Restless Leg Syndrome

Posted by jimbourg8 @jimbourg8, May 14, 2016

I started having this burning feeling in certain pressure points in my body. Mostly on the elbows, under forearms mostly on my left side ….mostly worse in the late afternoon and evening. It’s usually burning and/or uncomfortable feeling when I am sitting down on couch or chair. the burning sensation like I said on pressure points of the elbows, legs, or butt when sitting even if only 2 mins or so and seems like I can’t remain still…….upon getting up and moving around it relieves the sensation. Went to neurologist 4 years ago……….he confirmed that it was Restless leg syndrome…………there are different types of RLS but the classic symptoms are a feeling of burning, tingling, and a general sense of unable to relax when quietly sitting or even laying down and relief comes when changing position and/or getting up. Diagnosis is by symptoms….there is not a definitive diagnostic test………all bloodwork etc…. is normal . I now take Gabapentin, and Klonopin to calm the “restless” nerves………..there is no cure for this ( my Neurologist says )……..It’s just something you have to learn to live with and take those medications for it……….It is believed there is a link between low iron (which I had) and and RLS . Now I take more iron (but that does not alleivate the symptoms so far . ( even when iron level becomes normal ) . I was diagnosed with low thyroid 5 years ago and started taking the levothyroxine to put my thyroid back to normal which it IS NOW. But even though I still have the RLS……..there is a possiblity that I had LOW thyroid for years before I was diagnosed with it……..hence I think (my theory) the RLS evolved due to the years of LOW thyroid. This is just my thinking on this. No Dr. Told me of that…..anyways I hope maybe this helps others and they can begin to pinpoint their symptoms and get a diagnoses.
I would love to know others with RLS and how they have dealt with it over the years. It seems to be a tricky act to balance the medications with side effects and still manage the RLS……..appreciate any feedback. Thanks Jim B.

Im looking for some type healing from drop foot along with the neuropathy. There was an ad in the paper to cure neuropathy but they wouldn't take Aetna insurance.. so I didn't pursue it.

REPLY
@bburleson1

Hi; I've also used a spoonful of mustard that will immediately relief any cramps in your legs or hands..I've tried it and it worked for me.

Jump to this post

@bburleson1 Yes I agree a friend use to carry mustard packets when she would go out It's good for superficial burns also I burned my hand on hot coffee The waitress put mustard on it took the sting out

REPLY
@bburleson1

Im looking for some type healing from drop foot along with the neuropathy. There was an ad in the paper to cure neuropathy but they wouldn't take Aetna insurance.. so I didn't pursue it.

Jump to this post

Hi, @bburleson1 – for the foot drop along with the neuropathy, you might post your question here where there are lots of members dealing with neuropathy https://connect.mayoclinic.org/discussion/living-with-neuropathy-welcome-to-the-group/

REPLY
Please login or register to post a reply.