My Dad has terrible burns from radiation. Any suggestions to help?

Posted by mimz59 @mimz59, Nov 1, 2018

My Dad has terrible burns on his back from radiation. Any suggestions would be appreciated?

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@sews

I am about to start radiation. 16 weeks/5 days week and 30 min. sessions. Is this 30 session usual? A friend has said it seems too long.

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My head and neck radiation lasted about 30 minutes from being positioned with mask to the end. Actual radiation application was only 20-25 minutes of that. I suppose that everyone is different as far as the number of different angles that they use to target the area.

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Never had radiation to the head, mine was to the lower abdomen, if it is for 16 weeks it could be you be you are getting a lower dosage.

Good luck,
mlmcg

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Thanks……….never thought it might be lower dose…..will check that out..

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@sews

I am about to start radiation. 16 weeks/5 days week and 30 min. sessions. Is this 30 session usual? A friend has said it seems too long.

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@sews I received radiation in 2001 for breast cancer following a lumpectomy and chemo. I went every day for 6.5 weeks. It took longer for me to get undressed and redressed (only had to remove upper clothing and wear a cape) than the actual radiation treatment which, once I was in the right position, only took a few minutes. No one I've talked to who has undergone cancer treatment has been given the same protocols–different chemos, different number of chemo treatments, some surgery only, some chemo first, some chemo after surgery, etc.–oncologists really tailor the treatment to each person. It's not unusual to have questions now that you have had some time to think–ask your doctor (and your doctor's nurse)–what to expect, what will happen as your treatment progresses, how to care for yourself and the area that will be treated, etc. I can tell you that as the weeks of treatment went by, I did feel tired and it took some months to get over–get plenty of rest and don't overdo. The last week, or two, I did have some radiation "burns" (nothing awful, just red and weepy) under the breast in the crease where the breast meets the chest. After these healed, if you knew what to look for, you could tell that my left breast was ever so slightly darker than the other side (still is). My skin otherwise looks the same on both sides. Thinking of you and wishing you all the best.

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I covered my face with silvadene right after radiation. A couple of hours later, I cleaned the silvadene, and applied layers of fresh aloe which I also put in my mouth. I was radiated for head and neck cancer. The doctor was amazed that my skin was doing so much better than other patients. He had me record a tape of how I prepared the aloe and applied it on my face. It is extremely soothing and kind of cooks after applying on skin. You can buy large aloe leaves in hispanic stores and some grocery shops. Cut the piece you are going to use, and that depends on the size of the burn. Carefully peal all the green, because it can stain your skin. You will end with a clear part of the aloe. Slice it in half if it is thick enough, and apply it to the radiated skin. You can also put it in a plastic bag, and keep it in the fridge. Apply it fresh but not too cold. You can turn it once the feeling of freshness stops. Once it becomes kind of milky color, replace it with a fresh layer.Keep it on the burn as long as possible. I hope this helps.

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@nursemaven, what was the lotion you used for radiation burn? Wasn't it made from goat's milk or something?

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@mimz59

Thanks so much for the info.Will try putting it in the fridge.I hope your husband gets good news from his Pet Scan.Prayers coming your way..

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I’m on 7 radiation treatments into the 20 required for my right breast, which is isolated on the table used which has a hole where the right breast falls through. The first week I was fine, but used Aquaphor after treatment and before bed each night. Treatment # 6 & 7, I knew something had changed & last night I read up on radiation burn & realized the needle-like pains I was feeling, mostly around my lymph node scar, were from the radiation. I applied more Aquaphor, but it didn’t help for the first time. An hour later I tried my 2% hydrocortisone cream, but it didn’t help. I wiped it off carefully & got out my Aloe Gel for sunburn & took 2-500 mg Tylenol. I don’t think my doctor will want me to use the Aloe gel, but the combination gave me enough comfort to fall back to sleep at 3:30 am.
I go again today, as I will M-F through Feb 25th & hope my doctor will have a better solution for me than my middle of the night remedy.

