reaction from LD Naltrexone
I started taking Low dose Naltrexone in early July compounded to 4.5mg, the dose that helped relieve some of my fatigue. However, now I have very annoying skin itching in various places (hands, ankles upper torso, upper arms). I also have a rash under my breasts and on my upper back. I intend to discontinue the LDN for awhile even though it has helped my fatigue. Has anyone experienced this kind of reaction to LDN? And is this a common side effect?
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I started 1.5 mg of LD Naltrexone mid April of this year and am now up to 3 mg. I've not noticed any side effects, but I am wondering if any of you experience drowsiness with it.
I. too, take LDN in the morning. I tried evening but had really weird dreams that affected my quality of sleep. Also, it's easier to remember to take it in the morning. I started at .5 mg and very gradually went up to 4.5 mg which is what I take now. I have found an increase in energy and improvement in my shortness of breath. My doctor told me to expect occasional lapses in the improvement, which I have had.
Just want to share my experience.
I started off at a conservative 1.5mg dose, felt nothing, so doubled it after two weeks. I then felt perhaps just a tiny bit worse, if anything, but with my cooperative physician's assistant, got a new prescription at 4.5mg. After a few days I felt slightly "drugged", almost as if I had drunk a small amount of alcohol--something I cannot do during my nearly one year of LC--so quit the regimen altogether.
I also took oral NAD+ alongside the LDN, as one of the large studies had done, in their case via injection.
I'm continuing the NAD+, but can't say I'm feeling any effect from that.
Should also state that, given the astounding variety of the how LC presents, in my case it's almost solely fatigue, with some "brain fog", so I consider myself comparatively fortunate.
Want to mention, too, for the originator of this thread who suffered a bad rash, that this can be a serious contraindication for many medications, although I'm unsure about that for LDN specifically.
The rash I reported in Jan on this thread has been gone for several months only to reappear this week on my shoulder. Praying it doesn't become as big of a problem as last time. I have decided (without any factual evidence) that it is another part of Long Covid
My doctor would not prescribe LDN. He finally gave me a prescription for Adderall which gives me enough energy most days to live an almost normal life. It does not help if I am having a severe relapse of the worst symptoms. The relapses usually last several days to a week. I never know how I am going to feel from one day to the next. I have had long haul covid since my last booster shot Oct 2022. My doctor told me that I may have this the rest of my life. It is discouraging. Especially since one of my good friends thinks I am just lazy.
So, it sounds like you have post vaccine syndrome. If you didn’t get sick after covid but got sick after the vaccine you don’t have long covid. Long covid is the result of being dx with covid and not recovering from the illness and dealing with new symptoms stemming from the illness of covid. Vaccine injury/syndrome is a result of getting sick after the vaccine. The vaccine itself set off an immune response that mirrors long covid. It’s the same or similar disease. It’s important to be clear that if you were healthy before the vaccine and got sick after the vaccine then it’s vaccine induced injury. Governments and doctors are more comfortable calling the post vaccine syndrome long covid for some reason….i wonder why? 🤷♀️
I started LDN at 4.5 mg right off & committed to 90 day trial for my chronic fibromyalgia pains that I've had for many years. Also fatigue. So far (after two months) I don't feel any difference with my symptoms. I have slight constipation & transient gastrointestinal discomforts, which I also had before, but now they are either not at all improved or even slightly got worse. I'm disappointed. So I decided to finish my 90 day trial period & then stop.
Yes, when I started on LDN my arms and legs felt like acid had poured on them . This went on for days. My doctor said to stop taking it. I stopped and burning stopped.
@svet2001 When my LDN 4.5mg seems to be losing its effectiveness, it sometimes helps to LOWER the dosage (e.g., to 3.0 mg for a while).