Share your test results (if you'd like)

Posted by northoftheborder @northoftheborder, May 28, 2024

I thought it might be helpful to have a thread dedicated to sharing routine test results, good or not-so-good. My intention is just to provide a place for sharing, support, and encouragement, not for debating tests and treatments

I'll start. I've been at stage 4b oligometastatic for over 2½ years, and last Friday I did my routine 12-week bloodwork. My PSA remains below 0.01 (undetectable), Orgovyx and Erleada are holding my testosterone at 0.2, and the other tests are in normal ranges, except for those related to iron, which are slightly low.

Overall, it was a banner day! 🎊 I always treat myself to a masala chai at the little Indian café across the street while I'm waiting for my results to pop.

Do you have any recent test results you'd like to share?

Interested in more discussions like this? Go to the Prostate Cancer Support Group.

Profile picture for northoftheborder @northoftheborder

@surftohealth88 It went as well as it could have. There's something going on there. Unlikely that it's cancer when my PSA is undectectable (< 0.01), but not impossible, so they'll follow up out of due diligence. To start, the oncologist is going to arrange a meeting of radiology and oncology together to do a restrospective review of my imaging over the past 4 years to see if they can resolve the conflicting assessments. After that, we may repeat imaging in 6 months to see if there's any change. A biopsy isn't practical with the cement and screws from the spinal fusion in 2021.

The good news is

1. Whatever it is — cancer or (more likely) bone remodelling — it's stuck between dead bone (from previous radiation) and cement (from spinal fusion), so it has absolutely nowhere to go.

2. While they'd planned to give me SBRT post-op in 2021 (and that's what later notes copied), it turns out I actually had a lower dose because it was so soon after my surgery, so I'm still eligible for SBRT at that spot the future if they decide it's concerning.

3. There's no other sign of possible cancer activity.

So I'm going to decide to go with glass half full. Nothing to worry about for now, and still no solid evidence of progression after four year, just a spot to watch.🥛

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@northoftheborder

Well I agree with your glass, actually it is 90% full , if you ask me 😃🙌 ! It is probably nothing and if "something", it will be easily zapped and eliminated ! : )))
Those are really good news 🍀🧿 ! : ))) Your PSA is non existing and all else looks great - yeayyyyyy !!! I just LOVE good news 🥰 ! Oh how I wish I have even one member of your medical team, but alas, it is what it is ... Maybe I can ask for pol. asylum in Canada !? ha ha haaaaa

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I did my quarterly bloodwork this morning (at the 4 year 3 month mark) and everything is solid. 🎉

PSA remains < 0.01 and other blood panels show my vital organs, iron, etc in remarkably good shape, even without allowing for the fact I've been on ADT and Apalutamide for over 4 years.

I think 5 years NED (no evidence of disease) is the official milestone for declaring long-term remission from stage 4 cancer — at least according to some practioners — so I'll be biting my nails for the next three tests, even though I know it's just an arbitrary date (something can happen at 5 years 3 months as easily as it can happen at 4 years 9 months). 🤞

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Surgery was in Feb. 2021. I was on ADT from Oct. 2021 until March 2024. MyChart provides a helpful graph:

http:/mailpen.com/PSA -- The graph is updated after every test (every 4 weeks). Values < 0.01 are not graphed.

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Woke up this morning to no heat in the house. Turns out the motherboard in the HVAC went out. But I also got my latest PSA results of < .04, which I was really happy to see as that's what it's been every PSA test since RP 18 months ago. Needless to say, the good news on the PSA made the HVAC problem inconsequential by comparison. Said another way, on the day my HVAC failed I really feel like celebrating 🙂

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@retireditguy Same results as you for my December PSA testing, < .04 which is as low as my cancer center measures for those who had radiation as primary treatment. I'm now officially on the six-month monitoring program so next results won't be until June 2026. Gained back all the weight I needed to so the party is over in terms of eating whatever, whenever (lost 50 lbs from ADT and/or radiation).

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December test PSA < 0.014 : ))) (*knock the wood)
For the past few days incontinence "0" ! : )))
Very nice end of a year indeed < 3 May it stay this way forever : )))

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Profile picture for Read & learn & live! @readandlearn

Surgery was in Feb. 2021. I was on ADT from Oct. 2021 until March 2024. MyChart provides a helpful graph:

http:/mailpen.com/PSA -- The graph is updated after every test (every 4 weeks). Values < 0.01 are not graphed.

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The "Morons at Microsoft" have broken OneDrive file sharing, so I have had to change the link (which has worked for months) in the prior message to:

http:/mailpen.com/misc/PSA.pdf

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You said asks anything! I’d like to discuss what your do for sex after RP! I’m only 3 months out from surgery and worry about this a lot! Not only for me but for my wife! Any suggestions

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Good news today!

Last fall, the MRI showed an area of lucency at my old surgery site (T3 on my spine) that the radiologist considered "concerning." Two oncologists told me separately that it was improbable that it was cancer, because my PSA remains undectectable (< 0.01), ALP is in normal range, and CT and bone scans both suggested benign post-surgical bone remodeling, but it was still nagging at me a little, of course.

I had a follow up MRI last Friday, and they added the cage camera around my head to try to look down a little, around the rods and cement in my spinal fusion.

The result just popped in MyChart:

❝No interval change compared to prior study from September 2025. The suspected area of enhancement in the T3 vertebral body visualized on prior examination is most likely artifactual. No definite masslike enhancement to suggest recurrent disease.❞

🎉🎊

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Profile picture for northoftheborder @northoftheborder

Good news today!

Last fall, the MRI showed an area of lucency at my old surgery site (T3 on my spine) that the radiologist considered "concerning." Two oncologists told me separately that it was improbable that it was cancer, because my PSA remains undectectable (< 0.01), ALP is in normal range, and CT and bone scans both suggested benign post-surgical bone remodeling, but it was still nagging at me a little, of course.

I had a follow up MRI last Friday, and they added the cage camera around my head to try to look down a little, around the rods and cement in my spinal fusion.

The result just popped in MyChart:

❝No interval change compared to prior study from September 2025. The suspected area of enhancement in the T3 vertebral body visualized on prior examination is most likely artifactual. No definite masslike enhancement to suggest recurrent disease.❞

🎉🎊

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@northoftheborder
What a relief it must be! Stay blessed!

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