Research Progam involving repairing a heart valve with a Clip

Posted by nw945 @nw945, Jul 12 7:36am

I have decided to have valve repair with a method of going through the groin to insert a clip to repair valve. I have been to Mayo three times and have reapplied for the program.. Mayo said looks like I am a good candidate and wondering if anyone has been through this before. I should know this week if I am accepted and when it can be done. This virus has slowed everything down and I am worried about the future just to get this done.

@nw945, are you referring to mitral valve repair? Doctors insert a catheter with a clip attached in an artery in the groin and guide it to the mitral valve and then they use the clip to reshape the mitral valve.

REPLY

I already had one aoeta valve replacement in 2012 and the valave I am talking abou is the Tricuspid valve. I have had a afib for a few years and now this the other problem, that they want to repair with a clip..

REPLY

I will be needing tricuspid valve repair or replacement in the future. Please keep us posted how things go.

REPLY

Yes I will keep you posted. Is your surgery going to be at Mayo?? I will hear this Friday for their is a meeting on Thursday about the research program.

REPLY

Hello @nw945, just wanted to add a couple of articles that you might find helpful

Tricuspid Valve Repair – https://www.mayoclinic.org/tests-procedures/tricuspid-valve-repair-tricuspid-valve-replacement/about/pac-20385087

The 4 Heart Valves and how they work – https://my.clevelandclinic.org/health/articles/17067-heart-valves

I'd also like to invite @yorlik, @openheart2020, @jeanern01, and @thankful to see if they can share insight and what they experienced and to welcome you to Connect.

Please let us know on Friday what you hear about the research program and the name of it. Do you have a family history of heart disease?

REPLY

I appreciate your reply. Yes, we do have a family history of heart disease. I will let you know on Friday when I hear from Mayo. The name of the program I will check to see if I hafe it right. I know they want to repair with a clip design made by the company Edwards. Thank you

REPLY
@amandaburnett

Hello @nw945, just wanted to add a couple of articles that you might find helpful

Tricuspid Valve Repair – https://www.mayoclinic.org/tests-procedures/tricuspid-valve-repair-tricuspid-valve-replacement/about/pac-20385087

The 4 Heart Valves and how they work – https://my.clevelandclinic.org/health/articles/17067-heart-valves

I'd also like to invite @yorlik, @openheart2020, @jeanern01, and @thankful to see if they can share insight and what they experienced and to welcome you to Connect.

Please let us know on Friday what you hear about the research program and the name of it. Do you have a family history of heart disease?

Jump to this post

@nw945, @amandabyrnett- Not sure How much I can add to this discussion. My experience was more from a widow maker type heart attack I suffered back in 2014. I had a 100% blockage in my LAD (left anterior decending) artery. A stent was used to open that artery, but I did as a result have heart tissue damage from the 100% blockage which was a diminished EF (Ejection Fraction).
I've been able to make some changes inmy diet and continue to exercise regularly and was still being told by my cardiologist that there wasn't much change in my EF (I was about 30%). I refused to let that get me down although I did spend a season feeling like "damaged goods", but continued exercising and eating right. After the 2nd annual Echo told my cardiologist there was still no change I decided to get a 2nd opinion at the Mayo in Scottsdale, AZ. After a full day of tests I finished with my cardiologist in the room with the Echo Tech to do a Stress Echo. The experience was tough, but after all was complete and we met in his office later that day he told me thatat my EF was probably more in the mid 40's and would get back to me once he was able to go over everything.
To my delight I heard back within 2 weeks and the results showed an EF that was more like 47%. I was elated!!
If I had any other medical issues I would not hesitate to get on a plane to the Mayo. Absolutely the best!!
@nw945, I wish you all the best as you continue to advocate for yourself. Jim @thankful

REPLY

Wondering how the meeting went with the clip to fix your valve I got bad news myself about my aeortic valve and an aneurism thought a TAVR would be perfect no that option is no longer available what was wrong with your valve? Doctors never talked to me about this procedure so if you can tell me anything I'll ask them for another meeting thanks dave and

REPLY
Please login or register to post a reply.