Reclast Infusion

Posted by cindydee @cindydee, Mar 20, 2018

I just had a reclast infusion last week and have had serious side effects. I had the worst flue like aching for 5 days then my lefty arm became full of inflammation in the wrist, elbow and shoulder which caused extreme pain and I lost the ability to straighten my elbow. Ultrasound showed huge amounts of fluid throughout the arm. The right arm is now starting to have the same symptoms. The pain is excruciating. Has anyone else experienced anything like this? Neither the ER doctor nor the Dr. who prescribed the procedure knew what to do to ease the symptoms. Both arms from fingertips to shoulder are swollen and neither elbow will straighten. Anyone else have adverse reactions to the reclast infusion? If yes, how long did it last?

@llwortman

Have you read the Osteoclast medical reports that have been conducted in Europe? Canada? Did you see that both countries have black warning labels on some Osteoclast?
Do you ask your docs lots of questions about how bones build up? Why do these medications cause more fractures? Why do bones naturally build up AND tear down daily? What is the antidote if your bones react negatively with impact fractures while on or recently taken off the Osteoclast? What jaw and dental problems may happen?
Best,

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Osteoclast report from Canada – I'll internet search n read it. Thank u.

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@llwortman

Be your own advocate. If the physician you are paying doesn’t communicate respectfully, have you thought about getting a new physician? It’s our bodies and we must go with our gut feelings! It’s our life and Osteoclast has become regret! I push to exercise and sleep better and sleep is healing Keep up your greT work.
All the best;-)

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@llwortman I googled osteoclast and its definition is "a large multinucleate bone cell which absorbs bone tissue during growth and healing.", it does not sound as if it's also a medication. I'm confused because you sound as if you are referring to it as one of the medications that are used for bone building or maintaining. Which medication are you actually referring to?
Thanks.
JK

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@contentandwell

@llwortman I googled osteoclast and its definition is "a large multinucleate bone cell which absorbs bone tissue during growth and healing.", it does not sound as if it's also a medication. I'm confused because you sound as if you are referring to it as one of the medications that are used for bone building or maintaining. Which medication are you actually referring to?
Thanks.
JK

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Prolia

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In reply to @llwortman "Prolia" + (show)
@llwortman

@llwortman I guess I’m just confused. I googled and it didn’t say it’s a “bone cell”. Obviously it does affect your bones too. It seems counter that it can cause fractures too. It does mention that it’s used for people on steroids like prednisone, which I am. I take a small dose of prednisone daily.
JK

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@lindawinn

Hi had a Reclast infusion in June 2019 and have had many side effects jaw,teeth sensitivity, shocking sensations in body especially in toes! Has anyone had this happen to them?

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Good Evening @lindawinn, welcome to Connect. You have described my bodies reaction to Boniva, It appears that all biophosonates are not good choices for you or me. Have you talked with your prescribing clinician? When is your next scheduled infusion?

The major issue for me was the fact that I had side effects every month for four months. This is not a medication that my body grew to tolerate. My PCP stopped this treatment and referred me to an endocrinologist.

After some research and more tests, I chose Tymlos. The injections are daily so if you need to stop because of an issue, you only have one day’s medication to deal with. The product does not require refrigeration. I am now on month 5 of 18 months.

Good luck with finding a good fit for you. May you be free of suffering. I am here for you. Chris

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Hi had a Reclast infusion in June 2019 and have had many side effects jaw,teeth sensitivity, shocking sensations in body especially in toes! Has anyone had this happen to them?

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@lindawinn

Hi had a Reclast infusion in June 2019 and have had many side effects jaw,teeth sensitivity, shocking sensations in body especially in toes! Has anyone had this happen to them?

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Hi @lindawinn, and welcome to Connect. You'll notice that I moved your message to this existing discussion about zoledronic acid (brand names Reclast or Zometa). I did this so you can connect with other members who have experience with this treatment. Simply click VIEW & REPLY to scroll through past posts.

Linda, are you taking Reclast for the treatment of osteoporosis? I encourage you to read the information by Mayo Clinic starting here:
– Osteoporosis https://www.mayoclinic.org/diseases-conditions/osteoporosis/symptoms-causes/syc-20351968
– How to keep your bones strong https://www.mayoclinic.org/diseases-conditions/osteoporosis/in-depth/how-to-keep-your-bones-strong/art-20304596

Be sure to also see the related links at the end of the each article.

Like @artscaping there are many members here on Connect who are living well with osteoporosis. Have you returned to your doctor since the infusion in June to tell him/her about your side effects? There are other options. Have any been discussed?

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@colleenyoung

Hi @lindawinn, and welcome to Connect. You'll notice that I moved your message to this existing discussion about zoledronic acid (brand names Reclast or Zometa). I did this so you can connect with other members who have experience with this treatment. Simply click VIEW & REPLY to scroll through past posts.

