Reclast Infusions: Side-effects & Recovery time

Posted by cindydee @cindydee, Mar 20, 2018

I just had a reclast infusion last week and have had serious side effects. I had the worst flue like aching for 5 days then my lefty arm became full of inflammation in the wrist, elbow and shoulder which caused extreme pain and I lost the ability to straighten my elbow. Ultrasound showed huge amounts of fluid throughout the arm. The right arm is now starting to have the same symptoms. The pain is excruciating. Has anyone else experienced anything like this? Neither the ER doctor nor the Dr. who prescribed the procedure knew what to do to ease the symptoms. Both arms from fingertips to shoulder are swollen and neither elbow will straighten. Anyone else have adverse reactions to the reclast infusion? If yes, how long did it last?

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@windyshores

@takady did the doctors say the heart blockage was caused by the Reclast? How would it do that? I mean what is the mechanism? Your story is scary. Like @lilaclady41 I am sensitive to meds and am asking for reduced dose (20% dose of 1 mg vs 5mg), slow infusion and IV hyration. Hoping I can tolerate it. I already have afib periodically so nervous about that. Many women I know do fine with Reclast except for a few days of being fluish. Sorry that wasn't you.

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No, they didn't say it was and I didn't know to ask. I'm seeing the endocrinologist this week and have a list of questions for her. It seemed that all my present issues started within 2 weeks of the infusion. And being pretty healthy late the previous year, made it click in my mind. I started doing some research (on line) and I feel that it is a major factor.

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@takady

Just please do the research. I wish I had. Check blogs, check for class action lawsuits.

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I haven’t seen any class action but I did report my complications.

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@windyshores

@takady did the doctors say the heart blockage was caused by the Reclast? How would it do that? I mean what is the mechanism? Your story is scary. Like @lilaclady41 I am sensitive to meds and am asking for reduced dose (20% dose of 1 mg vs 5mg), slow infusion and IV hyration. Hoping I can tolerate it. I already have afib periodically so nervous about that. Many women I know do fine with Reclast except for a few days of being fluish. Sorry that wasn't you.

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No, they didn't say it was and I didn't know to ask. I'm seeing the endocrinologist this week and have a list of questions for her. It seemed that all my present issues started within 2 weeks of the infusion. And being pretty healthy late the previous year, made it click in my mind. I started doing some research (on line) and I feel that it is a major factor. I truly hope it works for you!

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@kgrainger

I haven’t seen any class action but I did report my complications.

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That's on my list to do this week.

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I was seeing an endocrinologist for a different reason. She saw. My medical records and asked why my rheumatologist didn’t recommend infusion. I had no answer, didn’t know there was such a thing. Only knew about Prolia and didn’t want that. As I said, the endocrinologist could see I have many allergies even to foods. So she ordered a super slow drip for me.

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@takady

That's on my list to do this week.

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Yes do it!

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I had the Reclast infusion and had almost every side effect listed at some
Point. I would never do it again. It started with the worst chills of my
Life and then flu
Symptoms for several days. Aches and pains, headaches, diarrhea, fatigue. I’ve had worsened shortness of breath. The infusion was in September. Infelt so run down. In November I contracted some sort of virus, not Covid, that led to two antibiotics for bronchitis. I’m just now feeling better and less fatigue. I do have autoimmune disease so possibly why I had a bad reaction.

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@renm

I had the Reclast infusion and had almost every side effect listed at some
Point. I would never do it again. It started with the worst chills of my
Life and then flu
Symptoms for several days. Aches and pains, headaches, diarrhea, fatigue. I’ve had worsened shortness of breath. The infusion was in September. Infelt so run down. In November I contracted some sort of virus, not Covid, that led to two antibiotics for bronchitis. I’m just now feeling better and less fatigue. I do have autoimmune disease so possibly why I had a bad reaction.

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@renm I also have an autoimmune disease and sensitivity to meds. I am hoping the low dose (20%), IV hydration (saline) and slow infusion (one hour) help me (and tylenol). We have no choice after bone builders really, unfortunately.

My doc is so nervous about Reclast for me that he did not give it to me during cancer treatment (almost everyone has it with hormonal cancer meds), and that is how my bones got so bad that they fractured.

Just want to say that those of us with bad side effects tend to post here. Many women have a couple of days of malaise and some even have no side effects. So for anyone reading this, keep it in perspective!

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I see in several comments about taking Xanax prior to an infusion. Are those of you who take meds for anxiety fearful of the side effects from the meds or the “process” - the needle stick and infusion itself?

I can say that unless you have a fear of needles, there’s not much to worry about - no more than getting a blood draw every six months while on Evenity, Tymlos or any other osteo med. Once the needle is inserted, there’s not much else to it.

I have had positive experiences with Reclast, but those of you who are having these dreadful reactions are scaring the bejeepers out of me! I am truly sorry some of you have had bad outcomes with Reclast. I had a terrible experience with Tymlos which pretty much took me out of the game in 2023, so I understand the fear of side effects.

I guess I’m trying to ease the minds of those of you who are worried about the actual infusion process.

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@windyshores

@renm I also have an autoimmune disease and sensitivity to meds. I am hoping the low dose (20%), IV hydration (saline) and slow infusion (one hour) help me (and tylenol). We have no choice after bone builders really, unfortunately.

My doc is so nervous about Reclast for me that he did not give it to me during cancer treatment (almost everyone has it with hormonal cancer meds), and that is how my bones got so bad that they fractured.

Just want to say that those of us with bad side effects tend to post here. Many women have a couple of days of malaise and some even have no side effects. So for anyone reading this, keep it in perspective!

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Thank you! Yes, I agonized over whether to take the Reclast or not and then decided that I would never know unless I tried it. Everyone seems to have a different experience with it.
I am happy for those it helps!

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