Myectomy with valve replacement

Hi Jill, welcome to Connect.
My apologies for not welcoming you sooner. For some reason my notifications were turned off for the HCM group. That has been corrected now 🙂

There are a few members who have had both a myectomy together with valve replacement. @lamborama just had this done at Mayo earlier this month. @lepadelford and @rmcmillan a while back. I hope they will share their experiences with you. @cynaburst, do you know who else from our group has had both procedures done?

Jill, did you see this discussion on Connect "What is the recovery like following septal myectomy?" https://connect.mayoclinic.org/discussion/what-is-the-recovery-like-following-septal-myectomy/
When is your consult?

Hmmm. The approach they take for a myectomy is thru the aortic valve. I.e. they trim the muscle by holding the aortic valve open and then pushing the tools through the opening but I have not heard of an aortic replacement afterward, though I suppose they could do it after the myectomy. I have heard of people getting a mitral valve replacement at the same time, but not an aortic.

Thanks for getting back - I did look at the recovery discussion earlier, and will look through again, especially from laborama. Coming on Wed 11/30 for testing, will see Dr. Nishimura and Dr. Schaff on Thursday. Trying to get my list of questions together!

Thanks for getting back...I'm sure much will be revealed to me later this week!

Jill, did you see this webinar Hypertrophic Cardiomyopathy and the Surgical Treatment Apical Myectomy given by Dr. Ommen and Dr. Schaff? https://connect.mayoclinic.org/hubcap/webinars/ They have such a great way of explaining things and using diagrams. I think you might find it helpful in preparing for your appointment on Wed.

You are in great hands! Drs. Nishimura and Schaff are AMAZING doctors!

Yes, the webinar was really good at explaining how the operation works and has great schematics.

My husband is diagnosed with hypertrophic cardiomyopathy in 2007 .He is on toprol all these years.but now having some syptoms like shortness of breath and moderate mitral insufficency .He needs to get a valve repair.we are fro texas and i coudnt find a good hospital for these two procedures .Any recommendation about the hospitals ?Is there any complication after the myectomy .

Hi @lina2017, welcome to Connect.
I moved your message to the Hypertrophic Cardiomyopathy (HCM) group on Connect. I encourage to read through the various discussions in the group where you'll meet many people who share your husband's experience.

- Hypertrophic Cardiomyopathy (HCM) group http://mayocl.in/2eJdqOc

I'd like to tag specifically @cynaburst @lynnkay1956 @PatMattos @Sensation @ronaldpetrovich @FrancineFafard @lisa7 @lucindag @23273333 @li @margie11 @fishinglady @lisa7 @lisab62 @debcrawford @onewholovesrock @1949 @mbcube who can tell you more about finding a good hospital, valve repair and/or symptoms post myectomy.

Lina, what part of the world do you live in?

When it comes time for me to have my Myectomy, I will be going to the Mayo Clinic in Rochester MN. My Cardiologist at the University of Iowa Hospital and Clinics highly recommends them. He has said that they do a higher number of Myectomys at Rochester. Thoughts and prayers for your husband.