Side Effects of Prolia

Posted by pine4234 @pine4234, Oct 26, 2018

I had prolia injection a week ago. I've developed lower back pain and severe spasms. The spasms are so bad I can hardly get out of bed or even out of a chair. Is there anything I can do or take to alleviate this awful pain.

@ethanmcconkey

Hi @kay71 you may have noticed I moved your posts to this existing discussion on the side effects of prolia so you can see what others have experienced with prolia. Simply click VIEW & REPLY in your email notification to get to your post.

@ritafarmer, @mabel343, @kenzreggie, @bonnieh218, and @tessie may be able to offer you support as you deal with these side effects.

Are you in pain from the infection in your jawbone?

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The pain has been over the top and no one could figure out what was wrong for months. They just couldn’t believe it was Prolia. They finally sent me to a infectious disease doctor that had dealt with this before. I have been taking 875mg x 2 times a day of Augmentin for 4 weeks and finally better. I have good bone density which makes me question. It was given for prevention by oncologist because of a cancer medicine. I’m starting over with new doctor and never taking this drug again. Many bad side effects!

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@msdot281

@pine4234: I've been on Prolia for about 5 years now. I had and (based on the pain that I still have) currently have bilateral sacral insufficiency fractures and bilateral pubic insufficiency fractures; I roll over and my bones crunch. However, my bone density tests come back normal. My Rheumatologist said that the fact that I have the insufficiency fractures indicates I have osteoporosis. The only side effect I have, which is becoming increasingly problematic, is severe mouth ulcers. I find myself dreading my next shot in about a week because the ulcers are so painful and will stay around until about 3 weeks before the next shot. I can't eat fruit, fresh or canned or frozen, or anything even remotely acidic or spicy so long as I have the ulcers. Mr doctor increased my folic acid so that I now take Leucovorin, but it still doesn't help much.

Pine, I hope you don't develop this or any other side effect. But for the rest of the forum, does anyone else have this problem? If so, do you have any helpful remedies? Thanks!

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My severe jawbone infection started with ulcers on my gum..

Liked by parrotqueen

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@kay71

My severe jawbone infection started with ulcers on my gum..

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I as so glad you spoke up. I was on the verge of starting Prolia, but checked in with a support group for osteoporosis on Facebook. They put me in touch with two women who had full-blown osteonecrosis. They told me they lost use of their jaws and the osteonecrosis was now attacking other bones! The next time I saw my endocrinologist, I told her I would not take Prolia. She got up and walked out of the room. Needless to say, I will be looking for another doctor to work with me on bone health. I hope you will alert others to what happened every chance you get. Those bone drugs are poorly studied and have little redeeming features once you study them. I am now studying nutritions books such as "Advance Nutrition: Macronutrients, Micronutrients, and Metabolism" by Carolyn D. Berdanier and Janos Zempleni in my quest for knowledge on how to help my bones. There must be a better way – and I think it can be addressed with diet. I wish you all the best luck with your cancer treatment.

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I am so sorry. There is a support group on Facebook called Osteoporosis Natural Remedies that may have answers for you. The reason I did not take Prolia is that the drug supposedly works for six months – I hope your side effects do not last that long. If I come across anything to help you in my research, I will come back here and let you know right away. Have you tried things like a muscle relaxer, perhaps vitamin D3 and magnesium? Also, I don't know if it would be effective, but you could try activated charcoal (I always take activated charcoal if I have taken something that causes unwanted side effects). Maybe contact the drug manufacturer and doctor and ask for an antidote.

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@kay71

The pain has been over the top and no one could figure out what was wrong for months. They just couldn’t believe it was Prolia. They finally sent me to a infectious disease doctor that had dealt with this before. I have been taking 875mg x 2 times a day of Augmentin for 4 weeks and finally better. I have good bone density which makes me question. It was given for prevention by oncologist because of a cancer medicine. I’m starting over with new doctor and never taking this drug again. Many bad side effects!

