So close to the line.

Posted by martinkennot @martinkennot, Aug 29 5:54am

I presented to emergency with an anuerysm of 6.5cm. They told me on the spot that I would need surgery and I thought they meant in the future, sometime. What they really meant was, as soon as the surgeon gets here (it was after 1am, the surgeon came in at 8am after stopping by and cancelling a quintuple bypass so that I could be treated).
They didn't explain about sizes, or test periods, or cycles or anything. There was so much, so fast. I didn't really know what was happening!
I have no history of anything in my family. I dont smoke, drink rarely and then not much, tested regularly for the wide gamut of blood tests (FBC, LFT, iron, cholesterol, sugars/diabetes, etc). Every result in normal range. I do not have diabetes, high cholesterol, and every organ functioning as expected, blood pressure regularly tested in normal range. EVERYTHING checked out.
Then one night, stabbing pain of FIRE in my chest.
OHS - aneurysm excision, aortic valve replacement, aortic arch replacement, aortic root repair and graft. A remaining descending aortic dissection all the way down. And heart failure.
My point here is that everything regularly checked out and no genetic or personal history of anything.
Now I have a cardiologist, vascular surgeon, cardiac surgeon, nurse practitioner.
If they say do it, I do it. I have been so close to the non-aliveness and I don't want to go there again.
I saw the line and I would prefer to remain on this side of it.
I am 58 and I still have the other half of my life to live.

Interested in more discussions like this? Go to the Aortic Aneurysms Support Group.

@martinkennot

At the risk of scaring any readers, not really.
Mine started like a chest tightness. I walked into the room and sat on the bed. I started hyperventilating like I had some indigestion. Short, shallow breaths. I had a pain in my chest like a fire - like a red-hot sword had been stuck in my heart. It burned, how it burned. And it was a strange pain and I knew it wasn't like anything I have ever had. Not like a broken bone, or a torn muscle, or like a cramp or a cut. This was fire.
I sat on the bed and said "I think I am having a heart attack." Wow, what an understatement.
So I was in ICU for five days, two of which I was in a coma.
I also had a tamponade, and they had to take me back to theatre and remove the clotting around my heart. My BP was 50. So open again, undo the sternum wire, and then clean it again and wire it all back up. Add 2 more hours onto the surgery. I think 10 in total.
I spent two weeks in the ward and discharged.
That was 11 months ago. I think I am doing okay. But things are different. I am different. I can't put my finger on it. But my eyes are open.

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Thank you for sharing this. You live in a different world now. Awful as this was for you, it's helpful that you can describe what happened. I learn more from this group than from anywhere else. Best wishes to you.

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