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Several Issues: Early onset Alzheimer's, neuropathy & RLS

Posted by Ginny @ginny1952, Aug 9, 2016

My spelling has gone out the window...I have complex partial seizure's, early onset Alzheimer's (just diagnosed) and preferial neurophy (sorry tried 10 times to get the spelling) and RLS. I am sick and tired of all the meds. they have me on. Its awful. any ideas where I can start to help me. Struck by lightning over 30 years ago and very thing is showing up in the last 5 years.

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cher1946 | @cher1946 | Oct 6, 2016
In reply to @colleenyoung "@karenahmari I agree with Scott that you may wish to ask your auntie's primary care physician..." + (show)
@colleenyoung

@karenahmari I agree with Scott that you may wish to ask your auntie's primary care physician about getting a referral to Mayo Clinic for an evaluation.
However, you do not need a doctor referral to be seen by Mayo Clinic experts. You can call for an appointment yourself (self refer). Simply call Mayo Clinic appointments department. The numbers can be found here - http://mayocl.in/1mtmR63. They will walk you through the steps and what you need to do to get your aunt seen at Mayo.

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@karenahmari I am so sorry that you are experiencing this frustrating experience. Is it possible to switch primary physicians? Perhaps you can find one who will refer her.

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mari | @mari | Oct 6, 2016
In reply to @colleenyoung "@karenahmari I agree with Scott that you may wish to ask your auntie's primary care physician..." + (show)
@colleenyoung

@karenahmari I agree with Scott that you may wish to ask your auntie's primary care physician about getting a referral to Mayo Clinic for an evaluation.
However, you do not need a doctor referral to be seen by Mayo Clinic experts. You can call for an appointment yourself (self refer). Simply call Mayo Clinic appointments department. The numbers can be found here - http://mayocl.in/1mtmR63. They will walk you through the steps and what you need to do to get your aunt seen at Mayo.

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This really makes me upset! @ '06 Mom asked her Dr. for memory meds. "They don't always work" that means Sometimes They Do Work" - after I met that Dr., took Mom away from her and got a better insurance plan for her.
Next Dr. was annoyed that Mom was going to see a really great Neurologist and he did not want her to .... take up his time?
I left that Dr. - then got her Namenda And Arecept.
I REALLY THINK IT DID HELP. And when Mom hit the donut hole - had to debate about hundreds $ for those meds - got them from Canada. so meds from '07 to '10 and 1 month before Mom died at 92, she was flirting with men at the pool and was cunning and smiling.
I was in a dark grape study at UCLA for dementia. EAT DARK GRAPES.
ALSO, from Psychiatrist at UCLA, don't eat after 8:30pm. - Cortisol? goes to brain.
1 Dr. called me self directed. I read on Internet and get med newsletters.

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