Share your test results (if you'd like)
I thought it might be helpful to have a thread dedicated to sharing routine test results, good or not-so-good. My intention is just to provide a place for sharing, support, and encouragement, not for debating tests and treatments
I'll start. I've been at stage 4b oligometastatic for over 2½ years, and last Friday I did my routine 12-week bloodwork. My PSA remains below 0.01 (undetectable), Orgovyx and Erleada are holding my testosterone at 0.2, and the other tests are in normal ranges, except for those related to iron, which are slightly low.
Overall, it was a banner day! 🎊 I always treat myself to a masala chai at the little Indian café across the street while I'm waiting for my results to pop.
Do you have any recent test results you'd like to share?
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@northoftheborder
Well I agree with your glass, actually it is 90% full , if you ask me 😃🙌 ! It is probably nothing and if "something", it will be easily zapped and eliminated ! : )))
Those are really good news 🍀🧿 ! : ))) Your PSA is non existing and all else looks great - yeayyyyyy !!! I just LOVE good news 🥰 ! Oh how I wish I have even one member of your medical team, but alas, it is what it is ... Maybe I can ask for pol. asylum in Canada !? ha ha haaaaa
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7 ReactionsI did my quarterly bloodwork this morning (at the 4 year 3 month mark) and everything is solid. 🎉
PSA remains < 0.01 and other blood panels show my vital organs, iron, etc in remarkably good shape, even without allowing for the fact I've been on ADT and Apalutamide for over 4 years.
I think 5 years NED (no evidence of disease) is the official milestone for declaring long-term remission from stage 4 cancer — at least according to some practioners — so I'll be biting my nails for the next three tests, even though I know it's just an arbitrary date (something can happen at 5 years 3 months as easily as it can happen at 4 years 9 months). 🤞
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10 ReactionsSurgery was in Feb. 2021. I was on ADT from Oct. 2021 until March 2024. MyChart provides a helpful graph:
http:/mailpen.com/PSA -- The graph is updated after every test (every 4 weeks). Values < 0.01 are not graphed.
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3 ReactionsWoke up this morning to no heat in the house. Turns out the motherboard in the HVAC went out. But I also got my latest PSA results of < .04, which I was really happy to see as that's what it's been every PSA test since RP 18 months ago. Needless to say, the good news on the PSA made the HVAC problem inconsequential by comparison. Said another way, on the day my HVAC failed I really feel like celebrating 🙂
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3 Reactions@retireditguy Same results as you for my December PSA testing, < .04 which is as low as my cancer center measures for those who had radiation as primary treatment. I'm now officially on the six-month monitoring program so next results won't be until June 2026. Gained back all the weight I needed to so the party is over in terms of eating whatever, whenever (lost 50 lbs from ADT and/or radiation).
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5 ReactionsDecember test PSA < 0.014 : ))) (*knock the wood)
For the past few days incontinence "0" ! : )))
Very nice end of a year indeed < 3 May it stay this way forever : )))
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8 ReactionsThe "Morons at Microsoft" have broken OneDrive file sharing, so I have had to change the link (which has worked for months) in the prior message to:
http:/mailpen.com/misc/PSA.pdf
You said asks anything! I’d like to discuss what your do for sex after RP! I’m only 3 months out from surgery and worry about this a lot! Not only for me but for my wife! Any suggestions
Good news today!
Last fall, the MRI showed an area of lucency at my old surgery site (T3 on my spine) that the radiologist considered "concerning." Two oncologists told me separately that it was improbable that it was cancer, because my PSA remains undectectable (< 0.01), ALP is in normal range, and CT and bone scans both suggested benign post-surgical bone remodeling, but it was still nagging at me a little, of course.
I had a follow up MRI last Friday, and they added the cage camera around my head to try to look down a little, around the rods and cement in my spinal fusion.
The result just popped in MyChart:
❝No interval change compared to prior study from September 2025. The suspected area of enhancement in the T3 vertebral body visualized on prior examination is most likely artifactual. No definite masslike enhancement to suggest recurrent disease.❞
🎉🎊
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6 Reactions@northoftheborder
What a relief it must be! Stay blessed!
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2 Reactions