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OMG I forgot to mention CBD – get a cannabis CBD (not hemp – hemp is not nearly as effective). I take a 20:1 strength CBD oil (20 parts CBD to 1 part THC – the THC is necessary to get the CBD working – but it is such a small amount, you will not feel it). CBD has given me more relief from pain than oxycontin or tramadol. I take about 10 mg every 6-8 hours when I have bad pain – but you could take any amount. You cannot die from an overdose of anything cannabis-related (although an overdose of THC ma. make you wish you would die in the short term!). CBD does NOT get you high but it is very effective at dealing with pain. The one side effect I have sometimes with CBD is acid reflux from the oil it is suspended in. If that happens to you, try freezing the capsules before you take them – that seems to help. Also, take a good vitamin C. I will keep you posted as I learn more. I am not a doctor and you should make up your mind what you feel is right for your body. I'm just telling you what I am hearing from other women who have been down this road and what I am learning for myself.

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@parrotqueen

I am so sorry. There is a support group on Facebook called Osteoporosis Natural Remedies that may have answers for you. The reason I did not take Prolia is that the drug supposedly works for six months – I hope your side effects do not last that long. If I come across anything to help you in my research, I will come back here and let you know right away. Have you tried things like a muscle relaxer, perhaps vitamin D3 and magnesium? Also, I don't know if it would be effective, but you could try activated charcoal (I always take activated charcoal if I have taken something that causes unwanted side effects). Maybe contact the drug manufacturer and doctor and ask for an antidote.

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I have been taking a very strong antibiotic and am better. No one would believe that a few shots would cause this. I have a new oncologist because the Dr that gave this to me made a big mistake. She said I had to take Prolia with the cancer medicine as preventive. I have strong bones and didn’t even need Prolia! That’s the part that is hard to get over and the worry about what she may be doing to other people. Keep posting ideas! Thanks!

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@kay71

I have been taking a very strong antibiotic and am better. No one would believe that a few shots would cause this. I have a new oncologist because the Dr that gave this to me made a big mistake. She said I had to take Prolia with the cancer medicine as preventive. I have strong bones and didn’t even need Prolia! That’s the part that is hard to get over and the worry about what she may be doing to other people. Keep posting ideas! Thanks!

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Are you taking a probiotic? I strongly urge you to take a probiotic, limit your sugar intake (that includes bread and fruit), and take herbal antifungals or eat anti fungal food (garlic, ginger, apple cider vinegar, coconut oil, oregano, etc.) for a period of 90 days. Antibiotics and chemo drugs can kill the good bacteria in your gut, allowing then Candida (which is a fungus) that lives in all of us to take over your gut. Once candida takes over your gut – you are in for real trouble. At least check out a book called The Candida Cure by Ann Boroch. That is what happened to me and I got VERY sick over time. If you do the diet for 90 days, you can restore your gut health. Hypocrites said "All disease begins in the gut," and I think he was correct. I got so sick, I thought I was going to die. The good news is that you can get your gut health back. If you want to do this and you need support, I can hook you up and I will help you as much or as little as you need.

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@parrotqueen

Are you taking a probiotic? I strongly urge you to take a probiotic, limit your sugar intake (that includes bread and fruit), and take herbal antifungals or eat anti fungal food (garlic, ginger, apple cider vinegar, coconut oil, oregano, etc.) for a period of 90 days. Antibiotics and chemo drugs can kill the good bacteria in your gut, allowing then Candida (which is a fungus) that lives in all of us to take over your gut. Once candida takes over your gut – you are in for real trouble. At least check out a book called The Candida Cure by Ann Boroch. That is what happened to me and I got VERY sick over time. If you do the diet for 90 days, you can restore your gut health. Hypocrites said "All disease begins in the gut," and I think he was correct. I got so sick, I thought I was going to die. The good news is that you can get your gut health back. If you want to do this and you need support, I can hook you up and I will help you as much or as little as you need.

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@kay71

The pain has been over the top and no one could figure out what was wrong for months. They just couldn’t believe it was Prolia. They finally sent me to a infectious disease doctor that had dealt with this before. I have been taking 875mg x 2 times a day of Augmentin for 4 weeks and finally better. I have good bone density which makes me question. It was given for prevention by oncologist because of a cancer medicine. I’m starting over with new doctor and never taking this drug again. Many bad side effects!

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Did you have bone cancer? I see that Prolia is sometimes prescribed for people with bone cancer. If you DO have bone cancer, please look into treatments that use turmeric. I used to get my IVIG treatments with a woman who had Stage 4 bone cancer – and she told me she owes her life to turmeric. I'm pretty sure MD Anderson uses turmeric as a treatment for bone cancer. I live in the Berkeley, CA area – and that's where she got her treatment. Maybe Mayo has a turmeric treatment for bone cancer. I wish I knew more about it so I could tell you. I have taken turmeric for an autoimmune skin disease that was killing me – turmeric stopped it cold. I get my turmeric from Starwest-Botanicals.com; I like their turmeric best because it is organic, fresh and potent. But I'm sure you will need an oncologist to tell you what to do. it's worth looking into. BTW, she got her cancer to stop – there is HOPE and you must never lose sight of it!

