek and eye area. I had an MRI and was sent to a neurologist. Who suggested I urgently see a dermatologist. It took six months to get to surgery. At that point, my cancer was a late stage basosquamous cell carcinoma with PNI. Unfortunately, they were unable to get clear margins. The primary spread was to my infraorbital nerve in addition to other smaller nerves. I’ve had radical resection with neck flap, then eye surgery to correct the ectropian caused by the original surgery. I also underwent daily radiation for seven weeks. While my cancer is stable, I now have complete facial paralysis on my right side and I’m unable to close my right eye completely. How are you doing?

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