Re: My Scan Results for followup of Renal Cell Carcinoma

Posted by azkidney57 @azkidney57, Nov 5, 2019

So I have my scan results, MRI and Chest CT. They found a 2.7 cm lucent lesion in the left lobe of my liver. The report stated it was likely a complex cyst. I don’t know if I should worry about this or not. So I have not Mets from the RCC, but I have a liver lesion. I can’t find anything that makes sense to me regarding a “lucent lesion” in the internet. What is a “lucent liver lesion”?

@kamama94

First of all, you are NOT alone.

I agree with what JK says.

I also lost a kidney. Only thing is, nobody knew for years and years until my remaining kidney started to fail and scans revealed a totally atrophied left kidney with around 22% function in the right one.

I was furious! How could I not have known? How could this not have shown up on lab tests? Why did I have to develop diabetes which likely did most of the damage, along with kidney stones and bouts of kidney infections? How dare the universe ruin one of my kidneys? And how dare other people get in my way, speak to me at all, go about their business when I'm scared poop-less?

I was cross, cranky, irritable, asked a zillion questions.

But no nurse or doctor ever told me I was "more anxious." That nurse should have her license jerked.

Of course I was anxious. Of course you are anxious. Of course I was grumpy. Of course you feel grumpy.

Just know that the anger and fear probably will subside the more you know because knowledge is power.

I, too, resent the "invasions" of my privacy with tests and scans but I also now welcome them because at least I will know what's going on and can take appropriate measures.

The difference between us is that I didn't see a therapist formally as I am a member of a 12-step program which gives me tools – and expert people – to deal with my issues of resentment and fear and one of them happens to actually be a therapist.

I would venture to say that most of us here feel or at least have felt like you do and we are here for you. You can vent, rant, complain and we all will understand and support you. Together this group has some answers. . .

You are not alone!

Jump to this post

I completely understand what the feelings are here
However I realize I have done exactly the reverse. I just shut down. My cancer experience begin with my spouse and both sons. You listen to what all the doctors are saying and try to figure out just what has happened in your family. How could this be it is not the correct order of things. I think all the time, however I just don’t talk to anyone about my thoughts. I’m known as a very strong person all my life. I’m the dear Abby for everyone. I just can’t discuss anything that pertains to me. Seems that those friends that have used me as an outlet for all their problems-relationship issues, unhappy with shopping you get the picture, just petty things with no real substance. Yet I listen. Have had to block my phone from some friends that yell and scream about their pettiness and have no idea what that is doing to me or for that matter they don’t care. Not many true friends. Working through the maze of all the different specialists for spouse and both sons as their caregiver (they are deceased now) and then be given the same sentence is overwhelming. You can not deny to yourself what you are facing.
I had the very unfortunate THOUGHTLESS breast care SPECIALISTS have me in the office to deliver what the plan was for my care
She started by shuffling me and a friend into a little room with a dirty cringe worthy sofa and a white drawing board attached to the wall. Started drawing s boob and running through her power point type speech. My friend ask a question (friend is breast cancer survivor) and DR became angry that she dared interrupt her. she threw her felt pen to the floor and flopped down in her chair at which time she announced and I quote “well you are just dying” you are stage 4. However we should do mastectomies anyway” unquote
This is the most I have vented.
I left the doctors office with just the comment that I thanked her for the information however I would seek other care.
Wow what s journey.

REPLY
@nobody

I completely understand what the feelings are here
However I realize I have done exactly the reverse. I just shut down. My cancer experience begin with my spouse and both sons. You listen to what all the doctors are saying and try to figure out just what has happened in your family. How could this be it is not the correct order of things. I think all the time, however I just don’t talk to anyone about my thoughts. I’m known as a very strong person all my life. I’m the dear Abby for everyone. I just can’t discuss anything that pertains to me. Seems that those friends that have used me as an outlet for all their problems-relationship issues, unhappy with shopping you get the picture, just petty things with no real substance. Yet I listen. Have had to block my phone from some friends that yell and scream about their pettiness and have no idea what that is doing to me or for that matter they don’t care. Not many true friends. Working through the maze of all the different specialists for spouse and both sons as their caregiver (they are deceased now) and then be given the same sentence is overwhelming. You can not deny to yourself what you are facing.
I had the very unfortunate THOUGHTLESS breast care SPECIALISTS have me in the office to deliver what the plan was for my care
She started by shuffling me and a friend into a little room with a dirty cringe worthy sofa and a white drawing board attached to the wall. Started drawing s boob and running through her power point type speech. My friend ask a question (friend is breast cancer survivor) and DR became angry that she dared interrupt her. she threw her felt pen to the floor and flopped down in her chair at which time she announced and I quote “well you are just dying” you are stage 4. However we should do mastectomies anyway” unquote
This is the most I have vented.
I left the doctors office with just the comment that I thanked her for the information however I would seek other care.
Wow what s journey.

