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Seizures/how to dose CBD/medical marijuana

Epilepsy & Seizures | Last Active: Mar 22, 2023 | Replies (66)
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@pamelastewart5

Hello, Santosha and Everyone,
We would dearly love to switch Caleb back to Medical Marijuana, which helped him more than Epidiolex (seizure frequency is not much different, but on MM he was more alert and could bear weight) but all marijuana, though legal in our state, Illinois, is NOT federally legal, which means insurance won't cover it (my husband has repeatedly checked). It is hard to get Caleb in and out of the car when I pick him up from his day program, so I am hoping for some way to improve his weight bearing. He is not heavy--about 140 lbs and 5"8' tall--but he is still hard to lift/move.
Sorry for the complaints. I believe this will work out sooner or later.
Best wishes to Everyone.
Pam Stewart

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Replies to "Hello, Santosha and Everyone, We would dearly love to switch Caleb back to Medical Marijuana, which..."
pamelastewart5 | @pamelastewart5 | Sep 3, 2021

Hello, Everyone,
FYI: There is a free neuro mag called BRAIN AND LIFE. I discovered it many years ago while waiting in Caleb's neurologist's office. I get a hard copy through the mail and also the e-mail version.It has lots of ads (which is why it's free), but also very good articles on various neuro problems, including epilepsy. I believe that the e-mail address is: BrainandLife. org. and that the phone number for subscriptions is: 1-800-422-2681.
Best wishes!
Pam Stewart

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Chris Gautier OR Santosha | @santosha | Sep 4, 2021

@pamelastewart5
Hi Pam,
I understand your frustrations regarding the not recognition of medical marijuana by insurances and also by some doctors. It is the same over here in Brazil. I know that medical marijuana needs additional researches. But when you are in a situation like yours or mine in which you have already tried approved medication without good results, you are willing to take some risks. I better live less but with more life quality than longer but with little life quality. Here in Brazil, there is also a strong lobby of the pharma companies against medical marijuana and its growing use. That is why we still have very few local MM available, the best options are imported.
Best wishes!
Santosha

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