Responsive neurostimulation (RNS) as an epilepsy treatment?

Posted by caseybach @caseybach, Sep 9, 2020

I am wondering what experiences people have had with RNS. My son has had seizures since he was 7, has tried several different sezure medications and is currently on Brivacta, Onfi, Oxycarbazepine & has a VNS. Still having 4-6 seizures a month. RNS is our next hope, so if anybody has any personal experiences or info. I would greatly appreciate it. Thank you Casey.

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caseybach | @caseybach | 2 days ago

In reply to @caseybach "@jakedduck1" + (show)

@caseybach

caseybach | @caseybach | 2 days ago

No Logan still has the VNS & RNS & they are still functioning. He still continues on Onfi, Briviact, X-copri, Lacosamide.
Honestly for about 3 months after his LITT surgery it was very difficult. I really thought we had made the wrong decision. He experienced stroke like symptoms, he was having hallucinations & was sleeping much of the day. However, I think once we started to decrease his meds & the swelling went down. The new & improved Logan showed up!