Reclast Infusion

Posted by cindydee @cindydee, Mar 20, 2018

I just had a reclast infusion last week and have had serious side effects. I had the worst flue like aching for 5 days then my lefty arm became full of inflammation in the wrist, elbow and shoulder which caused extreme pain and I lost the ability to straighten my elbow. Ultrasound showed huge amounts of fluid throughout the arm. The right arm is now starting to have the same symptoms. The pain is excruciating. Has anyone else experienced anything like this? Neither the ER doctor nor the Dr. who prescribed the procedure knew what to do to ease the symptoms. Both arms from fingertips to shoulder are swollen and neither elbow will straighten. Anyone else have adverse reactions to the reclast infusion? If yes, how long did it last?

My wife had a reclast infusion in feb of 2019. She is very sensitive to all medications and has dietary issues: gluten sensitivity/dairy sensitivity. She also had a very bad case of esophageal thrush perhaps 15 years ago which created havoc with her stomach. As a result, her doctor recommended reclast infusion to bypass her stomach issues. She had the infusion and had the flu like symptoms which lasted 3-4 weeks. However, about this time she developed horrible stomach cramps that occur perhaps once-twice a week. She had an endoscopy to determine what is happening and they discovered irritation of the esophagus where it meets the stomach. They prescribed zantac to be taken for two months and a follow up endoscopy. She started zantac and continued having stomach cramping. After a month of zantac, she had a stomach x-ray and determined she has stool retention. She has been switched to protonix to address this. She has been on this a week and has had one occurrence of the stomach pains again. The doctors insist that reclast did not cause this and I can find no other information linking reclast to stomach pains/stool retention, although a friend of ours has indicated she knows of two people who reported this same type of reaction. Are there any others who have heard of this type of reaction?

Liked by jmanj

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I had a Reclast infusion of 1/2 dose about 3 months ago, and my symptoms seem to be getting worse rather than better. Rather than bone or muscle pain I get indigestion and other g.i. problems, asthma from the g.i issues, and also labored breathing with exercise. This "exercise" includes things as minor as plugging in a device into an adaptor, or trying to open a jar lid that is tight. It's anything where my arms encounter resistance. I only got 1/2 dose; wonder somewhat if I'd still be alive if I'd had a whole dose. I don't recommend this drug to anyone, but especially those who have g.i. issues and asthma. Had to go to the E.R. 2 weeks ago because I'd gone 2 days without being able to get my breath. I spend a lot of time sitting with a fan blowing into my face. Another drug not to take is Prolia, another one you have to wait out if you have an adverse reaction (6 months). The drug description said you can get an infection; it didn't tell you the drug works by hijacking your immune system to build bone or I never would have taken it. I had an ear infection for 3 months; my doctor said to never take Prolia again. A friend had severe jaw pain from it. I've had a broken hip and a broken sacrum; I'd take these any day over the side effects of Reclast and Prolia. When I told my primary doctor I'd be trying the bisphosphonate pills after the Reclast wears off, she strongly recommended against it and said not to take anything. Rather, I'm supposed to up my weight bearing exercise, etc.

Liked by jmanj

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@frankstags

My wife had a reclast infusion in feb of 2019. She is very sensitive to all medications and has dietary issues: gluten sensitivity/dairy sensitivity. She also had a very bad case of esophageal thrush perhaps 15 years ago which created havoc with her stomach. As a result, her doctor recommended reclast infusion to bypass her stomach issues. She had the infusion and had the flu like symptoms which lasted 3-4 weeks. However, about this time she developed horrible stomach cramps that occur perhaps once-twice a week. She had an endoscopy to determine what is happening and they discovered irritation of the esophagus where it meets the stomach. They prescribed zantac to be taken for two months and a follow up endoscopy. She started zantac and continued having stomach cramping. After a month of zantac, she had a stomach x-ray and determined she has stool retention. She has been switched to protonix to address this. She has been on this a week and has had one occurrence of the stomach pains again. The doctors insist that reclast did not cause this and I can find no other information linking reclast to stomach pains/stool retention, although a friend of ours has indicated she knows of two people who reported this same type of reaction. Are there any others who have heard of this type of reaction?

