Salty tast in my mouth from diagnosed with Sjogren's

Having Sjögren’s luckily I haven’t had that yet , but that could be a good thing to have for me I was raised to have some French fries with my salt lol and my wife don’t season with salt which is healthier but some things like cantaloupe , watermelon, radishes, turnips, lettuce , mashed potatoes you gotta have salt

@celia16 So sorry you are getting more snow. Luckily the storm stay far enough east that it will miss us. I don't think we could handle anything else right now. They had to order a part for our heat problem and it will probably be another week until it is fixed. They are supposed to drop off some heaters for the house but I'm losing hope they'll come today. All this I think is aggravating my taste issues which seem to get eve worse when I'm stressed!!!!

Note for the dry eyes. Many years before I was diagnosed w Sjogrens I had super dry eyes. I thought due to the extensive air travel as I did international work. My ophthalmologist started to plug both the lower and upper ducts which helped a lot when used with viscous drops. Downside is it’s $$$ and they do seem to fall out over time and my insurance did not cover this.

Thank you all for your helpful tips and insight as I navigate my Sjogrens journey.

@loriach , so far my insurance has covered mine.

It sounds to me like you may have Long Covid. I also suffer from this, as well as loss of taste and smell since December of 2022 after having a mild case of Covid. I don’t taste any flavors of any kind of food, only if it’s sweet, salty or bitter. Could be the same for you. I was diagnosed at the Long Covid Center at Northwestern Chicago, finally in 2025. Yes, it does suck, but I know others who are far worse off than I am.

@lkirnbauer , sure hope your smell returns. I was diagnosed with post covid syndrome by Duke ENT from mild case in Sept 2023. I was told taste is closely related to sense of smell. My smell returned, but metallic/bitter/salty taste remains.

@celia16 Immediately after I was injected with the Covid Vaccine, which I was so happy to receive, I detected a metal taste in the back of my throat. I was later diagnosed with Hashimoto’s and Hypothyroidism and now take medication for Hypothyroidism. I don’t have either taste or smell.

@lkirnbauer , wow, that’s incredible. I had similar thing but with other meds. I hope you will eventually receive some improvement.

@momx3x2023 I was recently diagnosed with Sjogrens disease. My issues have always been my spine (since I was 11). After radiation (age 32)for spinal tumors that cannot be removed due to nerves. I had been having all kinds of problems (dry mouth, fatigue, dry skin, cold feet, etc). I was sent to various doctors (pain management, neurologist, ortho) No one wanted to “own it”. I felt extremely helpless with symptoms continuing to get worse as well as new symptoms. FINALLY, I was sent to a rheumatologist. She ordered a ton of bloodwork. My ANA came back positive as well as a few other tests. I am so relieved to have an actual diagnosis for all these strange seemingly unrelated symptoms. It has taken almost 20 years to get this diagnosis. I will be 56 in a couple weeks. My journey has been going for 45 years 🤦🏼‍♀️
(I just started on methotrexate this week)

@linda1976 It has been a while since we've been in touch so I was wondering if you had your appointment at UCLA yet. I am still having the taste issues so I thought I would check in with you again and see if you found out anything?