Sharing my experience with rescue medication for seizures

Posted by Chris Gautier OR Santosha @santosha, Apr 17, 2021

Hi Everyone,
I just want to share my experience with rescue medication, as I believe this could be of help to some of you.
I have refractory focal epilepsy and use rescue medication (nasal spray) based on medical cannabis (with high THC) since August 2020. This medication effectively interrupts my seizures with no side effects. It brings more security and comfort to me and my husband. Before using this medication, I could do very little when having a seizure. When I felt an aura, I called my husband and prayed for the seizure to be brief and mild. This gave us a lot of anxiety! Today, I and my husband can be more proactive when I have a seizure, bringing benefits not only from an emotional point of view but also reducing the risks of neurological damage. With this rescue medication, I feel more secure when leaving home, alone or accompanied. It is like a guardian angel to me that I always have nearby.
Unfortunately, based on my experience, rescue medications are underused here in Brazil. This medication was introduced to me after visiting 5 doctors! Through a vídeo conference organized through an association in the United States, I understood it is not much prescribed in the United States as well. A pitty! Why is that?

Interested in more discussions like this? Go to the Epilepsy & Seizures Support Group.

A Very Good Morning @boomarang
Thank you for your kind words!
For sure, learning about my epilepsy has made many things easier in my life. Learn, learn and more learn is something that I recommend to every person with epilepsy condition.
My vibrations to you as well!
Kind Regards,
Chris (@santosha)

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