Red Ear Syndrome, anyone experienced it

Posted by leelou03 @leelou03, Mar 3, 2024

Has anyone had these symptoms; one or both ears get red hot and painful. The redness will spread to my cheek or cheeks. I googled it and Red Ear Syndrome came up, I asked my doctor, he looked it up. So I have an appointment with a dermatologist. Just want to find help

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Hello,

I know this post is over a year old but I would like to share my experience.

I (46) was diagnosed with multiple sclerosis in October of 2022. Since then I have found I have A LOT of crazy conditions that comes with this awful sickness. I believe I have RES(self diagnosed lol). But I also have Raynaud's. The tip of my nose and my toes are ALWAYS cold. They just get worse in the winter. I also have chronic migraines(literally everyday all day). I’m being treated with Botox and about to start vyepti. I have Trigeminal Neuralgia and severe tinnitus. And lots of other fun things someone with MS has. But those are the most that’s close to my ear so I feel like 1 or all of them is the reason for my RES.

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I also have issues with my tailbone. About a dozen years ago I fell down some stairs and I swear I hit my butt on every single step. I didn’t realize it until this year that I shattered it. My surgeon went and removed it.

Now I can say it doesn’t hurt like it used to. But it still hurts. I also ended up with a mean infection after that surgery so I had to have another to fix it and ended up on a picc line. Well between the infection and the harsh antibiotics my gallbladder gave out. I had that removed. Then ended up with pneumonia(I get that is someone sneezes in the next room). So now I’m going through a pretty bad MS flare. My drs are trying to find out why. I’m a walking medical mystery

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