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Sjogren and bronchiectasis.

Posted by vickied @vickied, Aug 31 4:39am

Pulmonologist claims Sjogren just causes dry mouth. He keeps treating me with rigorous clearance routine that doesn't work. Claims I am medically non-compliant. Anyone have the same experience?

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vickied | @vickied | Sep 7 2:08am
In reply to @becsbuddy "@deb2025 Welcome to Mayo Clinic Connect! You can probably get more help and answers to your..." + (show)
Profile picture for Becky, Volunteer Mentor @becsbuddy

@deb2025 Welcome to Mayo Clinic Connect! You can probably get more help and answers to your questions, by going to the Transplant support group.
https://connect.mayoclinic.org/group/transplants/. Yes, Sjogrens disease is an autoimmune one, but right now I think you need more info on transplants than Sjogrens, Is that OK with you ?

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So sorry. I hope you are successful in finding a match for both.

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deb2025 | @deb2025 | Sep 7 2:23am
In reply to @becsbuddy "@deb2025 Welcome to Mayo Clinic Connect! You can probably get more help and answers to your..." + (show)
Profile picture for Becky, Volunteer Mentor @becsbuddy

@deb2025 Welcome to Mayo Clinic Connect! You can probably get more help and answers to your questions, by going to the Transplant support group.
https://connect.mayoclinic.org/group/transplants/. Yes, Sjogrens disease is an autoimmune one, but right now I think you need more info on transplants than Sjogrens, Is that OK with you ?

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I am on the list to get a new liver ASAP and am working closely with the Mayo transplant team.

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stroma | @stroma | Sep 9 10:50am

Oh yes I have the same problem in fact my Consultant wrote a report stating I was Cancer phobic and against conventional medication just because I didn’t want to keep taking steroids which weren’t working and causing oral thrush

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vickied | @vickied | Sep 9 12:37pm
In reply to @stroma "Oh yes I have the same problem in fact my Consultant wrote a report stating I..." + (show)
Profile picture for stroma @stroma

Oh yes I have the same problem in fact my Consultant wrote a report stating I was Cancer phobic and against conventional medication just because I didn’t want to keep taking steroids which weren’t working and causing oral thrush

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These comments are just an example that they are not listening to the patient and expect total loyalty.

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