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Okay I'm getting a lot of suggestions from other women who took Prolia and had side effects. They are saying take turmeric, Low Dose Naltrexone (LDN), black seed oil, CBD (from cannaibis), magnesium glycerinate and piles of food high in vitamin C, one woman wrote this: "I've told my story several times here but it's still relevant. Basically Prolia rebound cost me my spine, my mobility, and most of what was left of my health." Many of the women said you should take a comprehensive multivitamin and some said calcium also until this is out of your system. There is a Prolia Side Effects support group on Facebook and there are a lot of women in that support group who are having a very difficult time – but you might find some help from someone in that group. I am in the Osteoporosis Natural Remedies group. I may join the Prolia support group so I know more about this.

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@parrotqueen

Did you have bone cancer? I see that Prolia is sometimes prescribed for people with bone cancer. If you DO have bone cancer, please look into treatments that use turmeric. I used to get my IVIG treatments with a woman who had Stage 4 bone cancer – and she told me she owes her life to turmeric. I'm pretty sure MD Anderson uses turmeric as a treatment for bone cancer. I live in the Berkeley, CA area – and that's where she got her treatment. Maybe Mayo has a turmeric treatment for bone cancer. I wish I knew more about it so I could tell you. I have taken turmeric for an autoimmune skin disease that was killing me – turmeric stopped it cold. I get my turmeric from Starwest-Botanicals.com; I like their turmeric best because it is organic, fresh and potent. But I'm sure you will need an oncologist to tell you what to do. it's worth looking into. BTW, she got her cancer to stop – there is HOPE and you must never lose sight of it!

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No, I was told I had to take it because I was taking Letrozole which is given because I had an estrogen fueled breast cancer. She never checked my bone density. I thought I had to take it. My breast cancer was cured and this was only for prevention. I had 7 shots when this horrible jaw disease began. It took 6 months to get it out of my system, much antibiotics, surgery, root canal. I just want people to know you can get this jaw bone issue very easily! Don’t take Prolia! Bad mistake for me.

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@parrotqueen this article and what you and @kay71 say is really very alarming. Why is this drug still on the market? I guess I really need to do a lot more research before my endocrinologist appointment for osteoporosis.
JK

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Hello @parrotqueen and other members discussing the side effects and concerns with Prolia. It is important to consider each person tolerates medicines differently and what may work for one can cause known or unknown side-effects in another. Decisions with medications are best made with a provider or pharmacist, especially if one is experiencing side-effects. Here are a few additional resources to consider as well as you consider Prolia or alternative treatments:

https://www.ncbi.nlm.nih.gov/pmc/articles/PMC4480604/
https://www.mayoclinic.org/drugs-supplements/denosumab-subcutaneous-route/side-effects/drg-20074315

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@JustinMcClanahan

Hello @parrotqueen and other members discussing the side effects and concerns with Prolia. It is important to consider each person tolerates medicines differently and what may work for one can cause known or unknown side-effects in another. Decisions with medications are best made with a provider or pharmacist, especially if one is experiencing side-effects. Here are a few additional resources to consider as well as you consider Prolia or alternative treatments:

https://www.ncbi.nlm.nih.gov/pmc/articles/PMC4480604/
https://www.mayoclinic.org/drugs-supplements/denosumab-subcutaneous-route/side-effects/drg-20074315

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Thankyou so much for providing these two links to reliable ,trustworthy, unbiased evidence-based websites.

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@contentandwell

@parrotqueen this article and what you and @kay71 say is really very alarming. Why is this drug still on the market? I guess I really need to do a lot more research before my endocrinologist appointment for osteoporosis.
JK

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@contentandwell Yes do a lot of research of all the osteoporosis drugs JK I for one never take the newer drugs I use the tried and true one that have been out for 15 yrs or more . But everyone is different you have to know your body and how you respond to medicines for me I know I am sensitive to the dosages on meds also. I cant tolerate the regular dose that is recommended I let the Dr know I cant take the reg. dose but this is just me . Others can tolerate reg. dose that is prescribed .

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