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Raynaud's Syndrome: Anyone want to talk about Raynaud’s?

Posted by Terri Martin, Volunteer Mentor @windwalker, Apr 27, 2018

Anyone want to talk about Raynaud's Syndrome? My daughter has a severe case of it. I would like to start a support group here on Connect to find others, share our stories, treatments and managing daily life.

Interested in more discussions like this? Go to the Autoimmune Diseases Support Group.

mireckij | @mireckij | 1 day ago
In reply to @mef51 "I seem to have missed part of this conversation. Does anyone have recommendations on heated gloves?" + (show)
@mef51

I seem to have missed part of this conversation. Does anyone have recommendations on heated gloves?

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A quick search on Amazon shows a wide variety of battery-powered and compression gloves. Search using "Raynauds, gloves"

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hubert | @kuma | 1 day ago

I love the Mayo Clinic.🙏❤️

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patj123 | @patj123 | 1 day ago
In reply to @dancing1 "Does anyone else besides the terrible cold hands and fingertips have swollen finger tips that are..." + (show)
@dancing1

Does anyone else besides the terrible cold hands and fingertips have swollen finger tips that are red and turn different colors tear or cut easily and just plain hurt and throb? I think my doctor recommended a couple years ago only to use polysporin (sp) or pure Vaseline I can hardly type. They are terribly painful!

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I have the same problem with my fingertips. At first they hurt so much I could not touch anything. I like neosporin with pain killer. I apply a dab to the painful sores and either wrap a large bandaid around them or wear loose cotton gloves. My rheumatologist also presccribed sidenafil 20mg 3 times a day and while I have to be careful I no longer have the intense pain.
Also, I try to keep my fingers moving with a squeezy ball.

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1 reply
dancing1 | @dancing1 | 23 hours ago
In reply to @patj123 "I have the same problem with my fingertips. At first they hurt so much I could..." + (show)
@patj123

I have the same problem with my fingertips. At first they hurt so much I could not touch anything. I like neosporin with pain killer. I apply a dab to the painful sores and either wrap a large bandaid around them or wear loose cotton gloves. My rheumatologist also presccribed sidenafil 20mg 3 times a day and while I have to be careful I no longer have the intense pain.
Also, I try to keep my fingers moving with a squeezy ball.

Jump to this post

Thank you so very much I will ask my Nuerologist about this in a chat today. Thank you again so much. I can’t believe how painful this has been.

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