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My husband has REM sleep behavior disorder (RBD)

Posted by pamela51 @pamela51, Dec 21, 2019

Little is know about this disease, but it has a major effect on a family. My husband was diagnosed 10 years ago. Is anyone else dealing with this?

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birdiejayne | @birdiejayne | Nov 21 9:14pm
In reply to @tngirl103 "@birdiejayne I realized I’m ADHD the same way you did. When my son at about 21..." + (show)
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@birdiejayne
I realized I’m ADHD the same way you did. When my son at about 21 was diagnosed he encouraged me to look at a list of “symptoms “ I was flabbergasted.
Never took medication but using the insight to navigate life has been extremely helpful. The most important has been taking notes during phone conversations of information I want to remember and hyperfocusing on people who need me to listen well and when I’m driving in unfamiliar places.

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@tngirl103
Ugh! I have ALWAYS hated driving in unfamiliar places! I feel like I can't find all the signs and lights and it's all coming at me at once! If I have to go to the city (San Francisco) I'm a basket case the whole time and exhaused when I get home! One of the things that I learned before I even knew I had ADHD was that chewing gum in church helped me pay attention to the sermon and to not fidget so much. It helps in bible study too!! Bible study is the hardest because I never get enough sleep since I have to get up so early to be there by 9. I go to church out of town so it takes 40ish minutes to get there and I have to get up in time to get myself ready and feed the critters. My husband doesn't stop snoring loudly, yelling and thrashing until about 3am. No sense even trying to go to bed before that!

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tngirl103 | @tngirl103 | Nov 22 8:14am
In reply to @birdiejayne "@tngirl103 Ugh! I have ALWAYS hated driving in unfamiliar places! I feel like I can't find..." + (show)
Profile picture for birdiejayne @birdiejayne

@tngirl103
Ugh! I have ALWAYS hated driving in unfamiliar places! I feel like I can't find all the signs and lights and it's all coming at me at once! If I have to go to the city (San Francisco) I'm a basket case the whole time and exhaused when I get home! One of the things that I learned before I even knew I had ADHD was that chewing gum in church helped me pay attention to the sermon and to not fidget so much. It helps in bible study too!! Bible study is the hardest because I never get enough sleep since I have to get up so early to be there by 9. I go to church out of town so it takes 40ish minutes to get there and I have to get up in time to get myself ready and feed the critters. My husband doesn't stop snoring loudly, yelling and thrashing until about 3am. No sense even trying to go to bed before that!

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@birdiejayne
Goodness! You are far away from where I live in MS. Would hubby consider the melatonin or another sleep aid? I think mine would, but as I mentioned, for some reason the restlessness is happening less often.

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dig2dye2 | @dig2dye2 | 3 days ago

pamela51 , it’s been a few years since you posted. I am wondering what happened with your husband. Mine was diagnosed in 2019 and had been in cognitive decline steadily since the diagnosis.

He can not take clonazepam, as it sent him into a terrible drug induced dementia state. I feel like his dreaming is progressing and it is getting worse.

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