Jump to this post

Life is a journey and it’s gets harder as health matters are impacting lives- one shut down- be overwhelmed- not there for others and me- so sorry- I received cancer help outside my care parameters. And they far and beyond for me. Information is there but kindness matters more. And I make sure sure to do the things I need to – books, wanderings , etc to help me feel it’s all matters. Sorry I have not commucated with Mayo and the teams but struggles are real finically And emotionally . Take care

REPLY
@nobody

I completely understand what the feelings are here
However I realize I have done exactly the reverse. I just shut down. My cancer experience begin with my spouse and both sons. You listen to what all the doctors are saying and try to figure out just what has happened in your family. How could this be it is not the correct order of things. I think all the time, however I just don’t talk to anyone about my thoughts. I’m known as a very strong person all my life. I’m the dear Abby for everyone. I just can’t discuss anything that pertains to me. Seems that those friends that have used me as an outlet for all their problems-relationship issues, unhappy with shopping you get the picture, just petty things with no real substance. Yet I listen. Have had to block my phone from some friends that yell and scream about their pettiness and have no idea what that is doing to me or for that matter they don’t care. Not many true friends. Working through the maze of all the different specialists for spouse and both sons as their caregiver (they are deceased now) and then be given the same sentence is overwhelming. You can not deny to yourself what you are facing.
I had the very unfortunate THOUGHTLESS breast care SPECIALISTS have me in the office to deliver what the plan was for my care
She started by shuffling me and a friend into a little room with a dirty cringe worthy sofa and a white drawing board attached to the wall. Started drawing s boob and running through her power point type speech. My friend ask a question (friend is breast cancer survivor) and DR became angry that she dared interrupt her. she threw her felt pen to the floor and flopped down in her chair at which time she announced and I quote “well you are just dying” you are stage 4. However we should do mastectomies anyway” unquote
This is the most I have vented.
I left the doctors office with just the comment that I thanked her for the information however I would seek other care.
Wow what s journey.

Jump to this post

Nobody, thank you for sharing this part of your journey with us. I'm also finding that my health care pros seem to discount and brush off my questions and concerns. I think in my case, it is because I am 76 and if a specific concern, b.p. and kidney disease, isn't yet at the most critical stage, they just write it off as age.

A few weeks ago I wrote about my best friend's ongoing severe pain ff her stage 4 breast cancer diagnosis, lumpectomy, chemo and radiation treatments. Her pcp immediately referred her to the surgical oncologist who told her "the pain is something you are just going to have to live with". My post here and further research resulted in printing out many options to pursue before "just living with the pain".

What struck me in your post was that you tend to "just shut down". I compiled a "cliff notes" version of the printouts because my friend doesn't spend time researching or "wading through a bunch of verbiage" placed all in a pocket folder and called a kitchen table discussion/intervention with her and hubby.

Hubby and I got her to agree to ff up with her pcp. She called instead of making an appt. Although the nurse called and left a message for her to return the call, she didn't. This was 2-3 weeks ago. Whether she is in denial or just shuts down, I'm not sure but I was alarmed when when they were over the other day and her underarm pain from lymph nodes removal made her flinch with the slightest movement of her arm. In showing me the area, it was swollen and an 1 1/2 wide horizontal red band across the area made me think it was inflamed and possibly infected. That is when she confessed she hadn't call the pcp office back.

Hubby hadn't known about the swelling or inflammation and she hadn't told him of the doc's return message either. Yesterday he call the pcp's office and are now waiting for an apptm. with a pain mgt. specialist.

Like you, my friend is a great listener but also great deflector and non-sharer when it comes to her own personal issues. I understand the fear that can grip us but also know that avoidance and simple acceptance of a condition does nothing to move us to a better place. I am so happy you are being proactive with your care and letting the former pros know that you will be seeking other professional help.

What Kamama94 wrote is so relatable and true as well as what others here have responded for most of us when getting a serious health diagnosis and are seeking treatment. We are paying for our professional care and if our caregivers cannot treat us with the same concern and tact they would want to be treated, it is time to move on. Wishing you the very best and adding another voice to that of others that you are not alone and that we care. Please keep us informed as you move forward.

REPLY
@nobody

I completely understand what the feelings are here
However I realize I have done exactly the reverse. I just shut down. My cancer experience begin with my spouse and both sons. You listen to what all the doctors are saying and try to figure out just what has happened in your family. How could this be it is not the correct order of things. I think all the time, however I just don’t talk to anyone about my thoughts. I’m known as a very strong person all my life. I’m the dear Abby for everyone. I just can’t discuss anything that pertains to me. Seems that those friends that have used me as an outlet for all their problems-relationship issues, unhappy with shopping you get the picture, just petty things with no real substance. Yet I listen. Have had to block my phone from some friends that yell and scream about their pettiness and have no idea what that is doing to me or for that matter they don’t care. Not many true friends. Working through the maze of all the different specialists for spouse and both sons as their caregiver (they are deceased now) and then be given the same sentence is overwhelming. You can not deny to yourself what you are facing.
I had the very unfortunate THOUGHTLESS breast care SPECIALISTS have me in the office to deliver what the plan was for my care
She started by shuffling me and a friend into a little room with a dirty cringe worthy sofa and a white drawing board attached to the wall. Started drawing s boob and running through her power point type speech. My friend ask a question (friend is breast cancer survivor) and DR became angry that she dared interrupt her. she threw her felt pen to the floor and flopped down in her chair at which time she announced and I quote “well you are just dying” you are stage 4. However we should do mastectomies anyway” unquote
This is the most I have vented.
I left the doctors office with just the comment that I thanked her for the information however I would seek other care.
Wow what s journey.