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I had head and neck radiation and had burns toward the end. The doctor had recommended Aquaphor but I found that SSD (Silvadene) cream, aloe, Calendula lotion, and second skin topical strips provided the most relief. Like any burn, SSD relieves the pain but it is a prescription item. Ask your doctor for it. You can get a cortisone cream with calendula in it OTC. Just remember to clean all traces of lotion off before next treatment.

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Wish I had read this before my radiation. I am 10 months post radiation, and my poor breast is still swollen, and my nipple is still swollen and has lost all its color. I used several of the recommended moisturizers, including the very expensive Miaderm soap and lotion made from goat milk with calendula. Miaderm is manufactured and sold by a radiologist, who also observed that one of his patients was doing better than the others. I used to use aloe vera for burns around my house, to great effect. Wish I'd thought to use it for my radiation burns. I have just begun to have outbreaks of "freckles." When I called the radiologist, the nurse told me, "We always recommend seeing a dermatologist every 6 months." First time I'd heard that! I was diagnosed during the first week the oncologists had returned from COVID shutdown. If my internist had not intervened, my treatment would have been delayed by more than a month, despite the large duck-egg sized tumor. I had Stage III estrogen-receptor breast cancer. There is a long list of things that I was never told, things that were forgotten in the big rush to take care of a backlog of screening, as well as begin new treatments. One of my freckles turned out to be a pre-cancerous mole. Now I've got a whole new crop of freckles. The other thing I didn't expect: Remission is just the beginning of another phase of treatment. P.S. I still use the goat milk/calendula soap. I love the way it makes my skin feel. But I now buy from Goat Milk Stuff, one of the many goat farms that advertise on the internet.

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@madeler22

I’m on 7 radiation treatments into the 20 required for my right breast, which is isolated on the table used which has a hole where the right breast falls through. The first week I was fine, but used Aquaphor after treatment and before bed each night. Treatment # 6 & 7, I knew something had changed & last night I read up on radiation burn & realized the needle-like pains I was feeling, mostly around my lymph node scar, were from the radiation. I applied more Aquaphor, but it didn’t help for the first time. An hour later I tried my 2% hydrocortisone cream, but it didn’t help. I wiped it off carefully & got out my Aloe Gel for sunburn & took 2-500 mg Tylenol. I don’t think my doctor will want me to use the Aloe gel, but the combination gave me enough comfort to fall back to sleep at 3:30 am.
I go again today, as I will M-F through Feb 25th & hope my doctor will have a better solution for me than my middle of the night remedy.

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@madeler22, I thought I would check in with you. I hope you saw the responses from @sepdvm and @writerbroad.

Tomorrow is your last radiation appointment. How has it been going? How have you been managing the burning?

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@colleenyoung

@madeler22, I thought I would check in with you. I hope you saw the responses from @sepdvm and @writerbroad.

Tomorrow is your last radiation appointment. How has it been going? How have you been managing the burning?

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It’s not radiation burn, but a reaction from me rubbing my chest one night last week, when it started to itch. Of course the last week of radiation has exasperated the rash. The salves I’ve used have helped topically, but my “pins & needles” are coming from the inside-out. My entire breast is swollen from lymphedema & my nerve endings are in overdrive. Taking Advil for the inflammation and going to lymphedema therapy is helping a lot.
Plus, tomorrow IS my last treatment, so hopefully all these symptoms and the rash can begin the healing process.
At Stage 1a, I am feeling so blessed to be at the end of my journey, and it makes me feel a bit whiny to be complaining when there are so many “true” warriors out there fighting much worse battles then me. To all those ladies, you’re my heroes.

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@mimz59, I have bad systemic CALR with my gelsolin/FKTN. It has covered my face, and most of my torso. About a year back I was reading through the skin section of a drug store. I ran across Gold Bond Psoriatic Creme with Aspirin. It has been a real jewel. I spread it wherever the need is (except my eyes, of course.) every few hours until the need goes away. Then I don't use it until I need it again, perhaps days, weeks, etc. oldkarl

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