Small Cell Lung Cancer: Let's connect

Posted by Merry, Alumni Mentor @merpreb, Jan 12, 2019

Most of the discussions about lung cancer has been about Non-small cell lung cancers. There are many sub-types of this that are included. But there is another type of lung cancer that needs to be discussed and that is Small Cell Lung Cancer. This aggressive form of lung cancer most commonly occurs in smokers. It usually starts in the breathing tubes (bronchi) and grows very quickly, creating large tumors and spreading (metastasizing) throughout the body.
Symptoms include bloody phlegm, cough, chest pain, and shortness of breath.
Treatment includes surgery (for small tumors) as well as chemotherapy, sometimes in combination with radiation therapy.
Lung cancers cells are sometimes classified by where they tend to grow.
There have been huge breakthroughs in lung cancer research of late.
Please join @margot69 and I in this new disussion.

Interested in more discussions like this? Go to the Lung Cancer Support Group.

Profile picture for joangma @joangma

sir- i went to u.w. wisconsin, hospital in madison, wi they have a new PET cancer machine i had 5 treatments of radiation , no chemo at all, my cancer is gone the pet machine is 1 of 3 in the world. that's where i would go period.

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That had to a non small cancer. A much more treatable Cancer.

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Profile picture for joangma @joangma

treatment is easy you lay in a special mold for your body, the machine goes around your body to find the right angle to hit the cancer, and it zaps only the bad cells . what a rig. the only place to go for cancer, that place has the best in the world, period.

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My husband has multiple sites and very aggressive small cell.

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Profile picture for joangma @joangma

sir- i went to u.w. wisconsin, hospital in madison, wi they have a new PET cancer machine i had 5 treatments of radiation , no chemo at all, my cancer is gone the pet machine is 1 of 3 in the world. that's where i would go period.

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Thank you for sharing and speaking up! We need more survivors like you. It’s difficult at best to go up against lung disease. Bravo to you.

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Profile picture for Merry, Alumni Mentor @merpreb

@joangma- You must feel like a new person. Might you tell your story, what exactly is the treatment like, the machine and side effects? This is a relatively new procedure here.

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treatment is easy you lay in a special mold for your body, the machine goes around your body to find the right angle to hit the cancer, and it zaps only the bad cells . what a rig. the only place to go for cancer, that place has the best in the world, period.

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Profile picture for B &PopKorhn @popkorhn

We saw a thoracic small cell specialist on Friday and Pop will start Chemotherapy with the 3 cocktail meds. They include : atezolizumab (Tecentriq), atopside (Toposar),and carboplatin (Paraplatin). He is treated with all on the first day, then less the other two days . He goes back in 3 weeks for 4 sessions. I would love to hear from anyone who has gone through small cell lung cancer which has metastasized.

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sir- i went to u.w. wisconsin, hospital in madison, wi they have a new PET cancer machine i had 5 treatments of radiation , no chemo at all, my cancer is gone the pet machine is 1 of 3 in the world. that's where i would go period.

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We saw a thoracic small cell specialist on Friday and Pop will start Chemotherapy with the 3 cocktail meds. They include : atezolizumab (Tecentriq), atopside (Toposar),and carboplatin (Paraplatin). He is treated with all on the first day, then less the other two days . He goes back in 3 weeks for 4 sessions. I would love to hear from anyone who has gone through small cell lung cancer which has metastasized.

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Profile picture for joangma @joangma

they told me i will continue to get xrays of the lung for a few more months just to see thast the cancer is gone and, the area is shrunk up to a very small size. the U.W. WISCONSIN HOSPITAL IS DOING THIS EVERY DAY OF THE YEAR SO MANY PEOPLE HAVE ALREADY RECEIVED NEW LIFE.

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@joangma- You must feel like a new person. Might you tell your story, what exactly is the treatment like, the machine and side effects? This is a relatively new procedure here.

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Profile picture for Merry, Alumni Mentor @merpreb

@joangma- What a happy day for you! What will be your life now with follow ups!

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they told me i will continue to get xrays of the lung for a few more months just to see thast the cancer is gone and, the area is shrunk up to a very small size. the U.W. WISCONSIN HOSPITAL IS DOING THIS EVERY DAY OF THE YEAR SO MANY PEOPLE HAVE ALREADY RECEIVED NEW LIFE.

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@joangma- What a happy day for you! What will be your life now with follow ups!

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Profile picture for B &PopKorhn @popkorhn

Thank you Coleen for connecting us to the right group. These past two days have been a whirlwind of just confirming Pop’s primary tumor in his upper right lung ,yesterday from his PET scan results done on Monday. He was diagnosed December 18th with secondary liver cancer after having a Biopsy. The soonest we could be scheduled for a PET scan was January 6th.
After We received his Biopsy report on Monday ,I freaked out after doing some research. His Pathologist from the Biopsy concluded his liver tumor was a high grade neuroendocrine carcinoma, consistent with small cell. I sent the Biopsy report to a friend and other pathologist ,who recommended he see a neuroendocrine specialist at Moffitt, here in Tampa where we live. March 17th was the soonest Moffitt could schedule him with the Neuroendocrine oncologist. I told them that we needed to be seen sooner so they suggested he see aThoracic specialist. We have a January 22nd appointment with the Thoracic specialist. So you see, we are just getting started on this roller coaster ride. Any information and help is greatly appreciated.

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@popkorhn, that is good that further testing gave clarity that the tumor is in fact a neuroendocrine carcinoma. Many patients with NETs have shared that it can be a long journey to get a proper diagnosis. And knowing that it is neuroendocrine, you'll get the right treatment.

You may be interested in connecting with other members with NETs in the Neuroendocrine Tumors (NETs) group here: https://connect.mayoclinic.org/group/neuroendocrine-tumors-nets/

These discussions may be of particular interest:
- Newly diagnosed with NET in liver https://connect.mayoclinic.org/discussion/newly-diagnosed-with-net-in-liver/
- Anyone treated for NETs at Mayo Clinic in Jacksonville, FL https://connect.mayoclinic.org/discussion/patients/
- Typical Carcinoid Tumor in Lungs https://connect.mayoclinic.org/discussion/typical-carcinoid-tumor-in-lungs/
- Welcome to the NETs Group! Come say hi. https://connect.mayoclinic.org/discussion/welcome-to-our-new-group/

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