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I also have g.i. issues – fructose malabsorption, lactose intolerance and visceral hypersensivity – and had finally gotten everything under control until I got a 1/2 dose infusion of Reclast almost 3 months ago. After that I had the worst constipation I've ever had in my life. I was so bound up and bloated my g.i. doctor did an Xray to see if there was a blockage and there wasn't. A also had a blood test for lipase, a pancreatic enzyme, and my lipase was way below normal. The uptake: I had to take laxatives every day and increase the amount of Creon I'm taking. The problem with the constipation went away after about a month, but the indigestion issues are still going on. G.I. issues are listed as a possible side effect of the drug, and probably if you already have them the drug worsens them immensely. If you look up Reclast on the Mayo Clinic site it lists many, many possible side effects including g.i. issues. So, it is a myth that the infusion will bypass stomach issues.

Liked by jmanj

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Hi all. New to Connect and everyone's comments and experiences have been very helpful. I was diagnosed with Osteoporosis a few months ago and my RA ordered me to get the Prolia infusion. Unfortunately, my insurance turned it down and said I had to first try the Reclast infusion for a year before going on to Prolia. I'm scheduled to have the infusion in a few weeks. I asked the infusion center if there were any immediate side effects (meaning right after the infusion) I needed to worry about and if I needed someone to drive me home (I live 40 miles from where the infusion will be). She said that was up to me and every person is different. Really? I would think it's a yes or no question. Has anyone had a bad experience right after the infusion or am I good to drive for about a 90 minutes after the procedure (I work in the Washington, DC area, thus the long commute). Thanks!

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@ginanne100

Hi all. New to Connect and everyone's comments and experiences have been very helpful. I was diagnosed with Osteoporosis a few months ago and my RA ordered me to get the Prolia infusion. Unfortunately, my insurance turned it down and said I had to first try the Reclast infusion for a year before going on to Prolia. I'm scheduled to have the infusion in a few weeks. I asked the infusion center if there were any immediate side effects (meaning right after the infusion) I needed to worry about and if I needed someone to drive me home (I live 40 miles from where the infusion will be). She said that was up to me and every person is different. Really? I would think it's a yes or no question. Has anyone had a bad experience right after the infusion or am I good to drive for about a 90 minutes after the procedure (I work in the Washington, DC area, thus the long commute). Thanks!

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@ginanne I had the reclast infusion for 5 years, once yearly. I never had any bad experience afterwards and just went about my business. I’ve done the reclast for as long as is allowable and just finished the 3 year holiday after it. The reclast helped maintain my bone density for where it was at. Dr. now is wanting me to take the prolia shot. After reading the side effects and talking with my dentist about prolia I won’t be doing that.

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@bonnieh218

@ginanne I had the reclast infusion for 5 years, once yearly. I never had any bad experience afterwards and just went about my business. I’ve done the reclast for as long as is allowable and just finished the 3 year holiday after it. The reclast helped maintain my bone density for where it was at. Dr. now is wanting me to take the prolia shot. After reading the side effects and talking with my dentist about prolia I won’t be doing that.

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So you can only do the Reclast for five years? Did you have good bone density increase while on the Reclast? Did you retain your increase after going off Reclast? Or did you take a different medication after the Reclast? My Endocrinologist has me on Forteo for two years, and then wants to switch to Reclast, so I’m curious about everyone’s experience.

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@jmanj

So you can only do the Reclast for five years? Did you have good bone density increase while on the Reclast? Did you retain your increase after going off Reclast? Or did you take a different medication after the Reclast? My Endocrinologist has me on Forteo for two years, and then wants to switch to Reclast, so I’m curious about everyone’s experience.

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@jmanj yes you can only take the reclast for a few years. You might want to ask about the number of years as things are always changing. I did not increase bone density but I maintained for 4 years. I took no other med for op after the reclast. This last year I went down, so they think I should do the prolia shot now. They say I cannot repeat the reclast infusion. I was at -2.5 and went to -2.6.

