Small Fiber Neuropathy: What helps?

Thank you John ! I have read you are in protocol 525. I have also read and thought about it .
My concern is that I weigh only 100 lbs and cannot take more than 4-5 pills a day ( heartburn, stomach ache …) . I see the protocol had 12 pills a day.

Do you get side effects from the protocol ?

Do you take all the vitamins every month ? What happens if you stop for a few weeks/ months ?

Thanks !

I personally have not had any side effects from taking the protocol. They do have a "ramp up" version where you gradually increase the dosage of Na-RALA since some folks have digestive problems if they start with the full 1200 mg daily but that's the only issue I've heard others complain about. Also, some people take some adjusting to swallow the organic hemp seed oil. I started out mixing it in a morning smoothie but didn't like it making the smoothie taste bad so have gotten used to just swallowing the 1.5 oz every morning followed by a glass of water. I've been taking it daily since Sept 2016 which was a few years before it became the 525 and was more pills. I have missed a few days over the years but it was when I had a fasting blood lab where I couldn't take supplements before or when I ran out for a day or so before my reorder came. The lapses have not had much of an impact on me because I don't have the pain.

I have been following a clinical trial for a company called WinSanTor which is for WinSanTor’s lead compound, WST-057 a topical containing pirenzepene – https://winsantor.com/pipeline/. Interesting during my research I came across an article that is about one of my conditions I was trying to associate with metabolic syndrome. Much to my surprise I found the following article on their website:

Low-Carb Diets for Peripheral Neuropathy: https://winsantor.com/low-carb-diets-for-peripheral-neuropathy/

We also have a discussion group on Connect for low carb healthy fat (LCHF) - LCHF Living & Intermittent Fasting: https://connect.mayoclinic.org/group/lchf-living-intermittent-fasting/.

Thank you kindly @simina1234 !! I am very interested and will look into it! Glad you are getting relief! 🙂 @notgivingup17 I wish you all the best of luck!!

have PN in my feet. I am not diabetic but believe my problem came from weight loss surgery I had in my 20's. I am 73 now. I did a series of treatments using infrared light, vibration & tens unit with pads on feet & calves. However the key was the diet very low carb & low sugar. I had a definite improvement. I have slipped from the diet and need to go back on it. ( another benefit I lost 50 pounds.The infrared light can be purchased thru Amazon the tens unit I would ask your doctor for a script to get a medical grade one

My experience has been that other symptoms of the type you mentioned came on me along with the small fiber neuropathy.

Welcome @pogo, Thanks for sharing your tips and experience with the diet with low carb and sugar. I've been working on this also along with intermittent fasting to lose more weight. I've also found that it seems to help with my neuropathy. Recently I ran across an article on the topic that you might find interesting.

-- Low-Carb Diets for Peripheral Neuropathy: https://winsantor.com/low-carb-diets-for-peripheral-neuropathy/

Also there is another discussion you might find helpful -- Low-carb healthy fat living. Intermittent fasting. What’s your why?: https://connect.mayoclinic.org/discussion/low-carb-healthy-fat-living-intermittent-fasting-whats-your-why/

Do you have any pain symptoms with your neuropathy or is it just the numbness and tingling?

I have some shooting pain at times in my feet but not real bad. I still work and on my feet a lot as by time I get off ( usually 10 hour day) my feet tingle. I hate gabapentin but it helps.

Just the tingling for me in both feet

This is new info for me. Do you know what type of device is used? Handheld, mat or lamp? Thanks.

Here's a site that lists some of the home devices.

A Guide to Cold Lasers for Home Use - ColdLasers.Org: https://www.coldlasers.org/home-equipment/