Reclast Infusions: Side-effects & Recovery time

Posted by cindydee @cindydee, Mar 20, 2018

I just had a reclast infusion last week and have had serious side effects. I had the worst flue like aching for 5 days then my lefty arm became full of inflammation in the wrist, elbow and shoulder which caused extreme pain and I lost the ability to straighten my elbow. Ultrasound showed huge amounts of fluid throughout the arm. The right arm is now starting to have the same symptoms. The pain is excruciating. Has anyone else experienced anything like this? Neither the ER doctor nor the Dr. who prescribed the procedure knew what to do to ease the symptoms. Both arms from fingertips to shoulder are swollen and neither elbow will straighten. Anyone else have adverse reactions to the reclast infusion? If yes, how long did it last?

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@parrotqueen

I didn't realize it either! I am now taking about 12 mg three times a day - for osteoporosis as well as for arthritis. My scores have been getting better and I have NO arthritis pain!

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I tried to go back a few posts to see what you and @vgball talking about. No luck. Can you please explain your reference to prunes. Thank You 🙏

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@dkapustin

Hi there. Thanks, @JustinMcClanahan for adding me. I have Osteoporosis and tried supplements, diet, and exercise to increase my bone density but nothing worked. I was getting worse. I also want to add that I had been active for decades so weight bearing exercises (weights, walking, elliptical, tennis) still produced a 60 year old with weak bones. Blood tests showed a healthy parathyroid and calcium and Vitamin D levels. With all of that said, I realized that Osteoporosis was a disease. A progressive disease that sometimes needed medication. I didn't want to take the drugs either but I am currently taking care of my 83 year old mother who can only walk to the bathroom due to falls and untreated OP. I spent years in skilled nursing facilities and memory care units caring for my father with Alzheimers and I've seen the lives of those with brittle bones and I just don't want to end up that way. At 62, I've had my right hip replaced, am now recovering form a right knee replacement and will get the other one replaced next year. All as a result from Osteoarthritis which is the sister of the OP. I took Forteo for a year and had no side effects but had a problem with my insurance so switched to Recast. I had the infusion last year and I followed the 3 simple rules. 1. Drink tons of water days before, day of, and day after infusion. 2. Make sure they give the infusion over a 45 minute time frame. NOT the 20 minutes they normally do. If they refuse, get it done elsewhere. 3. Take a couple of Tylenol before going to bed. I had no horrific side effects and although I have joint blame, I couldn't never say with certainty that it is a side effect from the OP drugs. But if you do nothing, lean to heavily on social media and people calling the drugs poison, you may find yourself in trouble later on. All drugs come with risks and you have to weigh the risk/benefit ratio. If you do nothing and your bone density keeps decreasing every year, you will not have a good quality of life in your elder years. I am going to fight for my quality of health and take the drugs. I do know that Reclast should only be sued for about 5 years. I also know that at some point my life, I will probably have to get on Prolia but I'm trying to use all of the other drugs first. I plan on finishing the year of Forteo and staying on Reclast as long as possible. This is certainly something you need to discuss with your doctor. If you don't trust your doctor, find another one. I do recommend seeing an RA or endocronolgist to discuss your OP because they are more knowledgeable about the treatment options for OP. But please be cautious about listening to the people calling it poison. Make your own informed decision.

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Thank you so much for your thoughtful insight. My situation is similar to yours. I have been active my whole life and want to continue as long as I can. I had my Reclast infusion yesterday and so far so good. I am a bit achy but that is the extent. Hydration and inflammation management are so important. Thanks agai!

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@dkapustin

Hi there. Thanks, @JustinMcClanahan for adding me. I have Osteoporosis and tried supplements, diet, and exercise to increase my bone density but nothing worked. I was getting worse. I also want to add that I had been active for decades so weight bearing exercises (weights, walking, elliptical, tennis) still produced a 60 year old with weak bones. Blood tests showed a healthy parathyroid and calcium and Vitamin D levels. With all of that said, I realized that Osteoporosis was a disease. A progressive disease that sometimes needed medication. I didn't want to take the drugs either but I am currently taking care of my 83 year old mother who can only walk to the bathroom due to falls and untreated OP. I spent years in skilled nursing facilities and memory care units caring for my father with Alzheimers and I've seen the lives of those with brittle bones and I just don't want to end up that way. At 62, I've had my right hip replaced, am now recovering form a right knee replacement and will get the other one replaced next year. All as a result from Osteoarthritis which is the sister of the OP. I took Forteo for a year and had no side effects but had a problem with my insurance so switched to Recast. I had the infusion last year and I followed the 3 simple rules. 1. Drink tons of water days before, day of, and day after infusion. 2. Make sure they give the infusion over a 45 minute time frame. NOT the 20 minutes they normally do. If they refuse, get it done elsewhere. 3. Take a couple of Tylenol before going to bed. I had no horrific side effects and although I have joint blame, I couldn't never say with certainty that it is a side effect from the OP drugs. But if you do nothing, lean to heavily on social media and people calling the drugs poison, you may find yourself in trouble later on. All drugs come with risks and you have to weigh the risk/benefit ratio. If you do nothing and your bone density keeps decreasing every year, you will not have a good quality of life in your elder years. I am going to fight for my quality of health and take the drugs. I do know that Reclast should only be sued for about 5 years. I also know that at some point my life, I will probably have to get on Prolia but I'm trying to use all of the other drugs first. I plan on finishing the year of Forteo and staying on Reclast as long as possible. This is certainly something you need to discuss with your doctor. If you don't trust your doctor, find another one. I do recommend seeing an RA or endocronolgist to discuss your OP because they are more knowledgeable about the treatment options for OP. But please be cautious about listening to the people calling it poison. Make your own informed decision.

