1. < Osteoporosis & Bone Health

Reclast Infusions: Side-effects & Recovery time

Posted by cindydee @cindydee, Mar 20, 2018

I just had a reclast infusion last week and have had serious side effects. I had the worst flue like aching for 5 days then my lefty arm became full of inflammation in the wrist, elbow and shoulder which caused extreme pain and I lost the ability to straighten my elbow. Ultrasound showed huge amounts of fluid throughout the arm. The right arm is now starting to have the same symptoms. The pain is excruciating. Has anyone else experienced anything like this? Neither the ER doctor nor the Dr. who prescribed the procedure knew what to do to ease the symptoms. Both arms from fingertips to shoulder are swollen and neither elbow will straighten. Anyone else have adverse reactions to the reclast infusion? If yes, how long did it last?

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awfultruth | @awfultruth | Mar 24 3:06pm
In reply to @windyshores "Since I am so reactive to meds, my doc said I could do 1 mg instead..." + (show)
@windyshores

Since I am so reactive to meds, my doc said I could do 1 mg instead of 5 mg, and as far apart as 6 months. I can't do oral meds due to GERD. (He also said I could wait 2-3 months after Evenity whereas Reclast would be given immediately after Tymlos finished.)

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@windyshores Do you know anything more about being able to wait 2-3 months after Evenity? Is that the length of time before one would start losing bone again after Evenity? I had just assumed you needed to start the next med one month after the last Evenity shot. I mean it would be great to know that you have a bit of time afterwards before plunging into the next med. Logically you wouldn't get a DXA scan to see your Evenity results until a month after your last shot. So already a month would have past and depending on the results of the DXA you might want some time to think and research your next step.

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3 replies
debis67 | @debis67 | Mar 25 11:42am
In reply to @awfultruth "@windyshores Do you know anything more about being able to wait 2-3 months after Evenity? Is..." + (show)
@awfultruth

@windyshores Do you know anything more about being able to wait 2-3 months after Evenity? Is that the length of time before one would start losing bone again after Evenity? I had just assumed you needed to start the next med one month after the last Evenity shot. I mean it would be great to know that you have a bit of time afterwards before plunging into the next med. Logically you wouldn't get a DXA scan to see your Evenity results until a month after your last shot. So already a month would have past and depending on the results of the DXA you might want some time to think and research your next step.

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Hi. I had Gastric Bypass and I have Gerd. I had 1 Prolia shot but NO MORE. Too many side effects. I will be seeing a Rheumatologist to take me off Prolia.( Next shot due in Aug) I need a relay med and Reclast IV is 1 of them. But I’m afraid of that too. I’m going to ask if I can get mine in smaller doses. I didn’t know you can. TY!

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windyshores | @windyshores | Mar 25 4:30pm
In reply to @awfultruth "@windyshores Do you know anything more about being able to wait 2-3 months after Evenity? Is..." + (show)
@awfultruth

@windyshores Do you know anything more about being able to wait 2-3 months after Evenity? Is that the length of time before one would start losing bone again after Evenity? I had just assumed you needed to start the next med one month after the last Evenity shot. I mean it would be great to know that you have a bit of time afterwards before plunging into the next med. Logically you wouldn't get a DXA scan to see your Evenity results until a month after your last shot. So already a month would have past and depending on the results of the DXA you might want some time to think and research your next step.

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@awfultruth I read that Evenity lasts in the body (or its action) for 65 days. I was surprised when my doc said "there is no hurry in doing Reclast after Evenity because the mineralization from Evenity takes time." I asked about 3 months and he said that would be okay but my CTX is very low so that might be a factor too. I really need a break after 5 years cancer meds, 2 years Tymlos and now Evenity and feel like I need to heal a little! I definitely had heard, previously- and read in "Great Nones"- that Reclast should be done one month after the last Evenity. I honestly feel they don't know or else the info is changing with more use of this med.

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1 reply
awfultruth | @awfultruth | Mar 25 5:42pm
In reply to @windyshores "@awfultruth I read that Evenity lasts in the body (or its action) for 65 days. I..." + (show)
@windyshores

@awfultruth I read that Evenity lasts in the body (or its action) for 65 days. I was surprised when my doc said "there is no hurry in doing Reclast after Evenity because the mineralization from Evenity takes time." I asked about 3 months and he said that would be okay but my CTX is very low so that might be a factor too. I really need a break after 5 years cancer meds, 2 years Tymlos and now Evenity and feel like I need to heal a little! I definitely had heard, previously- and read in "Great Nones"- that Reclast should be done one month after the last Evenity. I honestly feel they don't know or else the info is changing with more use of this med.

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@windyshores I get needing a break after all that. I hope you can feel safe taking one. It is frustrating that there are so few definite answers in all this bone business. But, I am impressed with how hard you work to help yourself through all this. May your health continue to improve.

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1 reply
windyshores | @windyshores | Mar 25 6:33pm
In reply to @awfultruth "@windyshores I get needing a break after all that. I hope you can feel safe taking..." + (show)
@awfultruth

@windyshores I get needing a break after all that. I hope you can feel safe taking one. It is frustrating that there are so few definite answers in all this bone business. But, I am impressed with how hard you work to help yourself through all this. May your health continue to improve.

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Great Bones not Nones! Tried to edit...

I am have seen rheumatology, neurology and see orthopedist (non-surgeon) this week to week out symptoms that are not from Evenity and those that are, so I can on whether to continue!

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susanfalcon52 | @susanfalcon52 | Mar 26 7:07am
In reply to @awfultruth "@windyshores Do you know anything more about being able to wait 2-3 months after Evenity? Is..." + (show)
@awfultruth

@windyshores Do you know anything more about being able to wait 2-3 months after Evenity? Is that the length of time before one would start losing bone again after Evenity? I had just assumed you needed to start the next med one month after the last Evenity shot. I mean it would be great to know that you have a bit of time afterwards before plunging into the next med. Logically you wouldn't get a DXA scan to see your Evenity results until a month after your last shot. So already a month would have past and depending on the results of the DXA you might want some time to think and research your next step.

Jump to this post

awfultruth,
At my recent appointment with rheumatologist, he said,
“Evenity injections #12 in May. Reclast in June.”
It’s scheduled and that’s the plan.

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