Linda, are you taking Reclast for the treatment of osteoporosis? I encourage you to read the information by Mayo Clinic starting here:
– Osteoporosis https://www.mayoclinic.org/diseases-conditions/osteoporosis/symptoms-causes/syc-20351968
– How to keep your bones strong https://www.mayoclinic.org/diseases-conditions/osteoporosis/in-depth/how-to-keep-your-bones-strong/art-20304596

Be sure to also see the related links at the end of the each article.

Like @artscaping there are many members here on Connect who are living well with osteoporosis. Have you returned to your doctor since the infusion in June to tell him/her about your side effects? There are other options. Have any been discussed?

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Yes I have osteoporosis! My number dropped drastically in 1 yr from a Crohns flare then started Remicade! I have spoken to the Dr about all my symptoms Jaw,ears,teeth sensitivity, tingling in extremities and the Dr dismissed them! My ANA came back elevated so now have to see a Rheumatologist. So very frustrating! Any feed back would be greatly appreciated

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@artscaping

Good Evening @lindawinn, welcome to Connect. You have described my bodies reaction to Boniva, It appears that all biophosonates are not good choices for you or me. Have you talked with your prescribing clinician? When is your next scheduled infusion?

The major issue for me was the fact that I had side effects every month for four months. This is not a medication that my body grew to tolerate. My PCP stopped this treatment and referred me to an endocrinologist.

After some research and more tests, I chose Tymlos. The injections are daily so if you need to stop because of an issue, you only have one day’s medication to deal with. The product does not require refrigeration. I am now on month 5 of 18 months.

Good luck with finding a good fit for you. May you be free of suffering. I am here for you. Chris

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Thank you for your response Chris! I won’t be taken anymore meds! This one was enough for me! I just hope they don’t last a lifetime! I’m happy you found a med that is working for you! I wish you the best!
Thank you again

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I had significant generalized pain, but when I now get Zometa I take Claritin few days before, day of and few days after. MUCH less discomfort. When I was on Darzalex I had similar pain. Took Claritin daily for the year. Without that help I wouldn't have been able to continue that protocol. Good luck with whatever it takes for you to find effective treatment. We are all so different. Will you let us know how you recover from this? Nancy

Liked by jmanj

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@1nan

I had significant generalized pain, but when I now get Zometa I take Claritin few days before, day of and few days after. MUCH less discomfort. When I was on Darzalex I had similar pain. Took Claritin daily for the year. Without that help I wouldn't have been able to continue that protocol. Good luck with whatever it takes for you to find effective treatment. We are all so different. Will you let us know how you recover from this? Nancy

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Hi Nancy! I will try the Claritin Thk u for sharing! I appreciate it! I’m happy you found some relief! I’ll keep you posted!

Liked by jmanj

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@lookingforinfo

I had a Reclast infusion on 3/13/15 after having Osteopenia for a number of years and taking a combination of Boniva and Fossamax for 5 years. Starting that day, I have had tingling or small spasms in my feet and lower legs without stop. I briefly had mild aches, mild muscle pain and a headache, but they went away. I sometimes have learned to ignore the spasms. Sometimes I can't sleep, although "Restless legs" seems to help for a bit. My doctor sent me for an ultrasound (negative), for a painful electromyocardiogram (negative) to check my nerves and for a vein check. I have moderate vein disease and had outpatient surgery for it. When I sit too long, my legs get pins and needles. The doctor could not find anything wrong with me. It has been 4 years! Now my arms get too. Has anyone else had this issue or have any suggestions on how to at least reduce the sensations? I did not have another Reclast infusion and just learned I don't quite have osteoporosis yet. I was diagnosed with it 2 years ago, but got a better DEXA scan with a fancier 2 leg machine, and found out I still have osteopenia for the moment. I was recently thrilled to find a few new lactose free foods that I can eat, since I am lactose intolerant. Boar's Head lactose free cheddar and Fairlife milk. Still searching for answers.

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Hello! I see it’s been going on 5yrs since you had a Reclast infusion. Can you tell me if you still have any side effects?

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@lindawinn

Hello! I see it’s been going on 5yrs since you had a Reclast infusion. Can you tell me if you still have any side effects?

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It made my bones in my neck worse and I had 3 discs replaced and am still seeing doctors. I will never have another one. There are other ways to strengthen your bones. Look on line there is a product out that guarantees it and there’s a book out about changing your eating habits. I would try these.

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I’m on your team! I had injections. I was down for the count and very ill. I am athletic and in shape and eat well.
I woke up one morning and could not put weight on mt right leg. My Orthopedic Doctor in sports medicine found an impact fracture – suspect Osteoclasts! Bravo to you fir speaking up and doing the right thing.

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