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I nixed the recommendation for Reclast and Fosamax after reading the hideous side effects of both and all the bisphosphonates...So now I'm doing Osteostrong - only 4 sessions so far and already I'm feeling relief in my body from joint pain.

You can learn about it here...if you have any questions you can ask me by replying to this but like I said I've only had 4 sessions. I'm 72 and have mild - moderate OP

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Could I ask if you have had exsperience with osteporisis please post.

Thank you

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@jjwisc

Could I ask if you have had exsperience with osteporisis please post.

Thank you

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There are several threads related to osteoporosis and peoples' experiences with, and questions about, the various drugs used to treat it. And many people post about non-drug approaches to maintaining bone health and density that they are taking. So, if you don't see answers to questions you might have, search under osteoporosis in the main page.

I have been classified as having osteopenia and am following the topics to learn how I might forestall osteoporosis...well, for forever would be great!

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@callalloo

There are several threads related to osteoporosis and peoples' experiences with, and questions about, the various drugs used to treat it. And many people post about non-drug approaches to maintaining bone health and density that they are taking. So, if you don't see answers to questions you might have, search under osteoporosis in the main page.

I have been classified as having osteopenia and am following the topics to learn how I might forestall osteoporosis...well, for forever would be great!

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Thank you

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I am sorry that you are feeling terrible. Did you have blood work a week before your infusion for kidney function? I drank 16 ounces of water just before infusion and another 48 ounces throughout the day. I also asked the nurse to run the infusion slow about 45 minutes. It is not to be any less than 15 minutes. Did they do blood work in the ER and how was that ? Hope you feel better!

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I had my first Reclast transfusion May 2022. I have severe ostoperosis due to a hysterectomy in 1994, which ended me with a pulmonary anurism. Due to my history of blood clots I was not put on any estergen or hormones which led me to ostoperosis. My RA Doctor decided I could have the Reclast transfusion which I had the first one. I have been feeling sick, severe pain in my muscles, and bones. I don't have any energy I was a very active woman until May 2022. Please tell me this will end!!!!!!!!!!!!!!!!

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@jccline

I had my first Reclast transfusion May 2022. I have severe ostoperosis due to a hysterectomy in 1994, which ended me with a pulmonary anurism. Due to my history of blood clots I was not put on any estergen or hormones which led me to ostoperosis. My RA Doctor decided I could have the Reclast transfusion which I had the first one. I have been feeling sick, severe pain in my muscles, and bones. I don't have any energy I was a very active woman until May 2022. Please tell me this will end!!!!!!!!!!!!!!!!

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I also had severe muscle pain after Reclast. It was my first infusion. I couldn't pick up my right foot due to pain in my back so I called 911. I was admitted to the hospital but the doctor s didn't know what to do and only gave me acetaminophen which didn't help. The next day I did some stretches and that helped enough for me to get discharged. My doctor didn't respond so I googled and found it was ok to take Motrin. My pain returned every day at 2 AM and tapered off once I got up and did stretches.
My daughter arranged for a whole body massage but that hurt too much on my back. My chiropractor said it was muscle pain so he could not help. I had the daily pain for 10 d until my daughter suggested aspirin. Taking one tablet at bedtime finally ended the pain.
Then a follow up chest CT to a poor quality ER X-ray showed that I had suffered multiple blood clots to my lungs. It has been 3 month s and I remain short winded on exercise.

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@mitllama

I also had severe muscle pain after Reclast. It was my first infusion. I couldn't pick up my right foot due to pain in my back so I called 911. I was admitted to the hospital but the doctor s didn't know what to do and only gave me acetaminophen which didn't help. The next day I did some stretches and that helped enough for me to get discharged. My doctor didn't respond so I googled and found it was ok to take Motrin. My pain returned every day at 2 AM and tapered off once I got up and did stretches.
My daughter arranged for a whole body massage but that hurt too much on my back. My chiropractor said it was muscle pain so he could not help. I had the daily pain for 10 d until my daughter suggested aspirin. Taking one tablet at bedtime finally ended the pain.
Then a follow up chest CT to a poor quality ER X-ray showed that I had suffered multiple blood clots to my lungs. It has been 3 month s and I remain short winded on exercise.

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Do you think the blood clots came from the Reclast transfusion?

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