Sores on tongue, sides of mouth.

Hi @suecutuli. Dont know your posts but this caught my eye about mouth sores and your using strawberry toothpaste. Just suggestion my histamine related mouth issues drastically helped with eliminating strawberries of any kind🙃 Maybe this could be helpful and wish you quickest healing🌈

I'm sorry that you are experiencing that pain. It sounds like oral lichen planus which can have ulcers and white lacy patches. Because it's so rare, I had to go to a university dental clinic where the oral surgeon diagnosed it.

Hi I had a sinus infection for months, sores in my mouth like you. My Ear, nose & throat doctor ordered me an CT Scan, nose area. The outcome, I have an abscess on my gum, upper tooth. Long story short, I need to a retreatment on one of my root canals.

So maybe you have an abscess on one of your tooths?

Wishing you the best. Mouth sores are awful.

Yes . I was diagnosed with this on Tuesday.

@artemis1886 i think that’s very bold to say. I have tested positive with an Ana test-speckled-have tongue ulcers, but everything else has been negative. I’ve been to Mayo and Cleveland Clinic and had every test done under the sun. It even says in my reports and blood work panels if huh have dense fine speckled pattern it is seen in normal individuals and is most often not related to lupus or RA. I know these things can happen down the road but be careful with what you say to individuals. I’ve been told my ulcers are from acid reflux-but still have a lot of issues going on. It can also happen in menopause-which is what I’m going through.

@melindanorman I have stomach ulcers and nodules for over-0 years. My blood work test positive for the Epstein Barr virus which is also the herpes virus and mono. Sojourns cause sores in your mouth. I tested negative but the othomolgist (eye doctor) tested my eyes I tested positive then a month later tested positive for Sojourns. A neurologist in Boston caught the Sojourns and told me to be tested by an eye doctor. It has taken over 30 years to me feeling miserable to test positive for lupus, sojourns, Hashimotos and connective tissue disease first the neurologist discovered I had neuropathy severe axonal sensorimotor peripheral poly neuropathy, then diagnosed with cardiac autonomic neuropathy
( blood pressure uncontrolled either high or low along with bradycardia/tachycardia) so he ran two small fiber neuropathy the second one worse. I was loosing bladder control They knew the neuropathy was autoimmune because my Ana and other inflammatory markers were elevated. I tested positive at age 62 but my symptoms started way before then. My face had the butterfly rash negative but had the symptom, I have a tumor several cyst on thyroid for years now positive for Hashimotos the kicker I tested positive for all four yet my speckled and was in 2009. It took that long to get a positive autoimmune disorder but my Ana has been elevated since 2002. It’s very frustrating. Then since I have the sensorimotor neuropathy I was diagnosed with CIDP. It has been a long frustrating road and it’s not the same for everyone. This month I learned from a neurosurgeon my lupus and sojourns related to the Mrs bacterial spinal meningitis. Everyone in my mom’s family has RA including juvenile RA. Lupus made no sense now I find out it was the staph portion of the bacterial spinal meningitis that gave me lupus and sojourns. It just took forever to test positive my son had me taking pictures of the butterfly rash showing it to the rheumatologist that has seen me since 2010. Here’s some labs I had done by the research neurologist.

The sores I have look like popped blisters, appearing like I’ve seen on my heel after my shoes have rubbed a spot raw. The pain is horrid. The first one is dime sized, the second akin to the size of a pencil erasure. It has a pea sized painful to the touch lump next to it. I was taken off of a 25 mcg patch (every 72 hours) and put on Suboxone. It is a film that is dissolved under the tongue. My tongue would get a “knot” on it. One little white nodule here or there that would go away every couple of weeks to the blister like sores I have now. Not sure if it’s related to the change in this medication, but it’s the only change I’ve had. I also have Sarcoidosis of the Lungs and Skin. It’s in check though. I take a Methotrexate injection once a week. I went to my PCP. Sent me home with Nystatin for Thrush. This is not Thrush. I have T2 Diabetes as well, not Thrush. Not sure who to hit up next. Which type of Doc comes next? Any suggestions? Thanks!!!

@crippledoll Hey There. I am so sorry you are battling this.

Personally, I would see a Dermatologist first and let them do a culture of the blisters in your
mouth. I would ask my Primary Doctor to run a full liver panel on me. If no answers, I
would then see an Endocrinologist for a full thyoid panel and auto immune panel (A Rheumatologist can run a full panel as well, but, it's hard to get into see a Rheumaologist now.) If no answers, then I would see an Infectious Disease doctor.

I know. It's a lot. Sometimes it takes different doctors checking you to get a correct
Diagnosis. Praying for you. Blessings....

@crippledoll: L-Lysine 1000mg is an amino acid that patients with mouth sores have taken to eliminate their mouth sores resulting from Chemo treatment (many brands available; I bought mine at Walmart @ Spring Valley brand). If I were you I would buy a bottle of these pills and Check with your dr regarding specific dosage.
Another thing raised my concern is that you are receiving Methotrexate injections - Methotrexate is a VERY strong drug and has caused many severe side effects - please include this concern when you have discussion with your dr.
In the meantime I am sure you are trying to consume bland, soft foods supplemented with protein smoothies to keep your nutrition at an optimized level. I care about your condition and hope that I have helped you get relief! Best…

Maybe you’re better, this post is old. I hope the figured it out. My ANA and titer and pattern is just like yours. I also get all the tongue and mouth sores. I do get herpes that do that often in my mouth. Yiu can get a blood test to rule it out.
Every time I go to the dentist it can set it off, stress and so many other issues. I’m extremely sensitive to spices and salt and salty foods. I’ve gone the entire gambit after the positive ANA but my numbers have been this way since 2017.

My results border Sjogrens and mixed connective tissue disease but the numbers are not elevated a lot and I’ve not committed to a lip biopsy. When it comes it’s extremely painful and like you toothpaste can be terrible. I use Tom’s of Maine.
I have severe dry eyes and mouth too. It’s so bad it’s decaying my teeth.
Right now I have no sores but severe burning inside my mouth and my tongue. It’s all so strange but it’s so painful. I have other health issues but wish this had a diagnosis. Hope since you posted you have figured it out. I myself think it’s auto immune but that’s a needle in a haystack. Best of luck.