Mayo Clinic Connect
I have been short of breath and went into ER yesterday. They said I had some fluid around my heart but didn't seem concerned. Is this pretty common with people on Dialysis?
@ginal, I just saw this message. How are you doing now? How is the breathing?
I had fluid 'everywhere' because I had liver failure while also on dialysis.
Here is some information about dialysis – that might be helpful for you.
Have you shared your shortness of breath and your ER trip with your nephrologist?
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@rosemarya,Yes I'm still having a lot of problems with my breathing. I'm set up for a Echo and Stress test on the 7th of May so hopefully they can tell why and I can get it fixed. I know they have to do a stress test before I can be put on a list also. Thank you Rosemary
@ginal, I am sure that that is uncomfortable and frightening for you. I hope that your stress test will lead to a diagnosis and a resolution to this.
I have had several stress tests in the past, and I found that the anticipation was the hardest part. I have done the treadmill, and the drug stress test. Here is some information that I hope will be useful for you.
I will be thinking of you on May 7th.
Keep me posted.
@rosemarya, Thank you again, I really appreciate it.
@ginal, Anytime! You know where to find me:-)
I want to share with you that we do have a private message option, if there is ever anything that you are uncomfortable sharing in the public discussion, you can message me through the envelope icon at top right of this page.
The most horrible think about the stress test was the anticipation. It is not so bad. Worth it to get the right diagnosis.
Liked by Rosemary, Volunteer Mentor
@beach757, True, I will be so happy to be able to move and breath. I hate not be able to get dressed fix my bed ect.. without sitting down.
Liked by Rosemary, Volunteer Mentor, frankweathers
Beach 757 did you get my private message?
Hi, @beach757 — I believe you were wondering if @ginal received your private message?
@beach757 — thanks for your encouragement to @ginal and others about the stress test. You implied it helped with your diagnosis. When did you get your diagnosis?
No I'm sorry I did not.
Liked by Lisa Lucier, Connect Moderator
@beach757, I have my stress test tomorrow. I hope they can tell me soon what is causing this shortness of breath.
Liked by Rosemary, Volunteer Mentor, Lisa Lucier, Connect Moderator
@ginal, I have had you on my mind with your breathing difficulties. I hope that the stress test went comfortably for you. Have you been able to get any relief?
@rosemarya My stress test, Echo and Pulmonary test came back ok but I'm still short of breath which is getting me down. Days of Hemo I feel worn out and if it wasn't for the shortness of breath I'd feel pretty good on the other days. I'm set to have my PD catheter put in next Friday so maybe I can ask them what they think it could be from. Also going to ask how I get on a transplant list. Nervous about starting home dialysis but I have heard it's a good choice. I hope all is well with you and thank you so much for thinking of me. Gina
@ginal, The good news is that your tests came back good. But have you talked to your nephrologist about this shortness of breath? When kidneys are not doing what they are supposed to do – and when on dialysis – fluids can begin to accumulate in our bodies. That is why I think you need to talk to the nephrologist. Not a 'maybe'. It is your life and your health, so you need to know what is happening and whether or not there is anything that can be done by you, or any treatment that can help you.
Is anyone going to go the the appointment with you? It is always helpful to have an extra set of ears. I remember that I was always so nervous and frightened, that I couldn't remember much at all.
I hope that the catheter goes well for you.
I look forward to hearing from you.
Liked by Teresa, Volunteer Mentor, Martin Jensen, Volunteer Mentor
@rosemarya I have talked to my nephrologist, he's the one who set up the stress test. I love to work in my flower gardens but being so short of breath makes it so hard. Had a hard time just trying to make toast this morning. Maybe this is normal for people on dialysis? I'm going to talk to the surgeon on Friday who is putting my catheter in and see what he thinks, he is also a kidney transplant doctor. Thank you again Rosemary and God Bless
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