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Radiation and Invasive Lobular Cancer

Posted by kks @kks, Oct 3, 2022

I am reading a lot about Endocrine Therapy and Chemo options with ILC, but not much on Radiation. Does anyone have experience on effectiveness of this? Most of the research appears to be on ductal.

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marshgirl24 | @marshgirl24 | 19 hours ago
In reply to @mimi09 "Back in the Middle Ages (2002) I was diagnosed with DCIS at age 55. Lumpectomy, 2nd..." + (show)
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Back in the Middle Ages (2002) I was diagnosed with DCIS at age 55. Lumpectomy, 2nd lumpectomy b/c margins weren’t clear. I sailed through 30 fractions of radiation thanks to a friend who was a nun. She advised insisting on using gel from the very 1st day and the latest appointment of the day, followed by a quick ‘power nap’.
In 2024 I was diagnosed with ILC, told I needed a mastectomy and RECONSTRUCTION at age 78!!! Seriously?Now at age 80 with a new surgeon and med onc, I’m scheduled for a mastectomy in 4 days. No new boob, no AIs for me.
I send all of you prayers and best wishes for your future wellbeing…your way!

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@mimi09 My best wishes to you! I also am a lobular patient so your story speaks to me, as well as your age. You don't say why they thought you needed a mastectomy. I don't know if anyone "needs" reconstruction. When I was diagnosed with stage 1b, my dr at the time wanted me to have a mastectomy "because it's lobular." Maybe she knew more than I did. That had been her choice when she was diagnosed in her 40s. Still, I chose a lumpectomy and changed doctors. But I thought at the time that reconstruction at this age...is a lot of work. Everyone's choice is personal and so many factors are involved. Please let us know how you fare with your recovery. Power naps are the best! (the gel was also kind to me during radiation. We all need a supportive friend.)

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