sacral neuromodulation .. any people have this done??

Posted by mcmurf2 @mcmurf2, Tue, Jul 23 8:25am

I have been scheduled for this procedure for both incontinences. I went to youtube last night and got scared… lots of personal videos about pain, embarrassment, etc, Not sure I'm liking what I see. Also,, I seem to be the MRI queen.. lots of things breaking on me. I suppose I will not be able to have MRIs in the future..?? lots more questions,, but will wait for responses to hear your experiences before I can figure out how to ask more. thanks.

Hello @mcmurf2,

I see that you have not had any responses to your post so I wanted to draw your attention to a current post (a bit different than your procedure) about sacrocolpopexy and cystocele repair. Here is the link. Perhaps if you post your question in this discussion you might get some responses. Lisa, @lisalucier, is a moderator on Connect and she will most likely respond to your questions as she is able.

https://connect.mayoclinic.org/discussion/scheduling-sacrocolpopexy-and-cystocele-repair-more-than-a-little-scared/?commentsorderby=DESC&pg=3

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@hopeful33250

Hello @mcmurf2,

I see that you have not had any responses to your post so I wanted to draw your attention to a current post (a bit different than your procedure) about sacrocolpopexy and cystocele repair. Here is the link. Perhaps if you post your question in this discussion you might get some responses. Lisa, @lisalucier, is a moderator on Connect and she will most likely respond to your questions as she is able.

https://connect.mayoclinic.org/discussion/scheduling-sacrocolpopexy-and-cystocele-repair-more-than-a-little-scared/?commentsorderby=DESC&pg=3

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Hi well I have decided not to have that surgery. It really freaked me out. I'll just have to take extra clothes along with me in every car I have or continue to do that I should say. And just, you know deal with it the way I've been dealing with it. I'm not having that surgery. no.!

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@mcmurf2

Hi well I have decided not to have that surgery. It really freaked me out. I'll just have to take extra clothes along with me in every car I have or continue to do that I should say. And just, you know deal with it the way I've been dealing with it. I'm not having that surgery. no.!

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I appreciate the update, @mcmurf2. Wishing you well as you adjust to this condition.
If I may ask, what one thing in particular frightened you most about the surgery?

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@hopeful33250

I appreciate the update, @mcmurf2. Wishing you well as you adjust to this condition.
If I may ask, what one thing in particular frightened you most about the surgery?

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well,the embarrassment for one… (blush). and the fact that there will be an electrode in my back, thru the sacrum,, and done by my urologist and not my neurologist.. and I don't want that 'box stimulater in my body either. so, I guess just everything. I got my insurance figured out so I"m going to try drugs again. After my fall last autumn, , I've been having problems again. My urologist did not even look at my bladder sling. Getting to the point I don't like him…..not sure there would have been anything he could do anyway with it. The fall really messed my body up in many ways.

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