Jump to this post

@nobody I am glad you posted here, and I sincerely hope that allowing yourself to vent, has made you feel a bit less burdened. Is there a social worker connected with the cancer center you go to, or are you able to take advantage of a patient support group or other talk therapy, in your area? Reading your post, it had been a very difficult road, and continues to be so, for you. For that, my heart goes out to you.

Yes, it is difficult to always be the one who listens, and doesn't have someone to talk over your own concerns. Take care of yourself, and release with love, those whose "problems" just cannot be solved by you. Look for your own support system, like your friend who went with you to that appointment.

What other care have you sought out, now? How are you feeling, after venting [your words!] here? How can we help you, here at Mayo Connect? We do care.
Ginger

REPLY

Today after reading your post and others response I cried haven’t took time to cry in 12 years

REPLY
@nobody

Today after reading your post and others response I cried haven’t took time to cry in 12 years

Jump to this post

@nobody When my dad passed in 2012, whom i was close to, a friend told me "There is healing in salt water. The ocean, sweat, and tears." I hope this eases your mind some.
Ginger

REPLY
@nobody

Today after reading your post and others response I cried haven’t took time to cry in 12 years

Jump to this post

@nobody. I’m glad you were finally able to cry. I know that many feel that crying is a weakness, but I find that it can be a first step in getting better. And you’ve reached out to MayoClinicConnect—that’s another big step. Your not feeling that you have to be strong all the time and letting yourself cry, helps others to see that they, too, can put aside stoicism and ask for help. Thank you for helping. Would you like to share some positive memories of your husband and sons? We’d like to listen

REPLY
@colleenyoung

Dear @azkidney57, I just made myself a steaming cup of magnificent herbal tea. It's a lovely mixture of mint and ginger. Can you imagine for a minute that I just set a big mug of it in front of you? Now, as we sit together, let's put the news you've received into manageable boxes and open one at a time.

Being a patient is a big job. It's not one you applied for and certainly not one you wanted. But it is the most important one you have right now. You can do this.

Your body has betrayed you. It's okay to feel that way. But it's your body and you're going to take care of it and love it, even if it betrayed you. Right?

Yes, scans cause anxiety. But they also give you and your team very valuable information to know what actions need to be taken. Lucency is a technical term for an area that lets X-rays through the tissue and as a result appears darker on the picture. On a CT scan, lucent lesion in the kidney indicates an area of a different density from the surrounding tissue. The technician reading your scans suspects that this lesion might be complex cyst, but more testing will be required to confirm the suspicion and to determine whether the lesion is benign or not. Simple and complex cysts are very common. Here's more information:
https://www.radiologyinfo.org/en/info.cfm?pg=renal-cyst
https://www.health.harvard.edu/diseases-and-conditions/by_the_way_doctor_should_i_be_worried_about_a_kidney_cyst

Information may make you worry. But it can also help equip you. With this information, you can ask informed questions of your care team. You know that this needs followup, so you will make sure that happens.

Of course, you are anxious. And that's okay. It's an absolutely normal response to getting scary news and being faced with the unknown. No, you have not been labeled as more anxious than the average patient. Anxiety and cancer are best friends with each other (unfortunately). One rarely goes without the other. It's NORMAL. The good news is that your cancer center can offer you help. They have social workers. I strongly suggest you see a social worker. They are amazing and should be a part of every cancer patient's team.

I hope that talking with members here on Connect can help with the times in between doctor visits. We do care! Let me know when you're ready for another cup of tea. Okay?

Jump to this post

I was. At Mayo MN this past week and I found out that I not only have end stage liver disease and now I got kidney cancer

REPLY
@racing212

I was. At Mayo MN this past week and I found out that I not only have end stage liver disease and now I got kidney cancer

Jump to this post

Thinking of you, Mayo will have options

REPLY
@racing212

I was. At Mayo MN this past week and I found out that I not only have end stage liver disease and now I got kidney cancer

Jump to this post

@racing212, what do you know about the cancer at this point? Do you know what stage it is and what the treatment plan is?

REPLY

Last fall it was 1.1 center meters and as of Tuesday it 1.2 . They are going to watch it for now. I go back in August

REPLY
@racing212

I was. At Mayo MN this past week and I found out that I not only have end stage liver disease and now I got kidney cancer

Jump to this post

Sending prayers!!

REPLY
Please sign in or register to post a reply.