Share your test results (if you'd like)

Posted by northoftheborder @northoftheborder, May 28, 2024

I thought it might be helpful to have a thread dedicated to sharing routine test results, good or not-so-good. My intention is just to provide a place for sharing, support, and encouragement, not for debating tests and treatments

I'll start. I've been at stage 4b oligometastatic for over 2½ years, and last Friday I did my routine 12-week bloodwork. My PSA remains below 0.01 (undetectable), Orgovyx and Erleada are holding my testosterone at 0.2, and the other tests are in normal ranges, except for those related to iron, which are slightly low.

Overall, it was a banner day! 🎊 I always treat myself to a masala chai at the little Indian café across the street while I'm waiting for my results to pop.

Do you have any recent test results you'd like to share?

Interested in more discussions like this? Go to the Prostate Cancer Support Group.

Profile picture for northoftheborder @northoftheborder

Good news today!

Last fall, the MRI showed an area of lucency at my old surgery site (T3 on my spine) that the radiologist considered "concerning." Two oncologists told me separately that it was improbable that it was cancer, because my PSA remains undectectable (< 0.01), ALP is in normal range, and CT and bone scans both suggested benign post-surgical bone remodeling, but it was still nagging at me a little, of course.

I had a follow up MRI last Friday, and they added the cage camera around my head to try to look down a little, around the rods and cement in my spinal fusion.

The result just popped in MyChart:

❝No interval change compared to prior study from September 2025. The suspected area of enhancement in the T3 vertebral body visualized on prior examination is most likely artifactual. No definite masslike enhancement to suggest recurrent disease.❞

🎉🎊

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@northoftheborder

Yeayyyy !!! : )))) I am so happy for you : ))) ! It is always so nice to hear good news and thanks for sharing < 3 May it stay that way forever !!!!

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Husband got his 5 months post RARP psa test results this thursday and it is < 0.02. Praise God!
Thank you all for your invaluable support!

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PSA test 4 months after RARP just came in - < 0.01. We are happy to see those numbers. Will continue regular testing. Thank you all for the support and discussions that helped in our decisions for RARP and the aftercare, and the ongoing discussions helping with my post-RARP issues. Best to all.
Dave

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Click on the logarithmic graph.

The three pertinent dates:
2021-02: RALP
2021-10: Begin ADT
2024-04: End ADT

See my Profile for a more complete schedule.

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Profile picture for Read & learn & live! @readandlearn

Click on the logarithmic graph.

The three pertinent dates:
2021-02: RALP
2021-10: Begin ADT
2024-04: End ADT

See my Profile for a more complete schedule.

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@readandlearn
Thanks for sharing. Where do you go from here? My doc and others here said we never really leave this PC train. I have started a graph to track my regular tests too. Like you, I was Gleason 9, and higher risk with cribriform. Hope for the best, but research and plan for whatever may cross our tracks.

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In reply to @kujhawk1978 "Here's mine..." + (show)
Profile picture for kujhawk1978 @kujhawk1978

Here's mine...

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Take a rocket scientist to figure out what those numbers mean.

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Profile picture for Read & learn & live! @readandlearn

Click on the logarithmic graph.

The three pertinent dates:
2021-02: RALP
2021-10: Begin ADT
2024-04: End ADT

See my Profile for a more complete schedule.

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@readandlearn Why logarithmic rather than linear? That really exaggerates the rise after the end of ADT.

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Profile picture for shalom7777777 @shalom7777777

Husband got his 5 months post RARP psa test results this thursday and it is < 0.02. Praise God!
Thank you all for your invaluable support!

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@shalom7777777

Yeayyy, great news Shalom : ))) !

May it stay that way forever !!! < 3

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Profile picture for davederousseau @davederousseau

@readandlearn
Thanks for sharing. Where do you go from here? My doc and others here said we never really leave this PC train. I have started a graph to track my regular tests too. Like you, I was Gleason 9, and higher risk with cribriform. Hope for the best, but research and plan for whatever may cross our tracks.

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@davederousseau "Where do you go from here?"

My oncologist is waiting for my PSA to rise to 0.20 (technically a BCR), where we will probably do another PET scan.

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Profile picture for asolidrock @asolidrock

Take a rocket scientist to figure out what those numbers mean.

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@asolidrock

Actually, it takes 12 years of PCa snd condenses it down to one picture.

My medical team and I use it often when discussing my clinical history and what it means to our discussion about current treatment choices.

The data by itself is overhearing but the ability to inform discussion is invaluable.

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