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Reclast Infusions: Side-effects & Recovery time
I just had a reclast infusion last week and have had serious side effects. I had the worst flue like aching for 5 days then my lefty arm became full of inflammation in the wrist, elbow and shoulder which caused extreme pain and I lost the ability to straighten my elbow. Ultrasound showed huge amounts of fluid throughout the arm. The right arm is now starting to have the same symptoms. The pain is excruciating. Has anyone else experienced anything like this? Neither the ER doctor nor the Dr. who prescribed the procedure knew what to do to ease the symptoms. Both arms from fingertips to shoulder are swollen and neither elbow will straighten. Anyone else have adverse reactions to the reclast infusion? If yes, how long did it last?
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@vgen
I did the 12 months of Evenity and my Dr. suggested Reclast but it scared me when I read the problems from others. I decided to take the generic of fosomax starting this Sunday coming ((the 28th of September). I am scared to death. I took it many years ago and remember feeling depressed so I stopped taking it. My doctor then and my doctor now say they never heard of someone complaining about being depressed. I get it! everyone reacts differently but who wants to feel depressed! I will let you know what happens after I take it. I am hoping for the best but who really knows? They have got to come up with something better.
@vgen, I have wound up with vertigo, swelling in my feet, blurred vision, pain in my side. Don’t take it again. It is bad medicine.
I also had bad symptoms after my Reclast infusion of about two and a half months ago. It was terrible - I was so sick, throwing up for about 24 hours, pain and high fever. A few days later, I had ankle swelling that lasted for a week or more. I was also very tired. My symptoms were not as bad as yours but definitely not just flu like symptoms. I will not take this infusion again.
@rubythesheltie
I’ve been consistently lifting 8 to 10 lb. Weights for the last year, barre and yoga. Hoping this keeps me strong. The doctors are convinced Reclast will help but after a year of bone pain, being tired, depression and vertigo i don’t really want to go back there.
@cindydee Please find a spine care doctor who will listen to you and take your symptoms seriously (not jut "I've never seen anything like this." there's got to be somewhere th doctor can go to for answers (like the company that makes Reclast). The doctor would have a better chance of finding someone there that could help. iAnd your pain could be better controlled in a hospital. If you have gotten to the point where you are considering "ending it", as you say, let every doctor you see know that. They should be able to help or get you referred to a pain specialist. Keep fighting for yourself until you get the help you need!! You are worth it!
P.s. Stay well hydrated!! It can help if you have excess fluid in the body (swelling of your tissues). and keep your poor feet elevated.
@kaybollinger79 I was put on prednisone and it did nothing outside providing symptoms such as urinary tract infection symptoms, which I have had since my cancer treatment and Urolift implant for bladder cancer x5th time!
@lilypaws How are you doing? I can't believe the suffering you have endured. Do you feel your treatment has helped? Prayers for your recovery...you are very brave.
@lelia You mention taking more Creon for your gastric issues after you were treated with Reclast. Do you have EPI or chronic pancreatitis. I have the latter, "severe" chronic pancreatitis, and is one of the reasons I refused oral meds. Today my rheumatologist, a new doctor, advised me that my diagnosis of osteoporosis was actually osteopenia -- my wrist had a DEXA reading of -3.2 but that was the total radius bone. The 33% reading was -2.3 according to the rheumatologist (I was previously treated by my endochronologist 2 months prior).
The rheumatologist suggested Reclast for me, in place of Tymlos -- I am finishing my second pen shortly. I am concerned about Reclast and pancreatitis. Have you had any attacks since the Reclast?
Carol
I had 2 reclast infusions...SEVERE bone, joint pain...after 2nd shot couldn't even pull my self up using the handrail to walk up the steps....never again will I take that drug....for me it was a POISON to my body..
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1 Reaction@lululinks why did you take second infusion.i told my dr. He is never putting that poison in me again