My husband has REM sleep behavior disorder (RBD)

Posted by pamela51 @pamela51, Dec 21, 2019

Little is know about this disease, but it has a major effect on a family. My husband was diagnosed 10 years ago. Is anyone else dealing with this?

@contentandwell

@lorena1egas I have read that taking over 3mg can cause nightmares. I use melatonin but never more than 3mg. How much are you taking?
JK

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Hi I am not using. I am afraid of using it then everytime Ive tried by my own to take it I have experienced terrible vivid dreams. Usually when my estrogen replacement fluctuates i have nightmares but thats on control with taking an oral dosage. I am sure the doctors at Mayo prefer melatonin instead of clonazepam for rem sleep but I am worry that I will spend 2 months with vivid dreams till my body get used to the melatonin. Have you or someone here experienced the same while on melatonin and how do you manage to control those nasty symptoms as vivid dreams that are big sleep disturbances too

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My husband has all the symptoms and went for a sleep study last night. However, he doesn't have these wild dreams every night and I wonder what the sleep study can find if he had a quiet night. Can they still diagnosis REM sleep disorder if he didn't have any physical dream during the sleep study?

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@terrysue

My husband has all the symptoms and went for a sleep study last night. However, he doesn't have these wild dreams every night and I wonder what the sleep study can find if he had a quiet night. Can they still diagnosis REM sleep disorder if he didn't have any physical dream during the sleep study?

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Hello @terrysue, Welcome to Mayo Clinic Connect. I've had a sleep study done that diagnosed my obstructive sleep apnea and I know they have a lot of leads hooked up to you and cameras watching you sleep – all to monitor breathing, heart, movement, and more but I'm not sure of the specifics. Mayo Clinic has some information on how it's diagnosed and treated here: https://www.mayoclinic.org/diseases-conditions/rem-sleep-behavior-disorder/diagnosis-treatment/drc-20352925

That would be a great question for your husband to ask the sleep medicine doctor when he meets with the doctor after the sleep study and they go over the results. I've always found it helpful to have someone with me when there may be questions so that I don't forget to ask. Are you able to attend the meeting with your husband and take notes?

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@terrysue

My husband has all the symptoms and went for a sleep study last night. However, he doesn't have these wild dreams every night and I wonder what the sleep study can find if he had a quiet night. Can they still diagnosis REM sleep disorder if he didn't have any physical dream during the sleep study?

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The way it was explained to us was: In normal REM sleep, a person's muscles are paralyzed, so they don't act out their dreams. In REM sleep disorder, even if it doesn't appear outwardly that they are dreaming, if their muscles are twitching, they shouldn't be. Your husband probably had some electrodes attached to muscles to determine if the muscles were paralyzed or not.

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@pamela51

The way it was explained to us was: In normal REM sleep, a person's muscles are paralyzed, so they don't act out their dreams. In REM sleep disorder, even if it doesn't appear outwardly that they are dreaming, if their muscles are twitching, they shouldn't be. Your husband probably had some electrodes attached to muscles to determine if the muscles were paralyzed or not.

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@pamela51 Welcome back to Mayo Clinic Connect.

May I ask if there was any treatment offered for REM sleep disorder?

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Clonazepam, plus 5 melatonin, every night.

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