Looking for help with radiation fibrosis; Tips?

Posted by Ellen2007 @nnurse, Jan 29, 2023

Looking for help with radiation fibrosis following radiation of head and neck and a modified neck dissection . I have had PT and do daily exercises at home for neck fibrosis and trismus. I also have a mouth stretching device called a therabite. Is there anything else besides physical therapy that I can do to help with this worsening condition? I am also experiencing occasional muscle spams in the back of my neck and have read that Botox injections may help with that. Any suggestions would be much appreciated. Thank you.

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Some folks have used red light therapy for lymphedema and fibrosis. I don't have personal experience but I'm considering it. This PT offers this video on YouTube.

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I have been suffering from fibrosis for years and finally found a facility with treatments: South Shore Pain Management in Chestnut Hill, MA. The doctor said,”we see many patients with this condition, and have several treatment options!”
I thought I was going to cry.
I have started with trigger point injections. It’s the easiest starting point if it works. I need to be patient and give it more time but some relief is evident. I advise that you find a pain management clinic experienced in post radiation neck fibrosis.

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Profile picture for steve1947s @steve1947s

I have been suffering from fibrosis for years and finally found a facility with treatments: South Shore Pain Management in Chestnut Hill, MA. The doctor said,”we see many patients with this condition, and have several treatment options!”
I thought I was going to cry.
I have started with trigger point injections. It’s the easiest starting point if it works. I need to be patient and give it more time but some relief is evident. I advise that you find a pain management clinic experienced in post radiation neck fibrosis.

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Hi Steve
I managed to locate a couple of clinics in Toronto that provides trigger point injections.
I don't have any pain, but do have problems with swallowing and with speech (slurry and not able to articulate) - is consultation with your oncologist or family doctor required prior to embarking on this treatment?
Thx!

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Profile picture for josk @josk

Hi Steve
I managed to locate a couple of clinics in Toronto that provides trigger point injections.
I don't have any pain, but do have problems with swallowing and with speech (slurry and not able to articulate) - is consultation with your oncologist or family doctor required prior to embarking on this treatment?
Thx!

Jump to this post

As far as I know, which isn’t very far at all, trigger point injections are limited to easing pain in larger muscles, like the ones running down the back of the neck. There may be other ways to treat our swallowing issues. Mine are not yet real bad…. One issue at a time for this old man.

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Profile picture for steve1947s @steve1947s

As far as I know, which isn’t very far at all, trigger point injections are limited to easing pain in larger muscles, like the ones running down the back of the neck. There may be other ways to treat our swallowing issues. Mine are not yet real bad…. One issue at a time for this old man.

Jump to this post

Gotcha .. and thanks for info!
take care !!

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