Sputum culture and MIC Panel showing different results

Posted by Jen_b @jenblalock, Apr 16 8:06am

Hi all. I haven't been on here for a couple of years. My MAC cleared up and I've been off meds since 2017. My latest sputum culture showed it is back and I am on the Big 3 only 3 x a week this time which is so much less than what I went through last time. My question is this: Has anyone had a culture sent to the lab for susceptibility and had it come back showing another strain of NTM? After having my cultures come back positive for Avium Intracellulare, my first susceptibility (or MIC panel) results came back with "Test not performed. We are unable to isolate the Mycobacterium avium complex due to overgrowth of the Mycobacterium chelonae-abscessus group." This result was from Quest laboratories and my ID doctor is also sending it off to NJH for further analysis. Mainly, I just want to know if anyone else has gotten this sort of result from their susceptibility report after having a different bacteria reported from the sputum culture. Thanks for your time.

@merpreb

I wish that I did. You've probably tried everything that I've put on Connect. But! Have you tried any of the vest systems?
https://www.hillrom.com/en/products/the-vest-system-105/

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Not happening! Even the pulmonologist agrees that my arthritis makes it unwise. – Even the vibration from TENS unit sends my muscles into spasm.

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@sueinmn

Not happening! Even the pulmonologist agrees that my arthritis makes it unwise. – Even the vibration from TENS unit sends my muscles into spasm.

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Oh, no! That's too bad. If I read of something other than a vibrating jacket I'll let you know, of course!

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@pop55

Yes, I had something similar. I had 4 different sputum cultures report abscessus and when my dr asked the lab do susceptibility testing to see if it had the erm gene they realized I didn't have abscessus but that it was Mycobacterium avian complex instead. A few months later I went to NJ and the sputum cultures have all showed Mycobacterium Intracellular. Its really important to use a good lab.

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Which lab in NC did you use before going back to NJH?

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@pop55

Yes, I had something similar. I had 4 different sputum cultures report abscessus and when my dr asked the lab do susceptibility testing to see if it had the erm gene they realized I didn't have abscessus but that it was Mycobacterium avian complex instead. A few months later I went to NJ and the sputum cultures have all showed Mycobacterium Intracellular. Its really important to use a good lab.

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Because you see Daniels, was it UNC lab or Rex or?.

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@woot

Because you see Daniels, was it UNC lab or Rex or?.

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Rex not UNC.

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