Anybody have trouble regulating body temperature after COVID?

Update....I went from hot...Then cold....Now it is just hot....55yr old male BTW.
Now i sleep in shorts...No socks and a t-shirt...I no longer sleep with covers and use a fan regularly.
I sometimes wake up to visit the bathroom as most older guys do...And my shirt around the collar and shoulders are soaked from sweat.
I gave up on finding answers....I just accept it as my new normal.
Doctor appts have weared me out so i have taken a break.

Hi...yes I live in N.B. Canada. Very cold here.

Hi, yes I was sweating profusely day and night. Changing pj’s sheets in the night. They came on like flushes.

I’ve been researching my symptoms for over two years now, the first year I could get myself from the bed to the sofa. I’m still mostly housebound, but now have some help to get out.

I finally have my diagnosis, it’s Dysautonomia. The illness was turned on by Covid (although looking at all the symptoms, I did have a few before Covid, and was genetically susceptible. In the past dysautonomias were turned on by illnesses like glandular fever.
I saw a cardiologist who specializes in Dysautonomia, and just from my first appointment speaking to me about all my “long Covid symptoms” and explained how Covid can turn on a switch to other illnesses. I did all the other testing including the tilt table fainting test, not fun. I am relieved to have a direction and actual guidance from a doctor.

Look up dysautonomia, pots, and have a look at the symptoms.
Heat and cold intolerance are part of it.
I also developed Hashimoto’s from Covid too, so some of my symptoms overlapped each other, which made diagnosing a bit more difficult.

I’m 67 and have had hot flashes for years. I’m a female. Since covid they’ve increased tremendously. I now sleep naked with a ceiling fan and 66 house temp. Hot cold hot cold is constant. I feel your pain.

I have had Covid 3 times and long haul issues on and off for years.
This is what happens to me generally a couple of times per year.
I first get a cough and loss of appetite. After the cough for several weeks and less appetite the unregulated body temperature begins and can last from a few weeks to 3 months.
It just came back with a vengeance, first time in over a year. I thought I was finally over it. Now I can start sweating for no reason. I sweat profusely; cheat, back, face and head. It’s so bad I need to towel dry my hair and a new shirt. I sit in a bathrobe or with only a towel over my upper body when home.

I definitely have. That idea about the cooler beside your bed with ice packs is a brilliant idea! My room is at 45° and I'm still hot! What is autonomic nervous system testing. Of the million times I have talked to docs about this, and other autonomic issues, no one has suggested that. I am in New Hampshire, so I don't go to Mayo

You need to find a cardiologist or neurologist who specializes in Dysautonomia.

I’m in Canada, had no luck, I travelled to PV, Mexico where I found a cardiologist who gave me the tilt table test at the hospital, and full examination. I have been very impressed by the care I’ve received from doctors in Puerto Vallarta. It really gave me so much hope, to know that Covid causes these other illnesses. We are not crazy, these a very real and symptoms, that may have some already proven treatments.

Hi @mindygirl62
I live in MA, but just had autonomic testing done at the Wentworth-Douglass Hospital Portsmouth Outpatient Center. I was referred by a doctor at the Long Covid Clinic at Brigham and Women's Hospital in Boston. It took seveeral months for insurance to clear and then to get an appointment, and it will take a few weeks to get the results. There were four parts to the test, and it seemed to me that the testing was quite thorough. Good luck!

I also don't go to Mayo either. I did undergo autonomic nervous system testing, but in spite of symptoms did not end of with POTS or a related diagnosis. In addition to the ice packs, I have added cooling towels to my overnight regimen. They're meant for athletes, but stay quite cold all night. I have the towel in a bowel on the bedside table, as I they are convenient if I wake up overheated, and have a choice to quickly cool my neck, forehead, etc. They're great when I don't quite need the ice packs.

Fantastic idea! Thank you!