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Raynaud's Syndrome: Anyone want to talk about Raynaud’s?

Posted by Terri Martin, Volunteer Mentor @windwalker, Apr 27, 2018

Anyone want to talk about Raynaud's Syndrome? My daughter has a severe case of it. I would like to start a support group here on Connect to find others, share our stories, treatments and managing daily life.

Interested in more discussions like this? Go to the Autoimmune Diseases Support Group.

Gigi | @kivagood101 | 11 hours ago
In reply to @lynn0948 "I have just recently started symptoms of Raynaud's. So far only in my fingers. They go..." + (show)
@lynn0948

I have just recently started symptoms of Raynaud's. So far only in my fingers. They go white and numb. I have had Sjogren's Syndrome for 28 years then, developed neuropathy in 2004 and now have been diagnosed with LUPUS and RA. I am not sure but, I think the Raynaud's corresponds with the RA. There is nothing I do for the condition. I just wait for it to pass. The fingers usually go back to normal within a few minutes. It is very annoying.

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I've had Raynauds for 40 years. Started in Alaska i think with frost bite. Left hand. Temp goes below 60 degrees inside or out and my fingers turn white, then blue. Generally I ignore it. Sometimes I'll put a glove on. It resolves in less than 2 minutes. My Doc noticed it years ago and shrugged.
I was just diagnosed with reactive arthritis from salmonella poisoning. Hasn't seemed to affect Raynauds one way or the other.

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Becky, Volunteer Mentor | @becsbuddy | 7 hours ago
In reply to @lynn0948 "I have just recently started symptoms of Raynaud's. So far only in my fingers. They go..." + (show)
@lynn0948

I have just recently started symptoms of Raynaud's. So far only in my fingers. They go white and numb. I have had Sjogren's Syndrome for 28 years then, developed neuropathy in 2004 and now have been diagnosed with LUPUS and RA. I am not sure but, I think the Raynaud's corresponds with the RA. There is nothing I do for the condition. I just wait for it to pass. The fingers usually go back to normal within a few minutes. It is very annoying.

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@lynn0948 Welcome to Mayo Clinic Connect! This group is really great and will work with you to solve any problems that come up.

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