Sputum culture and MIC Panel showing different results

Posted by Jen_b @jenblalock, Apr 16 8:06am

Hi all. I haven't been on here for a couple of years. My MAC cleared up and I've been off meds since 2017. My latest sputum culture showed it is back and I am on the Big 3 only 3 x a week this time which is so much less than what I went through last time. My question is this: Has anyone had a culture sent to the lab for susceptibility and had it come back showing another strain of NTM? After having my cultures come back positive for Avium Intracellulare, my first susceptibility (or MIC panel) results came back with "Test not performed. We are unable to isolate the Mycobacterium avium complex due to overgrowth of the Mycobacterium chelonae-abscessus group." This result was from Quest laboratories and my ID doctor is also sending it off to NJH for further analysis. Mainly, I just want to know if anyone else has gotten this sort of result from their susceptibility report after having a different bacteria reported from the sputum culture. Thanks for your time.

@gej53

I am no longer receiving my emails from this forum. I have checked the site and my email is correct, it shows I am following, I have checked my spam but can find nothing. Any suggestions from anyone. I was able to get to this area in order to ask this question. Any suggestions? Help!

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Hi @gej53 @heathert @jenblalock @fdixon63,
Mayo Clinic Connect got a major overhaul and upgrade at the beginning of April.

The groups you follow remain unchanged. However, how you receive notifications has changed. Members in general were finding the number of emails overwhelming. Everyone gets a daily digest summarizing the activity in the groups you follow. And you can see all activity in your groups on the homepage https://connect.mayoclinic.org/ and notifications on the website.

I think you'll find this blog post helpful.
– How to customize your notifications and settings https://connect.mayoclinic.org/blog/about-connect/newsfeed-post/how-to-customize-your-notifications-and-settings/

You can still return to getting an email for every new post in the groups you wish to follow closely.

If you wish to continue to receive an email for every new post:
1. Go to the group, i.e., MAC & Bronchiectasis https://connect.mayoclinic.org/group/mac-bronchiectasis/
2. Click the ellipsis symbol (⋯) to see Actions for this Group.
3. Select "Get emails for all new posts in the group."

Follow this blog to see news about the new and improved site and tips on how to get the most out of it:
About Connect: Who, What & Why https://connect.mayoclinic.org/blog/about-connect/

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@gej53

I am no longer receiving my emails from this forum. I have checked the site and my email is correct, it shows I am following, I have checked my spam but can find nothing. Any suggestions from anyone. I was able to get to this area in order to ask this question. Any suggestions? Help!

Jump to this post

@gej53 After they updated the site we don't automatically get emails from individuals everyday like we use to. You probably can go in and set it back to get emails. But now I just open up the Mayo Clinic Connect general email and then look at entire list of posts and click on the most recent posts to read without getting them all in my mailbox. Nan

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@colleenyoung

Hi @gej53 @heathert @jenblalock @fdixon63,
Mayo Clinic Connect got a major overhaul and upgrade at the beginning of April.

The groups you follow remain unchanged. However, how you receive notifications has changed. Members in general were finding the number of emails overwhelming. Everyone gets a daily digest summarizing the activity in the groups you follow. And you can see all activity in your groups on the homepage https://connect.mayoclinic.org/ and notifications on the website.

I think you'll find this blog post helpful.
– How to customize your notifications and settings https://connect.mayoclinic.org/blog/about-connect/newsfeed-post/how-to-customize-your-notifications-and-settings/

You can still return to getting an email for every new post in the groups you wish to follow closely.

If you wish to continue to receive an email for every new post:
1. Go to the group, i.e., MAC & Bronchiectasis https://connect.mayoclinic.org/group/mac-bronchiectasis/
2. Click the ellipsis symbol (⋯) to see Actions for this Group.
3. Select "Get emails for all new posts in the group."

Follow this blog to see news about the new and improved site and tips on how to get the most out of it:
About Connect: Who, What & Why https://connect.mayoclinic.org/blog/about-connect/

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Oh my gosh, thank you so much for this information. I have learned so much on this site and from the emails. I just followed your directions. Hopefully I will begin receiving the emails again. Really appreciate this.

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@nannette

@gej53 After they updated the site we don't automatically get emails from individuals everyday like we use to. You probably can go in and set it back to get emails. But now I just open up the Mayo Clinic Connect general email and then look at entire list of posts and click on the most recent posts to read without getting them all in my mailbox. Nan

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Thank you. I did not know they had updated the site and was wondering if I had hit something or it was my computer. Am about a B- when it comes to "computering". At least I now know and also can get to the information again. I usually pass the time nebulizing with my vest by catching up on the new emails. Thank you so much again.

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@heathert

Hi Jen I know that Kathryn, who started this group, had a few different types when her MAC returned, it does happen, she was frequenting hospital where her husband was and probably got some from there as the type of bugs she had frequented hospitals. My MAI also has returned, the big 3 hasn't worked so will be going on something different soon. Take care Heather

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Thank you, Heather. I'm sorry to hear your Mai had also returned. Keep in touch.

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@jenblalock

Thank you, Heather. I'm sorry to hear your Mai had also returned. Keep in touch.

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@jenblalock Thanks, sad to hear yours is also back. Definitly keep in touch, we are in this together. Take care Heather

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@sueinmn

Yes, our labs all in MN all use NJH for susceptibility testing because of previous issues with crazy results.
At various times, my cultures grew at least 5 different strains of NTM, but all showed susceptibility to at least one of the big-3. I stopped medications 16 months ago due to intolerance of side effects, even though my cultures were still positive for 2 strains. Now I rely on 7% saline nebs and clearance measures to keep the infections at bay – so far so good.
Sue

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Hi Sue! When will you go back for another sputem test? It will be good to know if the saline is doing it's job.

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@nannette

@gej53 After they updated the site we don't automatically get emails from individuals everyday like we use to. You probably can go in and set it back to get emails. But now I just open up the Mayo Clinic Connect general email and then look at entire list of posts and click on the most recent posts to read without getting them all in my mailbox. Nan

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Hi Nan!!

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@windwalker

Hi Sue! When will you go back for another sputem test? It will be good to know if the saline is doing it's job.

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not until December according to my care plan, however my mucus is increasing as is SOB, so maybe sooner.
Sue

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@sueinmn

not until December according to my care plan, however my mucus is increasing as is SOB, so maybe sooner.
Sue

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@sueinmn– What do you do to control your SOB?

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@merpreb

@sueinmn– What do you do to control your SOB?

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Rescue inhaler, deep breathing, airway clearance with Aerobika vibrator, and getting up and moving slowly. If all else fails, I neb levalbuterol, but it makes my tremors go wild. Do you have any other tactics for me to try?
Sue

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@sueinmn

Rescue inhaler, deep breathing, airway clearance with Aerobika vibrator, and getting up and moving slowly. If all else fails, I neb levalbuterol, but it makes my tremors go wild. Do you have any other tactics for me to try?
Sue

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I wish that I did. You've probably tried everything that I've put on Connect. But! Have you tried any of the vest systems?
https://www.hillrom.com/en/products/the-vest-system-105/

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