← Return to Squamous cell carcinoma (SSC) with perineural invasion (PNI)

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@louisejewell hi I’m new here, I can’t find your story

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@dreamer3 Wish I could tell you where to find it but to say it quick: I started 2 yrs ago w/squamous cell invasion into my lymph node in neck...after lots of MOHS over the years. I did radiation 2x, on my forehead and by my ear where I had large growth removed surgically. I then started w/Libtayo every 3 weeks, PET scans and Signatera ctDNA monitoring as I went on.
I had no ill effects from Libtayo and my scc breakouts stopped. However, 2 nodes in my neck were treated by ablation successfully last year. Recently my signatera numbers went from 1.74 to 30! and PET lit up in my chest where there are nodes. My Mayo oncologists suggested more serious immunotherapy but I continued with Libtayo and just had my numbers go back down to 1.17 followed up by a PET with nothing lit up! I'm so excited even though I know it may not be long term, I'm enjoying it for the moment. We have a new plan of Libtayo double dosage but every 6 weeks saving me 4 hrs. travel and freeing my med schedule. If you have any other questions, I'd be happy to share.