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Yes! Side affects are horrible. Read University of British Columbia in Canada recent report on Prolia.
You are not alone. In other countries this drug comes with a Black Box Warning!

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Hello cindydee and others. I had Reclast with no problem before starting treatment for my cancer, Multiple Myeloma, with no problem. When I started monthly infusions it was called " Zometa". The first two times it caused major bone pain. A MM patient shared information she learned – take daily Claritin. It reduced my pain immediately by about 80%. One of my cancer treatments caused the same pain. Again, significant relief when I tried using Claritin those months while getting those infusions. This summer a drug rep for that cancer treatment explained the science behind that use of Claritin. It may be worth a conversation with your physician. My PCP encourages continued use since Claritin is essentially"harmless". I now get Zometa quarterly and see no side defects while taking Claritin. That pain is pretty rough, not your imagination, and to find relief is a gift. Good luck going forward. If you have opportunity to give this a try, will you please share your experience? Blessings. Nancy

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@faith123

I had my first one in april of last year with no problems at all. Will get second one soon.
Hope this one does as well. Sorry you had such disturbing things go wrong. Maybe they
from somthing else. Have you asked your osteoporosis dr. About this?

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@cindydee Was it a rheumatologist who did your injection? my insurance company requires a rheumatologist to inject it. I haven't done it. Primary care doctor to check on my phosphorus level.

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@mlu

@cindydee Was it a rheumatologist who did your injection? my insurance company requires a rheumatologist to inject it. I haven't done it. Primary care doctor to check on my phosphorus level.

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am referring to a Prolia injection.

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@mlu

@cindydee Was it a rheumatologist who did your injection? my insurance company requires a rheumatologist to inject it. I haven't done it. Primary care doctor to check on my phosphorus level.

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My yearly IV reclast was initiated by my rheumatologist. I no longer see him since I cannot have arthritis meds due to kidney risk. The Zometa is now part of cancer treatment. After a year of monthly treatments it is now quarterly. Never questioned or challenged by insurance. Have you appealed a decision of denial? Your oncologist could certainly make a good argument on your behalf. Maybe others "out here" have experience with this. Hope this helps. Nancy

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I had chills once a month then my teeth started breaking and I had to have 2 root canals. I started having fatigue and muscle spasms in my legs and severe depression. I then started having bad severe back pain. I was always healthy before I took the recast infusion. It’s been 2 and a half years and nobody seems to know what to do to help me. I also have a numbness that starts in my right arm and triggers uncontrollable crying. The doctor put me on steroids and it’s helped but I can’t keep taking them. If anyone else has had these problems pleas let me know.

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@sljohns

I had chills once a month then my teeth started breaking and I had to have 2 root canals. I started having fatigue and muscle spasms in my legs and severe depression. I then started having bad severe back pain. I was always healthy before I took the recast infusion. It’s been 2 and a half years and nobody seems to know what to do to help me. I also have a numbness that starts in my right arm and triggers uncontrollable crying. The doctor put me on steroids and it’s helped but I can’t keep taking them. If anyone else has had these problems pleas let me know.

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I have had several of the same symptoms. Read the university of British Columbia recent report on Prolia and an antidote. I may be reprimanded, but I returned to my Chinese doctor who prescribed a herb tea that has the same herbs as U BC Canada wrote a resesrch paper. It has helped me tremendously. Cleveland Clinic has been approved to administer Chinese herbs as well.
Accupunture has also helped my Jaw
Pain after my painful root canal and femur impact fractures. Just be very careful who you speak with regarding Chinese herbs and note U of Washington in Seattle just opened a facility in Seattle Chinatown. I would be willing to share more with you. I know how life threatening the Osteoclast experience is…but I have found healing and hope. Best

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@llwortman

I have had two horrible reactions to injections.
Google the mfg and product you will be shocked.Many women are being affected. I am
trying to get the toxic stuff out of my body. I wish we could talk!

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Any time you want to talk you can private message me

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