So confused - fibromyalgia and bones aching severely

Posted by ellyons87 @ellyons87, Oct 28, 2012

Well I just had a very long post typed out, and I was almost done and my phone shut off. So I’m going to make this short. Does anyone with Fibromyalgia feel like their bones are aching severely? Do you ever feel “normal”? I was diagnosed 4 months ago. I haven’t felt one day of full relief for over 8 months now. I just want to know if this is typical. Chronic daily headaches and facial pain, sometimes feels like my head is bruised even though it isn’t. Heart palpitations. Breathing issues. Swollen lymph nodes. All over severe body pain daily, worst in shoulder, neck and collarbone region. I often feel like I’m being strangled. I feel like I’m dying daily. Depersonalization/derealization. Want to crawl out of my skin. Can’t relax. Muscle spasms. Extreme eye floater. Ringing in ears. I’m never comfortable. Tmj. Diarrhea or constipation. cramps that feel like menstrual cramps. I currently feel like someone jabbed a giant dagger where my neck and shoulder meet. I just want to know if anyone else is experiencing these things daily? I am becoming skeptical that it’s just Fibromyalgia. I just want to put my mind to rest.

Interested in more discussions like this? Go to the Chronic Pain Support Group.


I recently came across this helpful comment from @elmay who's dealt with fibromyalgia for a very long time and offers encouraging words about finding help through cognitive behavioral therapy (CBT) –
Her full discussion on CBT for chronic pain is here:

Cognitive Behavioral Therapy for Chronic Pain –
I'm wondering, @kireraw, @raepent1, @daliea – have you considered CBT as a complimentary strategy for living with fibro or other chronic conditions?

Jump to this post

Hello! Sorry for long delays – I did watch the YouTube video! Thank you so much for sharing!!! As I watched, I did love the breakdown of things in the “All Systems-Go” realm!!! i could have misunderstood it & planned to watch a few more times to make sure I’m getting it all – but I do believe I’m pursuing exactly that approach already –
I have the typical team of specialists – Rheum, Neuro, Derm, PCP, Psychologist, Medication Mgmt, Therapist, Chiropractor, meditation/Tapping/Affirmations/Journaling as well as attempting to find a creative outlet (or any creative juice at all to flow 😉 hahaha) –
Would you agree that I am trying to come at this from all angles to ensure well-rounded approach? I’m also trying to soak up any literature/movies/blogs/YouTube channels, etc. That may have any info at all useful! I did watch the documentary – Sensitive: The Untold Story and that definitely hit close to home – before/during/after diagnosis I’ve rec’vd – so it’s nothing *new* per se, but puts it into words to be able to share with others a new aspect of how I experience the world without going deep into the depressive context.

Thank you so much for checking in – and don’t be strangers!!! I just sometimes fall off the face of the earth for a spell 🤗

Please sign in or register to post a reply.