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Rheumatoid Arthritis (RA) - Introduce yourself and meet others
Let's talk about living with rheumatoid arthritis.
As moderator of the Autoimmune Diseases group, I noticed that several people were talking about RA, but those conversations were scattered throughout the community. I thought I would start this discussion to bring us all together in one place.
Let’s grab a cup of tea, or beverage of choice, and let's chat. Why not start by introducing yourself?
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Anyone have terrible muscle pain in legs after starting Enbrel?
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1 Reaction65 year old australian , diagnosed over the last few years with rheumatoid Im on hydroxychloroquine its a battle and its getting worse, Im not as able /mobile as I was ( allowing for age ).
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4 Reactions67 female recently diagnosed with palindromic rheumatoid arthritis, meaning it immobilises a joint, hand, foot for 48 hours and then disappears as if it was never there. Never there when you have a doctor's appointment, of course, so I'm very lucky that I had high ERS, CRP, RA factor and anti CCP otherwise it could have been years before anyone would take me seriously.
I have vasculitis with it and those are actually my worst symptoms, but no rheumatologist wants to take it seriously because I don't yet have gangrenous finger tips, which they say is the symptom. It doesn't seem to occur to them that there must be a stage before your finger tips go black when you have bloodless finger tips, and I've certainly had those!
HCQ bumped me straight into remission and I was great until I got black eyes like I'd been in a boxing ring at 10 weeks, then it started affecting the centre of my vision looking at red things, which is what happens before it gives you retinopathy, so I stopped the HCQ.
There was a 2 month wait to start methotrexate so I've been taking some big hitter anti-inflammatory supplements and I'm waiting for a set of blood results right now to see if I've kept myself in remission without prescribed meds.
My eyes this happens usually at 6 years not at 10 weeks!
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2 ReactionsI’m on hydroxychloroquine, methotrexate and Humira, it works pretty well. Doesn’t touch undiagnosed neuropathy in both feet. Have Gabapenten which helps. Pain sucks, good luck.
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4 ReactionsYes, especially in my knees and hips. I have reached the conclusion Enbrel is not working for me also…
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1 ReactionNo, Enbrel has not helped my hands at all- but then I don’t think it is the right med for me. My rheumatologist is still working with me to find one that really works.
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2 ReactionsIf it’s not helping, go back to your rheumatologist ASAP and explain. Many of us find that the original 4 DMARDs (Hydrox. Being one of them), don’t help and we need a biologic- but it is a process. Here in US the insurance companies insist we try the cheaper meds first.
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2 ReactionsLucy R.- still looking for the right biologic and working through the ones my insurance company insists to use first. DMARDs did nothing for me. My rheumatologist wants me to find something that will make me feel as good as I did on the initial 2 weeks of steroids- I love his optimism! Just found Enbrel is useless. Most meds tried so far only work for a couple of days, if at all. My hands rarely get relief. I am also diagnosed with osteoporosis and am due to start infusions soon, so I’m pretty new still.
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2 ReactionsDid it happen the first time you used it? How long for pain to go away? My pain has been really severe! Thanks
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1 ReactionHello my name is Mayra and living with Lupus and kidney failure and I experience RA now and then, I feel my worst when it rains, my ra always seems to flare up.
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