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Ellen2007 avatar

Looking for help with radiation fibrosis; Tips?

Head & Neck Cancer | Last Active: Apr 30 1:06pm | Replies (43)

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Profile picture for atherton @atherton

My husband was diagnosed with head and neck cancer - SCC back in 2004. The Navy provided surgeries, however, they did not provide any preventive or even education on the devastating effects of radiation fibrosis.
he has been diagnosed with myelo-radiculo-plexo-neuro-myopathy complicated by dropped head syndrome with cervicalgia and dystonia to the left, lymphedema of the head and neck, dysphagia, trimus, and balance dysfunction. We have struggle to keep his pain under control. We finally found Dr. Stubblefield in New Jersey that's a leading expert in treating radiation fibrosis. I highly recommend them ! We fly from San Diego to New Jersey just to see Dr. Stubblefield. Their PT,OT,speech is something we have never experienced. I also found a very good article on the NIH that lists everything my husband has except one symptoms he does not have. The article explains everything include bareoreceptors causing fluctuating blood pressure. Due to being a new member - I'm not allowed to post messages that include links and URLs so google 'Late side effect of radiation treatment for head and neck cancer on the NIH by Itzhak Brook

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Replies to "My husband was diagnosed with head and neck cancer - SCC back in 2004. The Navy..."

@atherton Thank you very much for the information. I had tonsil cancer in 2003 and am now suffering from radiation fibrosis and have been for some time. My difficulty now is being able to speak because of the massive production of mucus around the vocal folds. I will look into the article by Itzhak Brook.