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Responsive neurostimulation (RNS) as an epilepsy treatment?

Epilepsy & Seizures | Last Active: 2 days ago | Replies (72)
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Profile picture for absentsenior @absentsenior

@absentsenior 1 week to go. I'm as prepared as I can be and have a lot of support. I've not really seen any negative feedback on RNS. By this time next week, I'll be on the table.

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Lisa Lucier, Moderator | @lisalucier | Feb 16 3:03pm

Hi @absentsenior - so glad you are feeling prepared and have a lot of support. That will get you far.

You mentioned before about the challenge of keeping your head warm. Did you have to do a full head shave? Have you had other pre-procedure things to do or that you will do in the hours before the RNS? Did your doctor anticipate you'd spend a night or two in the hospital?

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Chris Gautier, Volunteer Mentor | @santosha | Feb 17 5:36am

Hi @absentsenior 💜
Surgeries always give me butterflies, so I truly admire your calm and positive attitude! It's wonderful to know you feel prepared and well-supported — that really does make all the difference.
What also helps me when facing something like this is my yoga practice and a good massage to release the tension. Gentle exercise, like walking, can also do wonders.
I'll be thinking of you and cheering you on from here - wishing you a smooth procedure and a gentle recovery. Whenever you're ready, I'd love to hear how you're doing!
Chris

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