Side Effects starting on Camzyos

Posted by marigold13 @marigold13, May 12, 2025

Just starting 5mg. First day I got really woozy an hour after, stayed in and out of that for maybe 4-5 hours, but evening felt better but felt a bit short of breath. 2nd day was better, still a bit woozy but not for long. Felt tired took a nap, felt better in the evening but again SOB. 3rd day was the best day but then late afternoon I began to get woozy and SOB. No SOB on exertion but in general. Also was told to stop Metoprolol before starting Camzyos. During the week I did notice my heart rate going into the 80s, I prefer in the 70s, feels better. BP started going up, too. Called the doc on Thursday and he said I could revert to 12.5 Metoprolol once a day and that helped. But each continuing day the woozy was ruining my day along w/the SOB feeling. Felt the need to breath deep almost all day. Best time of day was the late evening. But over the weekend I just felt like it was becoming too much, and it ruined my Mothers Day. Not seeing many posts here about being unable to handle side effects. Anyone else? Thank you.

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cash298 | @cash298 | 2 days ago

when my blood pressure was up since starting camzyos the heart failure clinic and their pharmacist just siad no way that has anything to do with camzyos..... what is wrong with these people and what in the world am I going to do? They have no idea what they are doing.

deniseinflight | @deniseinflight | 1 day ago

When I started on Camzyos I was told to stay on my metoprolol, but I also felt just awful for the first week. My symptoms were similar to yours and also started within an hour or two of taking my first pill. After a few days of that, I called my physicians office and let them know I was having difficulties. My doctor called me back and urged me to stay on the medication and give it a little more time...he also gave me his personal cell phone to call him back if things got worse.
Thankfully, the symptoms left in a few more days and I stayed on Camzyos for eight more months. But I am so thankful I stayed on Camzyos long enough to feel the full benefits--it was probably six or more months after starting on the program.

I had not felt as good for at least 15 or 20 years. I was able to return to hiking, hills were easier...no stops to catch my breath, and more importantly to me was the ability to hike at a fast clip...breathing deeply all the way, but always feeling I was getting the oxygen I needed to continue at a fast clip without stopping.

I hope that you will be able to stay on the program long enough to get past the initial symptoms and feel the benefits...they are truly amazing.