Rare cancer: ovarian clear cell carcinoma

Posted by odette @odette, Jul 18, 2018

Connect with others with ovarian clear cell carcinoma

Hi everyone,
We just opened a new group dedicated to gynecologic cancers. I have moved this discussion to the new group. See here:

> Gynecologic Cancers https://connect.mayoclinic.org/group/gynecologic-cancer/

Be sure to +FOLLOW the group and keep connecting.

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@colleenyoung

Hi everyone,
We just opened a new group dedicated to gynecologic cancers. I have moved this discussion to the new group. See here:

> Gynecologic Cancers https://connect.mayoclinic.org/group/gynecologic-cancer/

Be sure to +FOLLOW the group and keep connecting.

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Dear Colleen, I recently listened to the video on Cancer Immunotherapies. Initially, it was to be on women’s cancers and we were asked to submit questions.
As the topic of the discussion changed, we were informed that our questions would be addressed later by someone with expertise. My question was about ovarian clear cell cancer which is rare. I am hopeful that I will receive a response at some point. You are always so helpful, so I wondered if you might know about this matter. Thank you.

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@colleenyoung I was recently diagnosed with OCCC, stage 1a. I was reading through the notes and see you mentioned moving the page. I don't see a rare cancer page where these conversations have moved since February 2019. Will you please help me?

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@amg

@colleenyoung I was recently diagnosed with OCCC, stage 1a. I was reading through the notes and see you mentioned moving the page. I don't see a rare cancer page where these conversations have moved since February 2019. Will you please help me?

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Hi @amg, welcome. You are in the right place and have posted a message to the discussion about OCCC. This discussion used to be part of the Cancer group, but is now part of the group dedicated to Gynecologic Cancers.
Let me help you navigate to the parts of Connect that will interest you.

– Gynecologic Cancers group (all discussions) https://connect.mayoclinic.org/group/gynecologic-cancer/
– Rare cancer: ovarian clear cell carcinoma (discussion thread) https://connect.mayoclinic.org/discussion/rare-cancer/
– Cancer: Managing Symptoms group (all discussions) https://connect.mayoclinic.org/group/cancer-managing-symptoms/

I'd like to introduce you to fellow members who also have ovarian clear cell carcinoma, like @odette @miyonggilman and @kenwood1.
Amg, how are you doing? What treatment(s) are you or will you be having?

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@colleenyoung

Hi @amg, welcome. You are in the right place and have posted a message to the discussion about OCCC. This discussion used to be part of the Cancer group, but is now part of the group dedicated to Gynecologic Cancers.
Let me help you navigate to the parts of Connect that will interest you.

– Gynecologic Cancers group (all discussions) https://connect.mayoclinic.org/group/gynecologic-cancer/
– Rare cancer: ovarian clear cell carcinoma (discussion thread) https://connect.mayoclinic.org/discussion/rare-cancer/
– Cancer: Managing Symptoms group (all discussions) https://connect.mayoclinic.org/group/cancer-managing-symptoms/

I'd like to introduce you to fellow members who also have ovarian clear cell carcinoma, like @odette @miyonggilman and @kenwood1.
Amg, how are you doing? What treatment(s) are you or will you be having?

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First a quick process question. If I click reply, will you (Colleen), odette, miyonggilman and kenwood1 be automatically included since you included then in your reply to me? Or do all people on the discussion see every post?

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@amg

First a quick process question. If I click reply, will you (Colleen), odette, miyonggilman and kenwood1 be automatically included since you included then in your reply to me? Or do all people on the discussion see every post?

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Good question, @amg. All members following this discussion see every post. When you @mention a member by their username they know you are addressing them specifically, but everyone sees the post. This is described in more detail in this article:

– Replies and @mentions: How do I know who is replying to whom? https://connect.mayoclinic.org/page/about-connect/newsfeed-post/replies-and-mentions-how-do-i-know-who-is-replying-to-whom/

Find out more about how to use Connect here: https://connect.mayoclinic.org/get-started-on-connect/
And of course, you're always welcome to ask me questions. 🙂

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@amg

First a quick process question. If I click reply, will you (Colleen), odette, miyonggilman and kenwood1 be automatically included since you included then in your reply to me? Or do all people on the discussion see every post?

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Hello amg. I'm sorry I haven't responded until now. Ovarian clear cell is rare, but there are women who communicate regularly with each other on different sites. I was diagnosed in May 2017 and thankfully, I am doing well. Please feel free to write to me with any questions or concerns you may have and I will do my best to answer.

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