Remedies for Joint Discomfort/Pain on AI ( Anastrozole)

Posted by anjalima @anjalima, Jun 22, 2023

Anyone find relief with supplemental remedies such as Collagen or Glucosamine or Cherry Juice?

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@mglinkhart

Otis just theOTC genetic Walmart brand. 10 mg. Best deal is Amazon 365 tabs forget the price. I believe it is all about The histamine blocker in the pill. But all I know is I don’t have bone pain other than in my hips from the Mets there. Can’t hurt to try. Ask your doc do it doesn’t interfere with your other meds. It’s a game changer for me. I make purses by hand and I would not be able to do it without the Claritin. XOM

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Thank you. Glad it helps you continue to produce your very interesting craft!

I knit and paint so the hands are always on call even beyond basic needs.

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@rosa1935

I started collagen 2 weeks ago but I have been taking condritin and glucosamine fur 20 years and the latter has no effect on my side effects from taking Anastrozole 🤷‍♀️

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Let us know how that goes. I’m wanting to try that. Must run it by doc.

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@anjalima

Thank you. Glad it helps you continue to produce your very interesting craft!

I knit and paint so the hands are always on call even beyond basic needs.

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Yes they are. I hope this helps for you too. Maria xx

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@anjalima

Let us know how that goes. I’m wanting to try that. Must run it by doc.

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I’m fed up running things by the doctor. All u need to do is to make sure collagen and condritin and glucosamine do not react with meds thst u are on. The latter, condritin and glucosamine, wasn’t accepted by docs 20
Years ago but I took it and have been doing very well in it up to now!! 20 years ago I was told by a doctor in Cyprus, Larnaca hospital, that I woukd have to have 2 knee replacements. I started these meds and have t had these ops. Unfortunately,I think that tge Anastrozole is doing more harm than good and is affecting my joints in an extreme way. On the other hand if I hadn’t taken condritin and glucosamine fir 20 years, god know I coukd b in a wheelchair niw. I slsiyhave been taking vitamin D3 fir nearly 20 years and that will have helped me too x

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@anjalima

Let us know how that goes. I’m wanting to try that. Must run it by doc.

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I will. Normally fir meds to b effute usually takes 6 weeks to 3 months. At tge mo in at war with my gp surgery and have successfully, thus afternoon, been able to get a phone appointment with a doctor on Tuesday. To get a face to face appointment is nearly impossible here. I had one 31 May but that took 2 months!! Today I’m at tge end of my patience and phoned surgery and told them that they were neglecting which us what is happening. I’m Irish and a fighter and the surgery are up against the wall with me. Eg ladt week I sent an email explaining my symptoms and git a text back saying I’ve been booked a phone call with a clinician on 4 July!!!!’ In the meantime I have to suffer this awful pain!! Don’t think so!! 👍👍👍

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@rosa1935

I will. Normally fir meds to b effute usually takes 6 weeks to 3 months. At tge mo in at war with my gp surgery and have successfully, thus afternoon, been able to get a phone appointment with a doctor on Tuesday. To get a face to face appointment is nearly impossible here. I had one 31 May but that took 2 months!! Today I’m at tge end of my patience and phoned surgery and told them that they were neglecting which us what is happening. I’m Irish and a fighter and the surgery are up against the wall with me. Eg ladt week I sent an email explaining my symptoms and git a text back saying I’ve been booked a phone call with a clinician on 4 July!!!!’ In the meantime I have to suffer this awful pain!! Don’t think so!! 👍👍👍

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Self advocacy!!!! Way to go!

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@windyshores

For me what worked was to walk 45 minutes. The first 20 hurt and then pain got better and stayed better for the day!

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I wish!! I used to walk 20-30 kilometres per week. Now I’m lucky to walk to bus stop 🤷‍♀️I went in a taxi to my hairdresser thus morning- 5 mins away- and walked home. I couldn’t wait till I got home to go
And
Lie flat in
My bed!! 5 mins walk!!! 😢

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I take two 500 mg of turmeric capsules every day. I am on Arimidex for the next 4+ years at least. Helping with arthritis in hands especially. No side effects for me and think it’s reported to be safe by professionals as well.

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@rosa1935

I wish!! I used to walk 20-30 kilometres per week. Now I’m lucky to walk to bus stop 🤷‍♀️I went in a taxi to my hairdresser thus morning- 5 mins away- and walked home. I couldn’t wait till I got home to go
And
Lie flat in
My bed!! 5 mins walk!!! 😢

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@rosa1935 is this limitation from an aromatase inhibitor, do you think? I am sensitive to everything so was surprised I tolerated them pretty well and am sorry you didn't. I have a lot of pain walking due to spinal fractures but as I said, my joints felt better if I could do more. Hope you can return to your walking!

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@californiazebra

I'm curious about your joint pain from an AI. Location(s)? How long were you taking an AI before the pain started?

I have been on Letrozole for 27 months for MBC and only started having knee and shin pain in the past few months and mostly at night once sitting or lying down. I was worried the cancer may have spread to my bones, but was told it was the AI causing symptoms. How does my oncologist know that since the pain was not immediate?

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I had very similar reactions was on Anastrozole for almost a year before I had leg/knee pain in my right leg. Tried very hard to deal with it but currently on a 3 month hiatus from taking Anastrozole. I was concerned when results regarding many side effects have dissipated but leg/knee issues seem slower to ebb. As usual, I was given no heads up as to what to expect so I have returned to my self investigation. It seems that there are side effects that take a longer time to show progress returning to normal - or at least a tolerable situation. In the meantime I am walking and have scheduled Physical Therapy (The jury is still out on this but worth trying).

As this point the pain has gone from constant to intermittent. I will continue to work on a achieving the quality of life that I remember before taking Anastrozole

Please share your experience as you go along. I would be so interested as I am sure others would be ❤️

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